Health State Utility Values in Children and Adolescents with Disabilities: A Systematic Review
Objectives: To (1) provide a comprehensive summary of the methods used to obtain health state utility values (HSUVs) from children and adolescents with disabilities (CAD), (2) describe the administration and psychometric properties of these methods in children and adolescents with disabilities, and...
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Elsevier
2025-03-01
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| Series: | Journal of Pediatrics: Clinical Practice |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2950541025000018 |
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| author | Lucy Kanya, PhD Nana Anokye, PhD Ahmad Hecham Alani, PharmD Nandini Jayakumar, MSc Jennifer M. Ryan, PhD |
| author_facet | Lucy Kanya, PhD Nana Anokye, PhD Ahmad Hecham Alani, PharmD Nandini Jayakumar, MSc Jennifer M. Ryan, PhD |
| author_sort | Lucy Kanya, PhD |
| collection | DOAJ |
| description | Objectives: To (1) provide a comprehensive summary of the methods used to obtain health state utility values (HSUVs) from children and adolescents with disabilities (CAD), (2) describe the administration and psychometric properties of these methods in children and adolescents with disabilities, and (3) report summary statistics for HSUVs obtained from each method. Study design: English-language studies from MEDLINE (via PubMed), PsychInfo, Scopus, CINAHL Plus, EconLit, and Embase were searched from inception to November 2024. Two reviewers independently screened titles, abstracts, and full texts. Studies were included if they used direct or indirect methods to measure HSUVs, reported utilities and/or psychometric properties of these measures, and involved CAD aged 0-19 years. Two reviewers independently extracted study details including sample descriptors, instruments used, and summary statistics. Studies quality was assessed using a novel tool derived from 3 validated checklists. Results: Of the 3541 screened articles, 31 met inclusion criteria. Only 2 studies used direct methods, such as time trade-off, visual analog scale, and standard gamble, whereas 29 employed generic measures (eg, EuroQol 5 Dimensions, Health Utilities Index 3) with diverse preference elicitation methods. Excessive dependence on proxy respondents was noted, and psychometric properties of generic measures were mixed. Conclusions: Inconsistent HSUVs reporting and limited data availability are common. Reported HSUV summary statistics may be inaccurate if methodologies are unsuitable for the population. This review emphasizes the need for validated instruments to assess HSUVs in CAD. |
| format | Article |
| id | doaj-art-8a6f4bbe7c03472d99f5dbe51d08338e |
| institution | Kabale University |
| issn | 2950-5410 |
| language | English |
| publishDate | 2025-03-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Journal of Pediatrics: Clinical Practice |
| spelling | doaj-art-8a6f4bbe7c03472d99f5dbe51d08338e2025-02-06T05:13:11ZengElsevierJournal of Pediatrics: Clinical Practice2950-54102025-03-0115200139Health State Utility Values in Children and Adolescents with Disabilities: A Systematic ReviewLucy Kanya, PhD0Nana Anokye, PhD1Ahmad Hecham Alani, PharmD2Nandini Jayakumar, MSc3Jennifer M. Ryan, PhD4Department of Health Policy, London School of Economics and Political Science, London, United Kingdom; Reprint requests: Lucy Kanya, PhD, Department of Health Policy, London School of Economics and Political Science, 6 Portugal St, London WC2A 2HJ, United Kingdom.Institute of Environment, Health and Societies, Brunel University, London, United KingdomDepartment of Health Policy, London School of Economics and Political Science, London, United KingdomDepartment of Sociology, University of Cambridge, Cambridge, United KingdomInstitute of Environment, Health and Societies, Brunel University, London, United Kingdom; School of Physiotherapy, RCSI University of Medicine and Health Sciences, Dublin, IrelandObjectives: To (1) provide a comprehensive summary of the methods used to obtain health state utility values (HSUVs) from children and adolescents with disabilities (CAD), (2) describe the administration and psychometric properties of these methods in children and adolescents with disabilities, and (3) report summary statistics for HSUVs obtained from each method. Study design: English-language studies from MEDLINE (via PubMed), PsychInfo, Scopus, CINAHL Plus, EconLit, and Embase were searched from inception to November 2024. Two reviewers independently screened titles, abstracts, and full texts. Studies were included if they used direct or indirect methods to measure HSUVs, reported utilities and/or psychometric properties of these measures, and involved CAD aged 0-19 years. Two reviewers independently extracted study details including sample descriptors, instruments used, and summary statistics. Studies quality was assessed using a novel tool derived from 3 validated checklists. Results: Of the 3541 screened articles, 31 met inclusion criteria. Only 2 studies used direct methods, such as time trade-off, visual analog scale, and standard gamble, whereas 29 employed generic measures (eg, EuroQol 5 Dimensions, Health Utilities Index 3) with diverse preference elicitation methods. Excessive dependence on proxy respondents was noted, and psychometric properties of generic measures were mixed. Conclusions: Inconsistent HSUVs reporting and limited data availability are common. Reported HSUV summary statistics may be inaccurate if methodologies are unsuitable for the population. This review emphasizes the need for validated instruments to assess HSUVs in CAD.http://www.sciencedirect.com/science/article/pii/S2950541025000018health utilitiespreference-based measuresutility measurement methodsdisabilitypediatric disabilitiespreference elicitation |
| spellingShingle | Lucy Kanya, PhD Nana Anokye, PhD Ahmad Hecham Alani, PharmD Nandini Jayakumar, MSc Jennifer M. Ryan, PhD Health State Utility Values in Children and Adolescents with Disabilities: A Systematic Review Journal of Pediatrics: Clinical Practice health utilities preference-based measures utility measurement methods disability pediatric disabilities preference elicitation |
| title | Health State Utility Values in Children and Adolescents with Disabilities: A Systematic Review |
| title_full | Health State Utility Values in Children and Adolescents with Disabilities: A Systematic Review |
| title_fullStr | Health State Utility Values in Children and Adolescents with Disabilities: A Systematic Review |
| title_full_unstemmed | Health State Utility Values in Children and Adolescents with Disabilities: A Systematic Review |
| title_short | Health State Utility Values in Children and Adolescents with Disabilities: A Systematic Review |
| title_sort | health state utility values in children and adolescents with disabilities a systematic review |
| topic | health utilities preference-based measures utility measurement methods disability pediatric disabilities preference elicitation |
| url | http://www.sciencedirect.com/science/article/pii/S2950541025000018 |
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