National review of end-of-life care withdrawal guidelines for non-invasive advanced respiratory support using document analysis
Objectives This study aims to understand the breadth of practice around end-of-life withdrawal of non-invasive advanced respiratory support (encompassing both continuous positive airway pressure and non-invasive ventilation) by analysing NHS-published guidelines and guidance for clinicians. This stu...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2024-10-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/14/10/e089617.full |
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| author | David Wenzel Thomas Jeffery Christina Faull Rachel Davies Eleanor Wilson Jennifer Creese |
| author_facet | David Wenzel Thomas Jeffery Christina Faull Rachel Davies Eleanor Wilson Jennifer Creese |
| author_sort | David Wenzel |
| collection | DOAJ |
| description | Objectives This study aims to understand the breadth of practice around end-of-life withdrawal of non-invasive advanced respiratory support (encompassing both continuous positive airway pressure and non-invasive ventilation) by analysing NHS-published guidelines and guidance for clinicians. This study seeks validity in the guidelines through a confluence of findings and reassurance of practice despite having little to no high-quality research to inform the content of the guidelines. Ultimately, where discordance is found between guidelines, there will be a strong mandate for future research.Methods Guidelines were gathered through snowball sampling and analysed using document analysis techniques. Analysis was mixed in inductive and deductive and facilitated across several authors using framework analysis. 20 guidelines were analysed but saturation was found after 15. Further guidelines were analysed beyond saturation to provide reassurance of the endpoint of the study.Results There were common components to the guidelines presented as themes: legal and ethical frameworks, decision-making around withdrawal, the process of withdrawal, post-withdrawal care and when to contact palliative care. There were significant areas of confluence, where multiple guidelines were in agreement on best practice. However, there was significant discordance in some key areas including the use of post-withdrawal oxygen therapy and pressure weaning practice.Conclusion This study provides reassurance through a confluence of findings for the majority of withdrawal practices. However, key areas of discordance highlight an urgent need for further research to support clinicians, patients and their families during challenging clinical events. |
| format | Article |
| id | doaj-art-a42ff62d31a847e485fbf2a1a46cb2bc |
| institution | OA Journals |
| issn | 2044-6055 |
| language | English |
| publishDate | 2024-10-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-a42ff62d31a847e485fbf2a1a46cb2bc2025-08-20T02:12:46ZengBMJ Publishing GroupBMJ Open2044-60552024-10-01141010.1136/bmjopen-2024-089617National review of end-of-life care withdrawal guidelines for non-invasive advanced respiratory support using document analysisDavid Wenzel0Thomas Jeffery1Christina Faull2Rachel Davies3Eleanor Wilson4Jennifer Creese5Population Health Sciences, University of Leicester, Leicester, UK1 Centre for the Studies of Asphyxia and Resuscitation, Neonatal Research Unit, Royal Alexandra Hospital, Edmonton, Alberta, CanadaLOROS, Leicester, UKUK Palliative Care Reseach Collaborative, Bristol, UKSchool of Health Sciences, University of Nottingham, Nottingham, UKPopulation Health Sciences, University of Leicester, Leicester, UKObjectives This study aims to understand the breadth of practice around end-of-life withdrawal of non-invasive advanced respiratory support (encompassing both continuous positive airway pressure and non-invasive ventilation) by analysing NHS-published guidelines and guidance for clinicians. This study seeks validity in the guidelines through a confluence of findings and reassurance of practice despite having little to no high-quality research to inform the content of the guidelines. Ultimately, where discordance is found between guidelines, there will be a strong mandate for future research.Methods Guidelines were gathered through snowball sampling and analysed using document analysis techniques. Analysis was mixed in inductive and deductive and facilitated across several authors using framework analysis. 20 guidelines were analysed but saturation was found after 15. Further guidelines were analysed beyond saturation to provide reassurance of the endpoint of the study.Results There were common components to the guidelines presented as themes: legal and ethical frameworks, decision-making around withdrawal, the process of withdrawal, post-withdrawal care and when to contact palliative care. There were significant areas of confluence, where multiple guidelines were in agreement on best practice. However, there was significant discordance in some key areas including the use of post-withdrawal oxygen therapy and pressure weaning practice.Conclusion This study provides reassurance through a confluence of findings for the majority of withdrawal practices. However, key areas of discordance highlight an urgent need for further research to support clinicians, patients and their families during challenging clinical events.https://bmjopen.bmj.com/content/14/10/e089617.full |
| spellingShingle | David Wenzel Thomas Jeffery Christina Faull Rachel Davies Eleanor Wilson Jennifer Creese National review of end-of-life care withdrawal guidelines for non-invasive advanced respiratory support using document analysis BMJ Open |
| title | National review of end-of-life care withdrawal guidelines for non-invasive advanced respiratory support using document analysis |
| title_full | National review of end-of-life care withdrawal guidelines for non-invasive advanced respiratory support using document analysis |
| title_fullStr | National review of end-of-life care withdrawal guidelines for non-invasive advanced respiratory support using document analysis |
| title_full_unstemmed | National review of end-of-life care withdrawal guidelines for non-invasive advanced respiratory support using document analysis |
| title_short | National review of end-of-life care withdrawal guidelines for non-invasive advanced respiratory support using document analysis |
| title_sort | national review of end of life care withdrawal guidelines for non invasive advanced respiratory support using document analysis |
| url | https://bmjopen.bmj.com/content/14/10/e089617.full |
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