Description and toolkit for a research participant referral service
The success of clinical research studies depends on effective recruitment and retention of study participants, yet only a small fraction of patients engage in research studies, even in academic health systems. Increasing awareness of research opportunities and facilitating connections with clinical...
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| Format: | Article |
| Language: | English |
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Cambridge University Press
2025-01-01
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| Series: | Journal of Clinical and Translational Science |
| Subjects: | |
| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866125000330/type/journal_article |
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| author | Nicholas Eberlein Michael D. Musty Jamie Roberts Sierra Lindo W. Schuyler Jones Ranee Chatterjee |
| author_facet | Nicholas Eberlein Michael D. Musty Jamie Roberts Sierra Lindo W. Schuyler Jones Ranee Chatterjee |
| author_sort | Nicholas Eberlein |
| collection | DOAJ |
| description | The success of clinical research studies depends on effective recruitment and retention of study participants, yet only a small fraction of patients engage in research studies, even in academic health systems. Increasing awareness of research opportunities and facilitating connections with clinical research study teams would help to improve the success of research programs. In this Special Communications, we describe the creation and evolution of and tools used for the My Research Partners Concierge Service (MRPcs) of an academic health system. The MRPcs provides a centralized point of contact or hub for patients and community members, as well as clinical research organizations and academic partners, who have research-related questions or interests. The MRPcs helps to connect the users of the service with relevant research study teams, personnel, or resources to facilitate their engagement in a clinical research program. Our experience with the MRPcs informs our recommendation that peer institutions organize similar research service hubs for their clinical research programs to help increase awareness of and participation in clinical research by the public and to help increase the success of research programs at fulfilling their ultimate goal of improving the health of their population. |
| format | Article |
| id | doaj-art-a4844a6d50b747f6825a0c6720b442b3 |
| institution | DOAJ |
| issn | 2059-8661 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj-art-a4844a6d50b747f6825a0c6720b442b32025-08-20T02:52:31ZengCambridge University PressJournal of Clinical and Translational Science2059-86612025-01-01910.1017/cts.2025.33Description and toolkit for a research participant referral serviceNicholas Eberlein0Michael D. Musty1Jamie Roberts2Sierra Lindo3W. Schuyler Jones4Ranee Chatterjee5https://orcid.org/0000-0002-4294-8081Duke University Clinical and Translational Science Institute, Durham, NC, USA Duke Office of Clinical Research, Durham, NC, USADuke University Clinical and Translational Science Institute, Durham, NC, USA Duke Office of Clinical Research, Durham, NC, USADuke Cancer Institute, Durham, NC, USADuke University Clinical and Translational Science Institute, Durham, NC, USADuke University Clinical and Translational Science Institute, Durham, NC, USA Duke University, Department of Medicine, Durham, NC, USA Duke Clinical Research Institute, Durham, NC, USADuke University Clinical and Translational Science Institute, Durham, NC, USA Duke University, Department of Medicine, Durham, NC, USAThe success of clinical research studies depends on effective recruitment and retention of study participants, yet only a small fraction of patients engage in research studies, even in academic health systems. Increasing awareness of research opportunities and facilitating connections with clinical research study teams would help to improve the success of research programs. In this Special Communications, we describe the creation and evolution of and tools used for the My Research Partners Concierge Service (MRPcs) of an academic health system. The MRPcs provides a centralized point of contact or hub for patients and community members, as well as clinical research organizations and academic partners, who have research-related questions or interests. The MRPcs helps to connect the users of the service with relevant research study teams, personnel, or resources to facilitate their engagement in a clinical research program. Our experience with the MRPcs informs our recommendation that peer institutions organize similar research service hubs for their clinical research programs to help increase awareness of and participation in clinical research by the public and to help increase the success of research programs at fulfilling their ultimate goal of improving the health of their population.https://www.cambridge.org/core/product/identifier/S2059866125000330/type/journal_articleResearchparticipantengagementconciergenavigator |
| spellingShingle | Nicholas Eberlein Michael D. Musty Jamie Roberts Sierra Lindo W. Schuyler Jones Ranee Chatterjee Description and toolkit for a research participant referral service Journal of Clinical and Translational Science Research participant engagement concierge navigator |
| title | Description and toolkit for a research participant referral service |
| title_full | Description and toolkit for a research participant referral service |
| title_fullStr | Description and toolkit for a research participant referral service |
| title_full_unstemmed | Description and toolkit for a research participant referral service |
| title_short | Description and toolkit for a research participant referral service |
| title_sort | description and toolkit for a research participant referral service |
| topic | Research participant engagement concierge navigator |
| url | https://www.cambridge.org/core/product/identifier/S2059866125000330/type/journal_article |
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