Between uncertainty and destiny: the patient journey in axial spondyloarthritis care from the perspectives of patients and their relatives

Between uncertainty and destiny: the patient journey in axial spondyloarthritis care from the perspectives of patients and their relatives

Abstract Axial spondyloarthritis (axSpA) is an inflammatory rheumatic disease primarily affecting the sacroiliac joints and spine, leading to chronic pain, fatigue, and reduced mobility. The diagnostic delay for axSpA is often long, causing significant physical, psychological, and social burdens for...

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Bibliographic Details
Main Authors: Susann May, Greta Nordmann, Franziska Gabb, Katharina Boy, Magali Wagner, Niklas Ohm, Hanna Labinsky, Johannes Knitza, Sebastian Kuhn, Martin Heinze, Martin Welcker, Felix Muehlensiepen
Format: Article
Language:English
Published: BMC 2025-02-01
Series:BMC Rheumatology
Subjects:
Rheumatology
Axial spondyloarthritis
Qualitative research
Patient journey
Family care giver
Online Access:https://doi.org/10.1186/s41927-025-00465-3
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