CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia

Access to treatment and healthcare services for people with haemophilia in the United Kingdom (UK) and Republic of Ireland ranks highly by international standards for contemporary haemophilia management. Collaborate & Address Treatment Challenges in Haemophilia (CATCH) is an annual Sobi™ medical...

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Main Authors: Benson Gary, Curry Nicola, Fletcher Simon, Gregory Will, Harrison Cathy, Laffan Mike, Lowe Gillian, Khair Kate, Kirk Susan, McLaughlin Paul, Percy Charles, Player Denise, Whitaker Sarah
Format: Article
Language:English
Published: Sciendo 2024-04-01
Series:The Journal of Haemophilia Practice
Subjects:
Online Access:https://doi.org/10.2478/jhp-2024-0003
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author Benson Gary
Curry Nicola
Fletcher Simon
Gregory Will
Harrison Cathy
Laffan Mike
Lowe Gillian
Khair Kate
Kirk Susan
McLaughlin Paul
Percy Charles
Player Denise
Whitaker Sarah
author_facet Benson Gary
Curry Nicola
Fletcher Simon
Gregory Will
Harrison Cathy
Laffan Mike
Lowe Gillian
Khair Kate
Kirk Susan
McLaughlin Paul
Percy Charles
Player Denise
Whitaker Sarah
author_sort Benson Gary
collection DOAJ
description Access to treatment and healthcare services for people with haemophilia in the United Kingdom (UK) and Republic of Ireland ranks highly by international standards for contemporary haemophilia management. Collaborate & Address Treatment Challenges in Haemophilia (CATCH) is an annual Sobi™ medical education meeting which brings together multidisciplinary haemophilia treaters throughout the UK and Ireland to discuss all aspects of haemophilia management, including associated challenges and unmet need. This report summarises key issues explored and discussed during CATCH 2023, including ‘raising the bar’ in haemophilia care; haemophilia care for women and girls; changing haemophilia treatment paradigms to consider disease impact as well disease severity; bone health and haemophilia; and shared decision-making.
format Article
id doaj-art-83ba2b2943a74128b6928597a0c6313d
institution Kabale University
issn 2055-3390
language English
publishDate 2024-04-01
publisher Sciendo
record_format Article
series The Journal of Haemophilia Practice
spelling doaj-art-83ba2b2943a74128b6928597a0c6313d2025-02-02T15:48:30ZengSciendoThe Journal of Haemophilia Practice2055-33902024-04-01111384610.2478/jhp-2024-0003CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in HaemophiliaBenson Gary0Curry Nicola1Fletcher Simon2Gregory Will3Harrison Cathy4Laffan Mike5Lowe Gillian6Khair Kate7Kirk Susan8McLaughlin Paul9Percy Charles10Player Denise11Whitaker Sarah12Northern Ireland Haemophilia Comprehensive Care Centre and Thrombosis Unit, Belfast, Northern IrelandOxford University Hospitals NHS Foundation Trust, Oxford, UKHaemnet, London, UKSalford Royal Hospital, Salford, UKRoyal Hallamshire Hospital, Sheffield, UKImperial CollegeLondon, UKUniversity Hospitals Birmingham NHS Foundation Trust, Birmingham, UKHaemnet, London, UKBelfast Health and Social Care Trust, Belfast, Northern IrelandRoyal Free London NHS Foundation Trust, London, UKUniversity Hospitals Birmingham NHS Foundation Trust, Birmingham, UKSobi™, Herne Hill, UKBasingstoke and North Hampshire Hospital, Basingstoke, UKAccess to treatment and healthcare services for people with haemophilia in the United Kingdom (UK) and Republic of Ireland ranks highly by international standards for contemporary haemophilia management. Collaborate & Address Treatment Challenges in Haemophilia (CATCH) is an annual Sobi™ medical education meeting which brings together multidisciplinary haemophilia treaters throughout the UK and Ireland to discuss all aspects of haemophilia management, including associated challenges and unmet need. This report summarises key issues explored and discussed during CATCH 2023, including ‘raising the bar’ in haemophilia care; haemophilia care for women and girls; changing haemophilia treatment paradigms to consider disease impact as well disease severity; bone health and haemophilia; and shared decision-making.https://doi.org/10.2478/jhp-2024-0003haemophiliapatient carestandard of care
spellingShingle Benson Gary
Curry Nicola
Fletcher Simon
Gregory Will
Harrison Cathy
Laffan Mike
Lowe Gillian
Khair Kate
Kirk Susan
McLaughlin Paul
Percy Charles
Player Denise
Whitaker Sarah
CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia
The Journal of Haemophilia Practice
haemophilia
patient care
standard of care
title CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia
title_full CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia
title_fullStr CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia
title_full_unstemmed CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia
title_short CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia
title_sort catch 2023 meeting summary collaborate address treatment challenges in haemophilia
topic haemophilia
patient care
standard of care
url https://doi.org/10.2478/jhp-2024-0003
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