CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia
Access to treatment and healthcare services for people with haemophilia in the United Kingdom (UK) and Republic of Ireland ranks highly by international standards for contemporary haemophilia management. Collaborate & Address Treatment Challenges in Haemophilia (CATCH) is an annual Sobi™ medical...
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Format: | Article |
Language: | English |
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Sciendo
2024-04-01
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Series: | The Journal of Haemophilia Practice |
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Online Access: | https://doi.org/10.2478/jhp-2024-0003 |
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author | Benson Gary Curry Nicola Fletcher Simon Gregory Will Harrison Cathy Laffan Mike Lowe Gillian Khair Kate Kirk Susan McLaughlin Paul Percy Charles Player Denise Whitaker Sarah |
author_facet | Benson Gary Curry Nicola Fletcher Simon Gregory Will Harrison Cathy Laffan Mike Lowe Gillian Khair Kate Kirk Susan McLaughlin Paul Percy Charles Player Denise Whitaker Sarah |
author_sort | Benson Gary |
collection | DOAJ |
description | Access to treatment and healthcare services for people with haemophilia in the United Kingdom (UK) and Republic of Ireland ranks highly by international standards for contemporary haemophilia management. Collaborate & Address Treatment Challenges in Haemophilia (CATCH) is an annual Sobi™ medical education meeting which brings together multidisciplinary haemophilia treaters throughout the UK and Ireland to discuss all aspects of haemophilia management, including associated challenges and unmet need. This report summarises key issues explored and discussed during CATCH 2023, including ‘raising the bar’ in haemophilia care; haemophilia care for women and girls; changing haemophilia treatment paradigms to consider disease impact as well disease severity; bone health and haemophilia; and shared decision-making. |
format | Article |
id | doaj-art-83ba2b2943a74128b6928597a0c6313d |
institution | Kabale University |
issn | 2055-3390 |
language | English |
publishDate | 2024-04-01 |
publisher | Sciendo |
record_format | Article |
series | The Journal of Haemophilia Practice |
spelling | doaj-art-83ba2b2943a74128b6928597a0c6313d2025-02-02T15:48:30ZengSciendoThe Journal of Haemophilia Practice2055-33902024-04-01111384610.2478/jhp-2024-0003CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in HaemophiliaBenson Gary0Curry Nicola1Fletcher Simon2Gregory Will3Harrison Cathy4Laffan Mike5Lowe Gillian6Khair Kate7Kirk Susan8McLaughlin Paul9Percy Charles10Player Denise11Whitaker Sarah12Northern Ireland Haemophilia Comprehensive Care Centre and Thrombosis Unit, Belfast, Northern IrelandOxford University Hospitals NHS Foundation Trust, Oxford, UKHaemnet, London, UKSalford Royal Hospital, Salford, UKRoyal Hallamshire Hospital, Sheffield, UKImperial CollegeLondon, UKUniversity Hospitals Birmingham NHS Foundation Trust, Birmingham, UKHaemnet, London, UKBelfast Health and Social Care Trust, Belfast, Northern IrelandRoyal Free London NHS Foundation Trust, London, UKUniversity Hospitals Birmingham NHS Foundation Trust, Birmingham, UKSobi™, Herne Hill, UKBasingstoke and North Hampshire Hospital, Basingstoke, UKAccess to treatment and healthcare services for people with haemophilia in the United Kingdom (UK) and Republic of Ireland ranks highly by international standards for contemporary haemophilia management. Collaborate & Address Treatment Challenges in Haemophilia (CATCH) is an annual Sobi™ medical education meeting which brings together multidisciplinary haemophilia treaters throughout the UK and Ireland to discuss all aspects of haemophilia management, including associated challenges and unmet need. This report summarises key issues explored and discussed during CATCH 2023, including ‘raising the bar’ in haemophilia care; haemophilia care for women and girls; changing haemophilia treatment paradigms to consider disease impact as well disease severity; bone health and haemophilia; and shared decision-making.https://doi.org/10.2478/jhp-2024-0003haemophiliapatient carestandard of care |
spellingShingle | Benson Gary Curry Nicola Fletcher Simon Gregory Will Harrison Cathy Laffan Mike Lowe Gillian Khair Kate Kirk Susan McLaughlin Paul Percy Charles Player Denise Whitaker Sarah CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia The Journal of Haemophilia Practice haemophilia patient care standard of care |
title | CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia |
title_full | CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia |
title_fullStr | CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia |
title_full_unstemmed | CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia |
title_short | CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia |
title_sort | catch 2023 meeting summary collaborate address treatment challenges in haemophilia |
topic | haemophilia patient care standard of care |
url | https://doi.org/10.2478/jhp-2024-0003 |
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