Transition to Adulthood in Spina Bifida: Changing Roles and Expectations
Survival to adulthood for people with Spina Bifida now exceeds 85% due to improvements in medical and surgical management. Rates remain lower than expected for community participation, healthy lifestyle choices, employment and independent living. The importance of transition programming to help ado...
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| Format: | Article |
| Language: | English |
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Wiley
2007-01-01
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| Series: | The Scientific World Journal |
| Online Access: | http://dx.doi.org/10.1100/tsw.2007.179 |
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| _version_ | 1832562374836486144 |
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| author | Shubhra Mukherjee |
| author_facet | Shubhra Mukherjee |
| author_sort | Shubhra Mukherjee |
| collection | DOAJ |
| description | Survival to adulthood for people with Spina Bifida now exceeds 85% due to improvements in medical and surgical management. Rates remain lower than expected for community participation, healthy lifestyle choices, employment and independent living. The importance of transition programming to help adolescents with disabilities prepare for adult life roles is now understood. Literature currently is mainly conceptual or descriptive, but informs the process of developing transition program models. The need for competent and effective adult care providers is discussed. Both the transition to adulthood and the transfer of care to adult care clinics are important and distinct components of spina bifida lifespan care. |
| format | Article |
| id | doaj-art-b4c8eb49b70f4012b1b088abda371b41 |
| institution | Kabale University |
| issn | 1537-744X |
| language | English |
| publishDate | 2007-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | The Scientific World Journal |
| spelling | doaj-art-b4c8eb49b70f4012b1b088abda371b412025-02-03T01:22:47ZengWileyThe Scientific World Journal1537-744X2007-01-0171890189510.1100/tsw.2007.179Transition to Adulthood in Spina Bifida: Changing Roles and ExpectationsShubhra Mukherjee0Pediatric and Adolescent Rehabilitation Medicine, Rehabilitation Institute of Chicago and Children's Memorial Hospital Spina Bifida Clinic, Northwestern University Feinberg School of Medicine, Chicago, IL, USASurvival to adulthood for people with Spina Bifida now exceeds 85% due to improvements in medical and surgical management. Rates remain lower than expected for community participation, healthy lifestyle choices, employment and independent living. The importance of transition programming to help adolescents with disabilities prepare for adult life roles is now understood. Literature currently is mainly conceptual or descriptive, but informs the process of developing transition program models. The need for competent and effective adult care providers is discussed. Both the transition to adulthood and the transfer of care to adult care clinics are important and distinct components of spina bifida lifespan care.http://dx.doi.org/10.1100/tsw.2007.179 |
| spellingShingle | Shubhra Mukherjee Transition to Adulthood in Spina Bifida: Changing Roles and Expectations The Scientific World Journal |
| title | Transition to Adulthood in Spina Bifida: Changing Roles and Expectations |
| title_full | Transition to Adulthood in Spina Bifida: Changing Roles and Expectations |
| title_fullStr | Transition to Adulthood in Spina Bifida: Changing Roles and Expectations |
| title_full_unstemmed | Transition to Adulthood in Spina Bifida: Changing Roles and Expectations |
| title_short | Transition to Adulthood in Spina Bifida: Changing Roles and Expectations |
| title_sort | transition to adulthood in spina bifida changing roles and expectations |
| url | http://dx.doi.org/10.1100/tsw.2007.179 |
| work_keys_str_mv | AT shubhramukherjee transitiontoadulthoodinspinabifidachangingrolesandexpectations |