Codeveloping an Online Resource for People Bereaved by Suicide: Mixed Methods User-Centered Study
BackgroundAlthough suicide bereavement is highly distressing and is associated with an increased risk of suicidal behaviors and mental and physical health impairments, those bereaved by suicide encounter difficulties accessing support. Digital resources offer new forms of sup...
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JMIR Publications
2025-01-01
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| Series: | JMIR Mental Health |
| Online Access: | https://mental.jmir.org/2025/1/e56945 |
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| author | Edouard Leaune Kushtrim Bislimi Pauline Lau-Taï Héloïse Rouzé Benoit Chalancon Laurène Lestienne Pierre Grandgenevre Margot Morgiève Nathalie Laplace Guillaume Vaiva Julie Haesebaert Emmanuel Poulet |
| author_facet | Edouard Leaune Kushtrim Bislimi Pauline Lau-Taï Héloïse Rouzé Benoit Chalancon Laurène Lestienne Pierre Grandgenevre Margot Morgiève Nathalie Laplace Guillaume Vaiva Julie Haesebaert Emmanuel Poulet |
| author_sort | Edouard Leaune |
| collection | DOAJ |
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BackgroundAlthough suicide bereavement is highly distressing and is associated with an increased risk of suicidal behaviors and mental and physical health impairments, those bereaved by suicide encounter difficulties accessing support. Digital resources offer new forms of support for bereaved people. However, digital resources dedicated to those bereaved by suicide are still limited.
ObjectiveThis paper aimed to develop and implement an evidence-based, innovative, and adaptive online resource for people bereaved by suicide, based on their needs and expectations.
MethodsWe performed a mixed methods, participatory, user-centered study seeking to build resources from the perspectives of people bereaved by suicide and professionals or volunteers working in the field of postvention. We used the Information System Research framework, which uses a three-stage research cycle, including (1) the relevance cycle, (2) the design cycle, and (3) the rigor cycle, and the Design Science Research framework.
ResultsA total of 478 people participated in the study, including 451 people bereaved by suicide, 8 members of charities, and 19 mental health professionals working in the field of postvention. The development stage of the resource lasted 18 months, from October 2021 to March 2023. A total of 9 focus groups, 1 online survey, 30 usability tests, and 30 semistructured interviews were performed. A website for people bereaved by suicide named “espoir-suicide” was developed that includes (1) evidence-based information on suicide prevention and bereavement, (2) testimonies of people bereaved by suicide, (3) a delayed chat to ask questions on suicide and bereavement to a specialized team of mental health professionals, and (4) an interactive nationwide resource directory. The mean system usability score was 90.3 out of 100 for 30 participants, with 93% (n=28) of them having a rating above 80. Since the implementation of espoir-suicide in March 2023, a total of 19,400 connections have been recorded, 117 local resources have been registered nationwide, and 73 questions have been posted in the chat.
ConclusionsThe use of a mixed methods, participatory, user-centered design allowed us to implement an evidence-based, innovative, and functional website for people bereaved by suicide that was highly relevant for fulfilling the needs and expectations of French people bereaved by suicide.
International Registered Report Identifier (IRRID)RR2-10.3389/fpsyt.2021.770154 |
| format | Article |
| id | doaj-art-a8b960fa59174045b99ec9e345f422ec |
| institution | Kabale University |
| issn | 2368-7959 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | JMIR Mental Health |
| spelling | doaj-art-a8b960fa59174045b99ec9e345f422ec2025-01-20T17:00:55ZengJMIR PublicationsJMIR Mental Health2368-79592025-01-0112e5694510.2196/56945Codeveloping an Online Resource for People Bereaved by Suicide: Mixed Methods User-Centered StudyEdouard Leaunehttps://orcid.org/0000-0003-0901-3038Kushtrim Bislimihttps://orcid.org/0009-0005-1422-8975Pauline Lau-Taïhttps://orcid.org/0009-0003-9678-585XHéloïse Rouzéhttps://orcid.org/0000-0002-3453-2721Benoit Chalanconhttps://orcid.org/0000-0002-9707-6049Laurène Lestiennehttps://orcid.org/0000-0002-8308-577XPierre Grandgenevrehttps://orcid.org/0009-0005-9587-2526Margot Morgièvehttps://orcid.org/0000-0002-1305-3860Nathalie Laplacehttps://orcid.org/0009-0004-1269-1168Guillaume Vaivahttps://orcid.org/0000-0003-2462-008XJulie Haesebaerthttps://orcid.org/0000-0001-9109-5604Emmanuel Poulethttps://orcid.org/0000-0001-5709-9038 BackgroundAlthough suicide bereavement is highly distressing and is associated with an increased risk of suicidal behaviors and mental and physical health impairments, those bereaved by suicide encounter difficulties accessing support. Digital resources offer new forms of support for bereaved people. However, digital resources dedicated to those bereaved by suicide are still limited. ObjectiveThis paper aimed to develop and implement an evidence-based, innovative, and adaptive online resource for people bereaved by suicide, based on their needs and expectations. MethodsWe performed a mixed methods, participatory, user-centered study seeking to build resources from the perspectives of people bereaved by suicide and professionals or volunteers working in the field of postvention. We used the Information System Research framework, which uses a three-stage research cycle, including (1) the relevance cycle, (2) the design cycle, and (3) the rigor cycle, and the Design Science Research framework. ResultsA total of 478 people participated in the study, including 451 people bereaved by suicide, 8 members of charities, and 19 mental health professionals working in the field of postvention. The development stage of the resource lasted 18 months, from October 2021 to March 2023. A total of 9 focus groups, 1 online survey, 30 usability tests, and 30 semistructured interviews were performed. A website for people bereaved by suicide named “espoir-suicide” was developed that includes (1) evidence-based information on suicide prevention and bereavement, (2) testimonies of people bereaved by suicide, (3) a delayed chat to ask questions on suicide and bereavement to a specialized team of mental health professionals, and (4) an interactive nationwide resource directory. The mean system usability score was 90.3 out of 100 for 30 participants, with 93% (n=28) of them having a rating above 80. Since the implementation of espoir-suicide in March 2023, a total of 19,400 connections have been recorded, 117 local resources have been registered nationwide, and 73 questions have been posted in the chat. ConclusionsThe use of a mixed methods, participatory, user-centered design allowed us to implement an evidence-based, innovative, and functional website for people bereaved by suicide that was highly relevant for fulfilling the needs and expectations of French people bereaved by suicide. International Registered Report Identifier (IRRID)RR2-10.3389/fpsyt.2021.770154https://mental.jmir.org/2025/1/e56945 |
| spellingShingle | Edouard Leaune Kushtrim Bislimi Pauline Lau-Taï Héloïse Rouzé Benoit Chalancon Laurène Lestienne Pierre Grandgenevre Margot Morgiève Nathalie Laplace Guillaume Vaiva Julie Haesebaert Emmanuel Poulet Codeveloping an Online Resource for People Bereaved by Suicide: Mixed Methods User-Centered Study JMIR Mental Health |
| title | Codeveloping an Online Resource for People Bereaved by Suicide: Mixed Methods User-Centered Study |
| title_full | Codeveloping an Online Resource for People Bereaved by Suicide: Mixed Methods User-Centered Study |
| title_fullStr | Codeveloping an Online Resource for People Bereaved by Suicide: Mixed Methods User-Centered Study |
| title_full_unstemmed | Codeveloping an Online Resource for People Bereaved by Suicide: Mixed Methods User-Centered Study |
| title_short | Codeveloping an Online Resource for People Bereaved by Suicide: Mixed Methods User-Centered Study |
| title_sort | codeveloping an online resource for people bereaved by suicide mixed methods user centered study |
| url | https://mental.jmir.org/2025/1/e56945 |
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