Understanding Types of Stigma Experienced in Black Women Living With HIV in Baltimore, Maryland: A Mixed Methods Study

ABSTRACT Aim To understand how Black or African American women living with HIV (WLH) experience different types of stigma in their daily lives. Design Secondary analysis of quantitative and qualitative data from a recent clinical trial in Baltimore, Maryland. Methods Quantitative data were collected...

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Main Authors: Tanya Mikhael, Kyra Jennifer Waligora Mendez, Chun‐An Sun, Joy Chepkorir, Hae‐Ra Han
Format: Article
Language:English
Published: Wiley 2025-01-01
Series:Nursing Open
Subjects:
Online Access:https://doi.org/10.1002/nop2.70142
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author Tanya Mikhael
Kyra Jennifer Waligora Mendez
Chun‐An Sun
Joy Chepkorir
Hae‐Ra Han
author_facet Tanya Mikhael
Kyra Jennifer Waligora Mendez
Chun‐An Sun
Joy Chepkorir
Hae‐Ra Han
author_sort Tanya Mikhael
collection DOAJ
description ABSTRACT Aim To understand how Black or African American women living with HIV (WLH) experience different types of stigma in their daily lives. Design Secondary analysis of quantitative and qualitative data from a recent clinical trial in Baltimore, Maryland. Methods Quantitative data were collected in the baseline survey, and qualitative data were gathered during 6‐month follow‐up focus group and individual interviews. First, we conducted an exploratory factor analysis with principal axis factoring to identify the underlying factor structure of the HIV Stigma Scale. Next, we analysed the interviews with thematic analysis to understand women's experience with different stigma types. Results Exploratory factor analysis revealed the HIV Stigma Scale was a one‐factor scale that measured internalised stigma. However, qualitative interviews revealed that four different types of stigma were present in the everyday lives of WLH. These included the following: vicarious, enacted, internalised and perceived stigma. A current HIV stigma scale may not fully capture the stigma experiences salient to Black WLH. There is a need for internally valid quantitative measures that can adequately capture HIV stigma as experienced by Black WLH. Patient or Public Contribution Black WLH agreed to participate in the study, completed the HIV stigma scale and shared their experiences with us.
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spelling doaj-art-96e55a2a71474e6ea38c32c14be8df112025-01-30T16:40:37ZengWileyNursing Open2054-10582025-01-01121n/an/a10.1002/nop2.70142Understanding Types of Stigma Experienced in Black Women Living With HIV in Baltimore, Maryland: A Mixed Methods StudyTanya Mikhael0Kyra Jennifer Waligora Mendez1Chun‐An Sun2Joy Chepkorir3Hae‐Ra Han4Johns Hopkins University School of Nursing Baltimore Maryland USAJohns Hopkins University School of Nursing Baltimore Maryland USAJohns Hopkins University School of Nursing Baltimore Maryland USAJohns Hopkins University School of Nursing Baltimore Maryland USAJohns Hopkins University School of Nursing Baltimore Maryland USAABSTRACT Aim To understand how Black or African American women living with HIV (WLH) experience different types of stigma in their daily lives. Design Secondary analysis of quantitative and qualitative data from a recent clinical trial in Baltimore, Maryland. Methods Quantitative data were collected in the baseline survey, and qualitative data were gathered during 6‐month follow‐up focus group and individual interviews. First, we conducted an exploratory factor analysis with principal axis factoring to identify the underlying factor structure of the HIV Stigma Scale. Next, we analysed the interviews with thematic analysis to understand women's experience with different stigma types. Results Exploratory factor analysis revealed the HIV Stigma Scale was a one‐factor scale that measured internalised stigma. However, qualitative interviews revealed that four different types of stigma were present in the everyday lives of WLH. These included the following: vicarious, enacted, internalised and perceived stigma. A current HIV stigma scale may not fully capture the stigma experiences salient to Black WLH. There is a need for internally valid quantitative measures that can adequately capture HIV stigma as experienced by Black WLH. Patient or Public Contribution Black WLH agreed to participate in the study, completed the HIV stigma scale and shared their experiences with us.https://doi.org/10.1002/nop2.70142blackHIVmixed methodsmixed methodsstigmawomen
spellingShingle Tanya Mikhael
Kyra Jennifer Waligora Mendez
Chun‐An Sun
Joy Chepkorir
Hae‐Ra Han
Understanding Types of Stigma Experienced in Black Women Living With HIV in Baltimore, Maryland: A Mixed Methods Study
Nursing Open
black
HIV
mixed methods
mixed methods
stigma
women
title Understanding Types of Stigma Experienced in Black Women Living With HIV in Baltimore, Maryland: A Mixed Methods Study
title_full Understanding Types of Stigma Experienced in Black Women Living With HIV in Baltimore, Maryland: A Mixed Methods Study
title_fullStr Understanding Types of Stigma Experienced in Black Women Living With HIV in Baltimore, Maryland: A Mixed Methods Study
title_full_unstemmed Understanding Types of Stigma Experienced in Black Women Living With HIV in Baltimore, Maryland: A Mixed Methods Study
title_short Understanding Types of Stigma Experienced in Black Women Living With HIV in Baltimore, Maryland: A Mixed Methods Study
title_sort understanding types of stigma experienced in black women living with hiv in baltimore maryland a mixed methods study
topic black
HIV
mixed methods
mixed methods
stigma
women
url https://doi.org/10.1002/nop2.70142
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