‘I really feel like I am ageing early’: an interpretative phenomenological analysis of the lived experience of young adults with life-limiting conditions (YALLC)
Objectives This study aims to explore the lived experience of young adults with life-limiting conditions (YALLC) and how they perceive and navigate adulthood, to identify challenges and opportunities for improved care and support.Methods A qualitative study using interpretative phenomenological anal...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2024-04-01
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| Series: | BMJ Public Health |
| Online Access: | https://bmjpublichealth.bmj.com/content/2/1/e000343.full |
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| author | Poh Heng Chong Xiangyi Chen Zhi Zheng Yeo Celene Ting Ya Nee Poh Qishun Raymond Ang |
| author_facet | Poh Heng Chong Xiangyi Chen Zhi Zheng Yeo Celene Ting Ya Nee Poh Qishun Raymond Ang |
| author_sort | Poh Heng Chong |
| collection | DOAJ |
| description | Objectives This study aims to explore the lived experience of young adults with life-limiting conditions (YALLC) and how they perceive and navigate adulthood, to identify challenges and opportunities for improved care and support.Methods A qualitative study using interpretative phenomenological analysis to understand how young adults who survived childhood serious illness make sense of current circumstances. Seven YALLC with different diagnoses ranging from 19 to 39 years were recruited through purposive sampling in a specialist paediatric palliative care service/adult hospice. In-depth, semistructured interviews were conducted, and verbatim transcripts analysed iteratively.Results Four major themes emerged: (1) living with limitations and in limbo—compressed timelines and confusion, triggered by dissonance between age-expected versus developmentally appropriate aspirations and goals; (2) experiencing identity crises, confronting existential concerns and chasing the elusive goal of enduring connection—struggle between public versus self-identities, including issues around self-worth and purpose; (3) striving for autonomy while tolerating interdependence/codependence—tensions arising from their desire for independence against the need to rely on others and (4) accepting and appreciating LLC as integral to one’s existence—demonstrating adaptability, creativity and resilience. Themes highlight a complex interplay of push-pull factors encountered by YALLC at multiple levels as they strive for a normative or negotiated life course.Conclusion YALLC face an intricate web of physical, psychoemotional, social and financial challenges compounded by underlying, persistent or progressive illnesses. Contextual understanding and identified gaps from this study will guide affirmative strategies to improve quality of life among a growing cohort. |
| format | Article |
| id | doaj-art-98f465b354f7411cb54fca58be48dc0c |
| institution | Kabale University |
| issn | 2753-4294 |
| language | English |
| publishDate | 2024-04-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Public Health |
| spelling | doaj-art-98f465b354f7411cb54fca58be48dc0c2025-01-28T23:50:08ZengBMJ Publishing GroupBMJ Public Health2753-42942024-04-012110.1136/bmjph-2023-000343‘I really feel like I am ageing early’: an interpretative phenomenological analysis of the lived experience of young adults with life-limiting conditions (YALLC)Poh Heng Chong0Xiangyi Chen1Zhi Zheng Yeo2Celene Ting3Ya Nee Poh4Qishun Raymond Ang5HCA Hospice, SingaporeHCA Hospice, SingaporeHCA Hospice, SingaporeHCA Hospice, SingaporeHCA Hospice, SingaporeHCA Hospice, SingaporeObjectives This study aims to explore the lived experience of young adults with life-limiting conditions (YALLC) and how they perceive and navigate adulthood, to identify challenges and opportunities for improved care and support.Methods A qualitative study using interpretative phenomenological analysis to understand how young adults who survived childhood serious illness make sense of current circumstances. Seven YALLC with different diagnoses ranging from 19 to 39 years were recruited through purposive sampling in a specialist paediatric palliative care service/adult hospice. In-depth, semistructured interviews were conducted, and verbatim transcripts analysed iteratively.Results Four major themes emerged: (1) living with limitations and in limbo—compressed timelines and confusion, triggered by dissonance between age-expected versus developmentally appropriate aspirations and goals; (2) experiencing identity crises, confronting existential concerns and chasing the elusive goal of enduring connection—struggle between public versus self-identities, including issues around self-worth and purpose; (3) striving for autonomy while tolerating interdependence/codependence—tensions arising from their desire for independence against the need to rely on others and (4) accepting and appreciating LLC as integral to one’s existence—demonstrating adaptability, creativity and resilience. Themes highlight a complex interplay of push-pull factors encountered by YALLC at multiple levels as they strive for a normative or negotiated life course.Conclusion YALLC face an intricate web of physical, psychoemotional, social and financial challenges compounded by underlying, persistent or progressive illnesses. Contextual understanding and identified gaps from this study will guide affirmative strategies to improve quality of life among a growing cohort.https://bmjpublichealth.bmj.com/content/2/1/e000343.full |
| spellingShingle | Poh Heng Chong Xiangyi Chen Zhi Zheng Yeo Celene Ting Ya Nee Poh Qishun Raymond Ang ‘I really feel like I am ageing early’: an interpretative phenomenological analysis of the lived experience of young adults with life-limiting conditions (YALLC) BMJ Public Health |
| title | ‘I really feel like I am ageing early’: an interpretative phenomenological analysis of the lived experience of young adults with life-limiting conditions (YALLC) |
| title_full | ‘I really feel like I am ageing early’: an interpretative phenomenological analysis of the lived experience of young adults with life-limiting conditions (YALLC) |
| title_fullStr | ‘I really feel like I am ageing early’: an interpretative phenomenological analysis of the lived experience of young adults with life-limiting conditions (YALLC) |
| title_full_unstemmed | ‘I really feel like I am ageing early’: an interpretative phenomenological analysis of the lived experience of young adults with life-limiting conditions (YALLC) |
| title_short | ‘I really feel like I am ageing early’: an interpretative phenomenological analysis of the lived experience of young adults with life-limiting conditions (YALLC) |
| title_sort | i really feel like i am ageing early an interpretative phenomenological analysis of the lived experience of young adults with life limiting conditions yallc |
| url | https://bmjpublichealth.bmj.com/content/2/1/e000343.full |
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