Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic
Objectives COVID-19 has led to rapid changes in rehabilitation service provision for young people living with traumatic brain and/or spinal cord injury. The aim of this project was to understand the experiences of rehabilitation service providers during the acute response stage of the COVID-19 pande...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2022-06-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/12/6/e059534.full |
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| author | Vicki Anderson Adam Scheinberg Sarah Knight David J Amor Anna Pollock Kate D’Cruz Edith Botchway Louise Harms Bruce Bonyhady |
| author_facet | Vicki Anderson Adam Scheinberg Sarah Knight David J Amor Anna Pollock Kate D’Cruz Edith Botchway Louise Harms Bruce Bonyhady |
| author_sort | Vicki Anderson |
| collection | DOAJ |
| description | Objectives COVID-19 has led to rapid changes in rehabilitation service provision for young people living with traumatic brain and/or spinal cord injury. The aim of this project was to understand the experiences of rehabilitation service providers during the acute response stage of the COVID-19 pandemic. Specifically, we aimed to identify innovative approaches to meeting the ongoing needs of young people with traumatic brain and/or spinal cord injury during this time.Setting This study was conducted at a research institute and involved remote interviews with key informants around Australia and internationally.Participants Key informants from 11 services supporting children and/or adolescents with traumatic brain injury and/or spinal cord injury were interviewed using a semistructured interview guide. Interviews were transcribed and analysed using inductive thematic analysis.Results Three key themes emerged: (1) recognising and responding to the experiences of families during the pandemic, (2) the impact of greater use of telehealth on care delivery, and (3) realising opportunities to enhance family-centred care.Conclusions These themes capture shifting perspectives and process changes relevant to longer term practice. Research findings suggest opportunities for future service development, enabling service delivery that is more family centred, flexible and efficient in meeting the needs of families. Understanding these experiences and the changed nature of service delivery provides important insights with implications for future service improvement. |
| format | Article |
| id | doaj-art-82ac692e7ef6451f98f478af5efd3eab |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2022-06-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-82ac692e7ef6451f98f478af5efd3eab2025-01-24T03:35:10ZengBMJ Publishing GroupBMJ Open2044-60552022-06-0112610.1136/bmjopen-2021-059534Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemicVicki Anderson0Adam Scheinberg1Sarah Knight2David J Amor3Anna Pollock4Kate D’Cruz5Edith Botchway6Louise Harms7Bruce Bonyhady88 Melbourne School of Psychological Sciences, University of Melbourne, Melbourne, Victoria, AustraliaMelbourne Medical School, The University of Melbourne, Melbourne, Victoria, Australia1 Neurodisability and Rehabilitation, Murdoch Children’s Research Institute, Melbourne, AustraliaUniversity of Melbourne, Melbourne, Victoria, AustraliaClinical Sciences, Murdoch Children`s Research Institute, Parkville, Victoria, AustraliaDepartment of Occupational Therapy, La Trobe University, Melbourne, Victoria, AustraliaClinical Sciences, Murdoch Children`s Research Institute, Parkville, Victoria, AustraliaDepartment of Social Work, The University of Melbourne, Melbourne, Victoria, AustraliaMelbourne Disability Institute, The University of Melbourne Faculty of Medicine, Dentistry and Health Sciences, Melbourne, Victoria, AustraliaObjectives COVID-19 has led to rapid changes in rehabilitation service provision for young people living with traumatic brain and/or spinal cord injury. The aim of this project was to understand the experiences of rehabilitation service providers during the acute response stage of the COVID-19 pandemic. Specifically, we aimed to identify innovative approaches to meeting the ongoing needs of young people with traumatic brain and/or spinal cord injury during this time.Setting This study was conducted at a research institute and involved remote interviews with key informants around Australia and internationally.Participants Key informants from 11 services supporting children and/or adolescents with traumatic brain injury and/or spinal cord injury were interviewed using a semistructured interview guide. Interviews were transcribed and analysed using inductive thematic analysis.Results Three key themes emerged: (1) recognising and responding to the experiences of families during the pandemic, (2) the impact of greater use of telehealth on care delivery, and (3) realising opportunities to enhance family-centred care.Conclusions These themes capture shifting perspectives and process changes relevant to longer term practice. Research findings suggest opportunities for future service development, enabling service delivery that is more family centred, flexible and efficient in meeting the needs of families. Understanding these experiences and the changed nature of service delivery provides important insights with implications for future service improvement.https://bmjopen.bmj.com/content/12/6/e059534.full |
| spellingShingle | Vicki Anderson Adam Scheinberg Sarah Knight David J Amor Anna Pollock Kate D’Cruz Edith Botchway Louise Harms Bruce Bonyhady Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic BMJ Open |
| title | Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic |
| title_full | Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic |
| title_fullStr | Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic |
| title_full_unstemmed | Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic |
| title_short | Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic |
| title_sort | family centred care for children with traumatic brain injury and or spinal cord injury a qualitative study of service provider perspectives during the covid 19 pandemic |
| url | https://bmjopen.bmj.com/content/12/6/e059534.full |
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