Experience with a Self-Management Education Program for Adolescents with Type 1 Diabetes: A Qualitative Study

<b>Background/Objectives</b>: Adolescents with type 1 diabetes face complex challenges associated with the disease, underscoring the importance of developing self-management skills. This study examined participants’ perspectives on a type 1 diabetes self-management education program. <...

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Main Authors: Marília Costa Flora, Luísa Barros, Maria Isabel Dias da Costa Malheiro
Format: Article
Language:English
Published: MDPI AG 2025-01-01
Series:Nursing Reports
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Online Access:https://www.mdpi.com/2039-4403/15/1/22
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author Marília Costa Flora
Luísa Barros
Maria Isabel Dias da Costa Malheiro
author_facet Marília Costa Flora
Luísa Barros
Maria Isabel Dias da Costa Malheiro
author_sort Marília Costa Flora
collection DOAJ
description <b>Background/Objectives</b>: Adolescents with type 1 diabetes face complex challenges associated with the disease, underscoring the importance of developing self-management skills. This study examined participants’ perspectives on a type 1 diabetes self-management education program. <b>Methods</b>: Focus group interviews were conducted with 32 adolescents with type 1 diabetes who participated in the program and six expert patients. Both thematic analysis and content analysis were conducted using NVIVO software, version 1.6.1. <b>Results</b>: Two dimensions emerged: expert patient roles and program evaluation. Expert patient roles were viewed positively, with an emphasis on responsibility, sharing experiences, and being a role model. Program evaluation emphasized peer-to-peer sharing and educational sessions, with increased knowledge of the disease and management strategies. Expert patients also benefited from the program by developing a sense of responsibility, serving as role models for adolescents, and improving their disease self-management. <b>Conclusions</b>: The adolescents emphasized that the program was a learning tool and the expert patient’s view of their role emerges, highlighting modelling as a facilitator of learning and of the responsibility and commitment of the mentors. This study reinforces the benefits of peer-to-peer interaction in a camp setting, including rich experiences.
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spelling doaj-art-a599f8abc336462fb951b2ac4a10529e2025-01-24T13:44:30ZengMDPI AGNursing Reports2039-439X2039-44032025-01-011512210.3390/nursrep15010022Experience with a Self-Management Education Program for Adolescents with Type 1 Diabetes: A Qualitative StudyMarília Costa Flora0Luísa Barros1Maria Isabel Dias da Costa Malheiro2Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), University of Lisbon, Nursing School of Lisbon, 1600-190 Lisbon, PortugalFaculty of Psychology & Research Center for Psychological Science (CICPSI), Lisbon University, 1649-013 Lisbon, PortugalNursing Research, Innovation and Development Centre of Lisbon (CIDNUR), University of Lisbon, Nursing School of Lisbon, 1600-190 Lisbon, Portugal<b>Background/Objectives</b>: Adolescents with type 1 diabetes face complex challenges associated with the disease, underscoring the importance of developing self-management skills. This study examined participants’ perspectives on a type 1 diabetes self-management education program. <b>Methods</b>: Focus group interviews were conducted with 32 adolescents with type 1 diabetes who participated in the program and six expert patients. Both thematic analysis and content analysis were conducted using NVIVO software, version 1.6.1. <b>Results</b>: Two dimensions emerged: expert patient roles and program evaluation. Expert patient roles were viewed positively, with an emphasis on responsibility, sharing experiences, and being a role model. Program evaluation emphasized peer-to-peer sharing and educational sessions, with increased knowledge of the disease and management strategies. Expert patients also benefited from the program by developing a sense of responsibility, serving as role models for adolescents, and improving their disease self-management. <b>Conclusions</b>: The adolescents emphasized that the program was a learning tool and the expert patient’s view of their role emerges, highlighting modelling as a facilitator of learning and of the responsibility and commitment of the mentors. This study reinforces the benefits of peer-to-peer interaction in a camp setting, including rich experiences.https://www.mdpi.com/2039-4403/15/1/22adolescentdiabetes mellitustype 1focus groupsself-managementprogram evaluation
spellingShingle Marília Costa Flora
Luísa Barros
Maria Isabel Dias da Costa Malheiro
Experience with a Self-Management Education Program for Adolescents with Type 1 Diabetes: A Qualitative Study
Nursing Reports
adolescent
diabetes mellitus
type 1
focus groups
self-management
program evaluation
title Experience with a Self-Management Education Program for Adolescents with Type 1 Diabetes: A Qualitative Study
title_full Experience with a Self-Management Education Program for Adolescents with Type 1 Diabetes: A Qualitative Study
title_fullStr Experience with a Self-Management Education Program for Adolescents with Type 1 Diabetes: A Qualitative Study
title_full_unstemmed Experience with a Self-Management Education Program for Adolescents with Type 1 Diabetes: A Qualitative Study
title_short Experience with a Self-Management Education Program for Adolescents with Type 1 Diabetes: A Qualitative Study
title_sort experience with a self management education program for adolescents with type 1 diabetes a qualitative study
topic adolescent
diabetes mellitus
type 1
focus groups
self-management
program evaluation
url https://www.mdpi.com/2039-4403/15/1/22
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AT mariaisabeldiasdacostamalheiro experiencewithaselfmanagementeducationprogramforadolescentswithtype1diabetesaqualitativestudy