Return of individual research results: What do participants prefer and expect?

Return of individual research results: What do participants prefer and expect?

Newer data platforms offer increased opportunity to share multidimensional health data with research participants, but the preferences of participants for which data to receive and how is evolving. Our objective is to describe the preferences and expectations of participants for the return of indivi...

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Main Authors: Sabina Sayeed, Robert Califf, Robert Green, Celeste Wong, Kenneth Mahaffey, Sanjiv Sam Gambhir, Jessica Mega, Bray Patrick-Lake, Kaylyn Frazier, Michael Pignone, Adrian Hernandez, Svati H Shah, Alice C Fan, Sarah Krüg, Terry Shaack, Scarlet Shore, Susie Spielman, Julie Eckstrand, Charlene A Wong, Project Baseline Health Study Research Group
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2021-01-01
Series:PLoS ONE
Online Access:https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0254153&type=printable
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https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0254153&type=printable

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