Co-creation of a toolkit to assist risk communication and clinical decision-making in severe preeclampsia: SPOT-Impact study design
Globally, the incidence of hypertensive disorders of pregnancy, especially preeclampsia, remains high, particularly in low- and middle-income countries. The burden of adverse maternal and perinatal outcomes is particularly high for women who develop a hypertensive disorder remote from term (<34 w...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2024-12-01
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| Series: | Global Health Action |
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| Online Access: | http://dx.doi.org/10.1080/16549716.2024.2336314 |
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| author | Hannah Brown Amoakoh Bregje C. De Kok Linda Lucy Yevoo Klaartje M. Olde Loohuis Emmanuel K. Srofenyoh Daniel K. Arhinful Koiwah Koi-Larbi Kwame Adu-Bonsaffoh Mary Amoakoh-Coleman Joyce L. Browne |
| author_facet | Hannah Brown Amoakoh Bregje C. De Kok Linda Lucy Yevoo Klaartje M. Olde Loohuis Emmanuel K. Srofenyoh Daniel K. Arhinful Koiwah Koi-Larbi Kwame Adu-Bonsaffoh Mary Amoakoh-Coleman Joyce L. Browne |
| author_sort | Hannah Brown Amoakoh |
| collection | DOAJ |
| description | Globally, the incidence of hypertensive disorders of pregnancy, especially preeclampsia, remains high, particularly in low- and middle-income countries. The burden of adverse maternal and perinatal outcomes is particularly high for women who develop a hypertensive disorder remote from term (<34 weeks). In parallel, many women have a suboptimal experience of care. To improve the quality of care in terms of provision and experience, there is a need to support the communication of risks and making of treatment decision in ways that promote respectful maternity care. Our study objective is to co-create a tool(kit) to support clinical decision-making, communication of risks and shared decision-making in preeclampsia with relevant stakeholders, incorporating respectful maternity care, justice, and equity principles. This qualitative study detailing the exploratory phase of co-creation takes place over 17 months (Nov 2021-March 2024) in the Greater Accra and Eastern Regions of Ghana. Informed by ethnographic observations of care interactions, in-depth interviews and focus group and group discussions, the tool(kit) will be developed with survivors and women with hypertensive disorders of pregnancy and their families, health professionals, policy makers, and researchers. The tool(kit) will consist of three components: quantitative predicted risk (based on external validated risk models or absolute risk of adverse outcomes), risk communication, and shared decision-making support. We expect to co-create a user-friendly tool(kit) to improve the quality of care for women with preeclampsia remote from term which will contribute to better maternal and perinatal health outcomes as well as better maternity care experience for women in Ghana. |
| format | Article |
| id | doaj-art-aa742026b36d4a6f996d22a23bb7f348 |
| institution | Kabale University |
| issn | 1654-9880 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Global Health Action |
| spelling | doaj-art-aa742026b36d4a6f996d22a23bb7f3482025-02-05T12:46:13ZengTaylor & Francis GroupGlobal Health Action1654-98802024-12-0117110.1080/16549716.2024.23363142336314Co-creation of a toolkit to assist risk communication and clinical decision-making in severe preeclampsia: SPOT-Impact study designHannah Brown Amoakoh0Bregje C. De Kok1Linda Lucy Yevoo2Klaartje M. Olde Loohuis3Emmanuel K. Srofenyoh4Daniel K. Arhinful5Koiwah Koi-Larbi6Kwame Adu-Bonsaffoh7Mary Amoakoh-Coleman8Joyce L. Browne9University of GhanaUniversity of AmsterdamUniversity of GhanaUniversity Medical Center UtrechtUniversity Medical Center UtrechtUniversity of GhanaAction on Preeclampsia GhanaUniversity Medical Center UtrechtUniversity of GhanaUniversity Medical Center UtrechtGlobally, the incidence of hypertensive disorders of pregnancy, especially preeclampsia, remains high, particularly in low- and middle-income countries. The burden of adverse maternal and perinatal outcomes is particularly high for women who develop a hypertensive disorder remote from term (<34 weeks). In parallel, many women have a suboptimal experience of care. To improve the quality of care in terms of provision and experience, there is a need to support the communication of risks and making of treatment decision in ways that promote respectful maternity care. Our study objective is to co-create a tool(kit) to support clinical decision-making, communication of risks and shared decision-making in preeclampsia with relevant stakeholders, incorporating respectful maternity care, justice, and equity principles. This qualitative study detailing the exploratory phase of co-creation takes place over 17 months (Nov 2021-March 2024) in the Greater Accra and Eastern Regions of Ghana. Informed by ethnographic observations of care interactions, in-depth interviews and focus group and group discussions, the tool(kit) will be developed with survivors and women with hypertensive disorders of pregnancy and their families, health professionals, policy makers, and researchers. The tool(kit) will consist of three components: quantitative predicted risk (based on external validated risk models or absolute risk of adverse outcomes), risk communication, and shared decision-making support. We expect to co-create a user-friendly tool(kit) to improve the quality of care for women with preeclampsia remote from term which will contribute to better maternal and perinatal health outcomes as well as better maternity care experience for women in Ghana.http://dx.doi.org/10.1080/16549716.2024.2336314respectful maternal carepatient-centered careshared-decision makinglow-resource settinghypertensive disorders of pregnancy |
| spellingShingle | Hannah Brown Amoakoh Bregje C. De Kok Linda Lucy Yevoo Klaartje M. Olde Loohuis Emmanuel K. Srofenyoh Daniel K. Arhinful Koiwah Koi-Larbi Kwame Adu-Bonsaffoh Mary Amoakoh-Coleman Joyce L. Browne Co-creation of a toolkit to assist risk communication and clinical decision-making in severe preeclampsia: SPOT-Impact study design Global Health Action respectful maternal care patient-centered care shared-decision making low-resource setting hypertensive disorders of pregnancy |
| title | Co-creation of a toolkit to assist risk communication and clinical decision-making in severe preeclampsia: SPOT-Impact study design |
| title_full | Co-creation of a toolkit to assist risk communication and clinical decision-making in severe preeclampsia: SPOT-Impact study design |
| title_fullStr | Co-creation of a toolkit to assist risk communication and clinical decision-making in severe preeclampsia: SPOT-Impact study design |
| title_full_unstemmed | Co-creation of a toolkit to assist risk communication and clinical decision-making in severe preeclampsia: SPOT-Impact study design |
| title_short | Co-creation of a toolkit to assist risk communication and clinical decision-making in severe preeclampsia: SPOT-Impact study design |
| title_sort | co creation of a toolkit to assist risk communication and clinical decision making in severe preeclampsia spot impact study design |
| topic | respectful maternal care patient-centered care shared-decision making low-resource setting hypertensive disorders of pregnancy |
| url | http://dx.doi.org/10.1080/16549716.2024.2336314 |
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