Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir
With over three decades of nursing experience, Simon reflects on his experience as a research nurse at the Oxford Haemophilia and Thrombosis Centre at a time of huge change for haemophilia care and treatment. He recalls the impact of conversations with people with haemophilia about gene therapy, how...
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| Format: | Article |
| Language: | English |
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Sciendo
2024-05-01
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| Series: | The Journal of Haemophilia Practice |
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| Online Access: | https://doi.org/10.2478/jhp-2024-0012 |
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| author | Fletcher Simon |
| author_facet | Fletcher Simon |
| author_sort | Fletcher Simon |
| collection | DOAJ |
| description | With over three decades of nursing experience, Simon reflects on his experience as a research nurse at the Oxford Haemophilia and Thrombosis Centre at a time of huge change for haemophilia care and treatment. He recalls the impact of conversations with people with haemophilia about gene therapy, how these challenged his assumptions about living with haemophilia, and how this prompted him to pursue a PhD. Highlighting the importance of listening to individual patient stories, Simon discusses how qualitative research contributes to a deeper understanding of what it is to live with a bleeding disorder. He considers the role of nurses in research and the importance of collaboration between research and clinical nursing teams as new treatments for haemophilia and other bleeding disorders emerge. |
| format | Article |
| id | doaj-art-a01b5a84a6614a33a4e03cc19a9c39b5 |
| institution | Kabale University |
| issn | 2055-3390 |
| language | English |
| publishDate | 2024-05-01 |
| publisher | Sciendo |
| record_format | Article |
| series | The Journal of Haemophilia Practice |
| spelling | doaj-art-a01b5a84a6614a33a4e03cc19a9c39b52025-02-02T15:48:30ZengSciendoThe Journal of Haemophilia Practice2055-33902024-05-01111788110.2478/jhp-2024-0012Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choirFletcher Simon0SIMON FLETCHER is Principal Researcher at Haemnet and was a clinical research nurse at the Oxford Haemophilia and Thrombosis Centre, Oxford University Hospitals NHS Foundation Trust. He is undertaking a PhD exploring the impact and lived experience of gene therapy for haemophilia, Oxford, EnglandWith over three decades of nursing experience, Simon reflects on his experience as a research nurse at the Oxford Haemophilia and Thrombosis Centre at a time of huge change for haemophilia care and treatment. He recalls the impact of conversations with people with haemophilia about gene therapy, how these challenged his assumptions about living with haemophilia, and how this prompted him to pursue a PhD. Highlighting the importance of listening to individual patient stories, Simon discusses how qualitative research contributes to a deeper understanding of what it is to live with a bleeding disorder. He considers the role of nurses in research and the importance of collaboration between research and clinical nursing teams as new treatments for haemophilia and other bleeding disorders emerge.https://doi.org/10.2478/jhp-2024-0012haemophiliagene therapynursesprofessional practicequalitative research |
| spellingShingle | Fletcher Simon Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir The Journal of Haemophilia Practice haemophilia gene therapy nurses professional practice qualitative research |
| title | Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir |
| title_full | Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir |
| title_fullStr | Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir |
| title_full_unstemmed | Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir |
| title_short | Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir |
| title_sort | living caring learning the power of qualitative research in bleeding disorders care one voice from soloist to choir |
| topic | haemophilia gene therapy nurses professional practice qualitative research |
| url | https://doi.org/10.2478/jhp-2024-0012 |
| work_keys_str_mv | AT fletchersimon livingcaringlearningthepowerofqualitativeresearchinbleedingdisorderscareonevoicefromsoloisttochoir |