Data, dialogue, and design: patient and public involvement and engagement for natural language processing with real-world cancer data

Data, dialogue, and design: patient and public involvement and engagement for natural language processing with real-world cancer data

IntroductionThis study describes the process and outcomes of a Patient and Public Involvement and Engagement (PPIE) event designed to incorporate patient perspectives into the application of Natural Language Processing (NLP) for analyzing unstructured free-text cancer medical notes. The analysis of...

Full description

Saved in:

Bibliographic Details
Main Authors:	Wuraola Oyewusi, Eliana M. Vasquez Osorio, Goran Nenadic, Issy MacGregor, Gareth Price
Format:	Article
Language:	English
Published:	Frontiers Media S.A. 2025-05-01
Series:	Frontiers in Digital Health
Subjects:	patient and public involvement and engagement PPIE natural language processing NLP real world data RWD
Online Access:	https://www.frontiersin.org/articles/10.3389/fdgth.2025.1560757/full
Tags:	Add Tag No Tags, Be the first to tag this record!

Similar Items

Implementation of patient and public involvement and engagement (PPIE) for the therapies for long COVID in non-hospitalised individuals (TLC) project
by: Olalekan Lee Aiyegbusi, et al.
Published: (2024-11-01)

Involving People With Lived Experience in Electronic Health Record Database Studies Reflections and Learning From the CHOOSE Study
by: Emma Cockcroft, et al.
Published: (2024-12-01)

Coproduction of a resource sharing public views of health inequalities: An example of inclusive public and patient involvement and engagement
by: Charlotte Parbery‐Clark, et al.
Published: (2024-02-01)

Strategies for involving patients and the public in scaling initiatives in health and social services: A scoping review
by: Roberta deCarvalho Corôa, et al.
Published: (2024-06-01)

Patient and public involvement and engagement with underserved communities in dementia research: Reporting on a partnership to co‐design a website for postdiagnostic dementia support
by: Claudio Di Lorito, et al.
Published: (2024-02-01)

Measuring impacts of patient and public involvement and engagement (PPIE): a narrative review synthesis of review evidence
by: William Lammons, et al.
Published: (2025-07-01)

Creating the conditions for meaningful and effective PPIE in community-based public health research: learning from a UK-wide lived experience panel
by: Mohasin Ahmed, et al.
Published: (2025-07-01)

Improving transparency in data access processes: Developing best practice standards and promoting system-wide change through a competitive funding call
by: Yemi Macaulay, et al.
Published: (2025-07-01)

Carbapenemase-producing Enterobactericeae screening: Focused patient insights
by: Saba Farrukh, et al.
Published: (2025-04-01)

Recommendations for developing drug use definitions with an emphasis on real-world data sources
by: A. S. Motrinchuk, et al.
Published: (2024-09-01)

NICE guidance to working with real-world data
by: A. Sh. Motrinchuk, et al.
Published: (2023-01-01)

Quality assessment of real-world data
by: V. G. Borovskaya, et al.
Published: (2023-01-01)

Evaluation of the potential economic effects in the increased vaccination against meningococcal infection based on real epidemiological data
by: S. V. Svetlichnaya, et al.
Published: (2023-08-01)

Customer engagement and loyalty: the moderating role of involvement
by: Jesica Yanet Perez Benegas, et al.
Published: (2025-06-01)

The influence of economic impact, cultural engagement, and community involvement on tourism sustainability: the role of tourist perception and environmental awareness
by: Rumpapak Luekveerawattana, et al.
Published: (2025-12-01)

Evaluation of the economic efficacy of vaccination against pertussis based on real-world data
by: S. V. Svetlichnaya, et al.
Published: (2023-03-01)

A systematic review of theories, models and frameworks used for youth engagement in health research
by: Sherald Sanchez, et al.
Published: (2024-02-01)

Building Engagement‐Capable Environments for Health System Transformation: Development and Early Implementation of a Capability Framework for Patient, Family and Caregiver Engagement in Ontario Health Teams
by: Julia Abelson, et al.
Published: (2024-12-01)

Amplifying the voices of Black racial minorities in mental health research through public involvement and engagement: The importance of advisory roles
by: Juliana Onwumere, et al.
Published: (2024-02-01)

Parental/grandparental education involvement and adolescents’ learning engagement: a moderated mediation model
by: Xiaoqing Xiang, et al.
Published: (2025-08-01)

Perceived Impact of Healthcare Relationships and Interactions on Parental Experiences of Prenatal Diagnosis and Termination of Pregnancy for Foetal Anomaly on the Island of Ireland
by: Suzanne Heaney, et al.
Published: (2024-10-01)

The Use of Arts‐Based Methods to Enhance Patient Engagement in Health Research
by: Emily K. Phillips, et al.
Published: (2024-12-01)

Registers as the basis for data collection and evidence building
by: A. V. Ivanov
Published: (2021-08-01)

Perampanel in adjunctive therapy of patients with brain tumor-related epilepsy: real-world data
by: G. G. Samsonova, et al.
Published: (2023-01-01)

The use of patient and public involvement and engagement in the design and conduct of implementation research: a scoping review
by: Amy Mathieson, et al.
Published: (2025-04-01)

Review of data sources used in real-world traumatology and orthopedic
by: I. U. Zolotukhina, et al.
Published: (2023-12-01)

Youth Involvement in Pornography and Academic Engagement in Selected Secondary Schools in Kabale Municipality.
by: Kanyesigye, Bens Rogers
Published: (2024)

Youth Involvement in Pornography and Academic Engagement in Selected Secondary Schools in Kabale Municipality.
by: Kanyesigye, Bens Rogers
Published: (2024)

Analyzing FDA's approaches to using electronic health record and medical claims data to support regulatory decision making
by: Ksenia S. Radaeva, et al.
Published: (2023-10-01)

RETRACTED: ESMO Guidance for reporting oncology real-world evidence (GROW)
by: A. Sh. Motrinchuk, et al.
Published: (2024-04-01)

Distinguishing participants, patients and the public: implications of different institutional settings on engagement approaches
by: Anne L. Buffardi, et al.
Published: (2025-07-01)

The Mediating Role of Customer Engagement on Brand Involvement and Emotional Brand Attachment
by: Shehla Qaiser, et al.
Published: (2021-05-01)

Students as Community-Engaged Researchers in Responding to Crises: Insights From the Embedded Thesis Model
by: Shasta Grant, et al.
Published: (2025-04-01)

Combining real-world data with randomized controlled trials results in better information oncology decision making
by: T. A. Usmanova, et al.
Published: (2022-08-01)

Parental involvement and school engagement reduce adolescent aggressive behaviors: a three wave cross-lagged model
by: Zhen Wang, et al.
Published: (2025-05-01)

An umbrella review of reviews on challenges to meaningful adolescent involvement in health research
by: Azza Warraitch, et al.
Published: (2024-02-01)

The Effect of Three Types of Task Engagement Activities on Incidental Acquisition of Second Language Vocabulary
by: Davoud Amini
Published: (2015-03-01)

Co‐Authoring and Reporting on Lived Experience Engagement in Mental Health and/or Substance Research: A Qualitative Study and Guidance Document
by: Natasha Y. Sheikhan, et al.
Published: (2025-04-01)

ICH Reflection paper on proposed international harmonization of real-world evidence terminology and convergence of general principles regarding planning and reporting of studies using real-world data, with a focus on effectiveness of drugs
by: K. S. Radaeva, et al.
Published: (2023-10-01)

Overcoming barriers to implementation of patient engagement in clinical trials: feasibility testing of an embedded study
by: Geneviève Castonguay, et al.
Published: (2025-02-01)