The Research Agenda for Perinatal Innovation and Digital Health Project: Human-Centered Approach to Multipartner Research Agenda Codevelopment
BackgroundDigital health innovations provide an opportunity to improve access to care, information, and quality of care during the perinatal period, a critical period of health for mothers and infants. However, research to develop perinatal digital health solutions needs to b...
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| Format: | Article |
| Language: | English |
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JMIR Publications
2025-01-01
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| Series: | JMIR Human Factors |
| Online Access: | https://humanfactors.jmir.org/2025/1/e60825 |
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| author | Haneen Amhaz Sally Xuanping Chen Amanee Elchehimi Kylin Jialin Han Jade Morales Gil Lu Yao Marianne Vidler Kathryn Berry-Einarson Kathryn Dewar May Tuason Nicole Prestley Quynh Doan Tibor van Rooij Tina Costa Gina Ogilvie Beth A Payne |
| author_facet | Haneen Amhaz Sally Xuanping Chen Amanee Elchehimi Kylin Jialin Han Jade Morales Gil Lu Yao Marianne Vidler Kathryn Berry-Einarson Kathryn Dewar May Tuason Nicole Prestley Quynh Doan Tibor van Rooij Tina Costa Gina Ogilvie Beth A Payne |
| author_sort | Haneen Amhaz |
| collection | DOAJ |
| description |
BackgroundDigital health innovations provide an opportunity to improve access to care, information, and quality of care during the perinatal period, a critical period of health for mothers and infants. However, research to develop perinatal digital health solutions needs to be informed by actual patient and health system needs in order to optimize implementation, adoption, and sustainability.
ObjectiveOur aim was to co-design a research agenda with defined research priorities that reflected health system realities and patient needs.
MethodsCo-design of the research agenda involved a series of activities: (1) review of the provincial Digital Health Strategy and Maternity Services Strategy to identify relevant health system priorities, (2) anonymous survey targeting perinatal care providers to ascertain their current use and perceived need for digital tools, (3) engagement meetings using human-centered design methods with multilingual patients who are currently or recently pregnant to understand their health experiences and needs, and (4) a workshop that brought together patients and other project partners to prioritize identified challenges and opportunities for perinatal digital health in a set of research questions. These questions were grouped into themes using a deductive analysis approach starting with current BC Digital Health Strategy guiding principles.
ResultsBetween September 15, 2022, and August 31, 2023, we engaged with more than 150 perinatal health care providers, researchers, and health system stakeholders and a patient advisory group of women who were recently pregnant to understand the perceived needs and priorities for digital innovation in perinatal care in British Columbia, Canada. As a combined group, partners were able to define 12 priority research questions in 3 themes. The themes prioritized are digital innovation for (1) patient autonomy and support, (2) standardized educational resources for patients and providers, and (3) improved access to health information.
ConclusionsOur research agenda highlights the needs for perinatal digital health research to support improvements in the quality of care in British Columbia. By using a human-centered design approach, we were able to co-design research priorities that are meaningful to patients and health system stakeholders. The identified priority research questions are merely a stepping stone in the research process and now need to be actioned by research teams and health systems partners. |
| format | Article |
| id | doaj-art-90b592e13aca4525941cd0e13122d4f1 |
| institution | Kabale University |
| issn | 2292-9495 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | JMIR Human Factors |
| spelling | doaj-art-90b592e13aca4525941cd0e13122d4f12025-01-30T18:00:33ZengJMIR PublicationsJMIR Human Factors2292-94952025-01-0112e6082510.2196/60825The Research Agenda for Perinatal Innovation and Digital Health Project: Human-Centered Approach to Multipartner Research Agenda CodevelopmentHaneen Amhazhttps://orcid.org/0009-0000-6490-1033Sally Xuanping Chenhttps://orcid.org/0009-0003-3696-4805Amanee Elchehimihttps://orcid.org/0009-0006-5908-6293Kylin Jialin Hanhttps://orcid.org/0009-0008-8244-8752Jade Morales Gilhttps://orcid.org/0009-0005-7232-6231Lu Yaohttps://orcid.org/0009-0003-1043-6844Marianne Vidlerhttps://orcid.org/0000-0002-7633-8812Kathryn Berry-Einarsonhttps://orcid.org/0009-0000-5953-7986Kathryn Dewarhttps://orcid.org/0009-0005-7209-1217May Tuasonhttps://orcid.org/0009-0005-7576-849XNicole Prestleyhttps://orcid.org/0000-0002-1981-3605Quynh Doanhttps://orcid.org/0000-0002-8435-7837Tibor van Rooijhttps://orcid.org/0000-0003-0451-4159Tina Costahttps://orcid.org/0009-0004-7884-3486Gina Ogilviehttps://orcid.org/0000-0001-5783-4493Beth A Paynehttps://orcid.org/0000-0001-6150-8703 BackgroundDigital health innovations provide an opportunity to improve access to care, information, and quality of care during the perinatal period, a critical period of health for mothers and infants. However, research to develop perinatal digital health solutions needs to be informed by actual patient and health system needs in order to optimize implementation, adoption, and sustainability. ObjectiveOur aim was to co-design a research agenda with defined research priorities that reflected health system realities and patient needs. MethodsCo-design of the research agenda involved a series of activities: (1) review of the provincial Digital Health Strategy and Maternity Services Strategy to identify relevant health system priorities, (2) anonymous survey targeting perinatal care providers to ascertain their current use and perceived need for digital tools, (3) engagement meetings using human-centered design methods with multilingual patients who are currently or recently pregnant to understand their health experiences and needs, and (4) a workshop that brought together patients and other project partners to prioritize identified challenges and opportunities for perinatal digital health in a set of research questions. These questions were grouped into themes using a deductive analysis approach starting with current BC Digital Health Strategy guiding principles. ResultsBetween September 15, 2022, and August 31, 2023, we engaged with more than 150 perinatal health care providers, researchers, and health system stakeholders and a patient advisory group of women who were recently pregnant to understand the perceived needs and priorities for digital innovation in perinatal care in British Columbia, Canada. As a combined group, partners were able to define 12 priority research questions in 3 themes. The themes prioritized are digital innovation for (1) patient autonomy and support, (2) standardized educational resources for patients and providers, and (3) improved access to health information. ConclusionsOur research agenda highlights the needs for perinatal digital health research to support improvements in the quality of care in British Columbia. By using a human-centered design approach, we were able to co-design research priorities that are meaningful to patients and health system stakeholders. The identified priority research questions are merely a stepping stone in the research process and now need to be actioned by research teams and health systems partners.https://humanfactors.jmir.org/2025/1/e60825 |
| spellingShingle | Haneen Amhaz Sally Xuanping Chen Amanee Elchehimi Kylin Jialin Han Jade Morales Gil Lu Yao Marianne Vidler Kathryn Berry-Einarson Kathryn Dewar May Tuason Nicole Prestley Quynh Doan Tibor van Rooij Tina Costa Gina Ogilvie Beth A Payne The Research Agenda for Perinatal Innovation and Digital Health Project: Human-Centered Approach to Multipartner Research Agenda Codevelopment JMIR Human Factors |
| title | The Research Agenda for Perinatal Innovation and Digital Health Project: Human-Centered Approach to Multipartner Research Agenda Codevelopment |
| title_full | The Research Agenda for Perinatal Innovation and Digital Health Project: Human-Centered Approach to Multipartner Research Agenda Codevelopment |
| title_fullStr | The Research Agenda for Perinatal Innovation and Digital Health Project: Human-Centered Approach to Multipartner Research Agenda Codevelopment |
| title_full_unstemmed | The Research Agenda for Perinatal Innovation and Digital Health Project: Human-Centered Approach to Multipartner Research Agenda Codevelopment |
| title_short | The Research Agenda for Perinatal Innovation and Digital Health Project: Human-Centered Approach to Multipartner Research Agenda Codevelopment |
| title_sort | research agenda for perinatal innovation and digital health project human centered approach to multipartner research agenda codevelopment |
| url | https://humanfactors.jmir.org/2025/1/e60825 |
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