National Registry of Rare Diseases

A rare disease is one that affects a small absolute number of people or a small population. These conditions constitute a significant group of pathologies that, although viewed separately, do not constitute highly prevalent diseases, as a whole they can become a health problem. These diseases affect...

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Main Authors: Yadnil Elizabeth Gómez Vázquez, Onelis Góngora Gómez
Format: Article
Language:Spanish
Published: Universidad de las Ciencias Médicas de Cienfuegos 2020-08-01
Series:Revista Finlay
Subjects:
Online Access:https://revfinlay.sld.cu/index.php/finlay/article/view/809
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author Yadnil Elizabeth Gómez Vázquez
Onelis Góngora Gómez
author_facet Yadnil Elizabeth Gómez Vázquez
Onelis Góngora Gómez
author_sort Yadnil Elizabeth Gómez Vázquez
collection DOAJ
description A rare disease is one that affects a small absolute number of people or a small population. These conditions constitute a significant group of pathologies that, although viewed separately, do not constitute highly prevalent diseases, as a whole they can become a health problem. These diseases affect a quite vulnerable population group because they cause psychological, physical and social damage and constitute a group on which it is necessary to act positively. In Cuba there is no record of the prevalence or incidence of these diseases. It is imperative to create a similar network in Cuba, where these diseases constitute a health problem due to the incidence they have together.
format Article
id doaj-art-81bfb8eff0934b3797d7302bd40817a9
institution Kabale University
issn 2221-2434
language Spanish
publishDate 2020-08-01
publisher Universidad de las Ciencias Médicas de Cienfuegos
record_format Article
series Revista Finlay
spelling doaj-art-81bfb8eff0934b3797d7302bd40817a92025-01-30T21:22:00ZspaUniversidad de las Ciencias Médicas de CienfuegosRevista Finlay2221-24342020-08-01103207208454National Registry of Rare DiseasesYadnil Elizabeth Gómez Vázquez0Onelis Góngora Gómez1Policlínico Comunitario Docente Alex Urquiola. Holguín.Universidad de Ciencias Médicas de Holguín. Holguín.A rare disease is one that affects a small absolute number of people or a small population. These conditions constitute a significant group of pathologies that, although viewed separately, do not constitute highly prevalent diseases, as a whole they can become a health problem. These diseases affect a quite vulnerable population group because they cause psychological, physical and social damage and constitute a group on which it is necessary to act positively. In Cuba there is no record of the prevalence or incidence of these diseases. It is imperative to create a similar network in Cuba, where these diseases constitute a health problem due to the incidence they have together.https://revfinlay.sld.cu/index.php/finlay/article/view/809enfermedades rarassalud públicadiagnóstico
spellingShingle Yadnil Elizabeth Gómez Vázquez
Onelis Góngora Gómez
National Registry of Rare Diseases
Revista Finlay
enfermedades raras
salud pública
diagnóstico
title National Registry of Rare Diseases
title_full National Registry of Rare Diseases
title_fullStr National Registry of Rare Diseases
title_full_unstemmed National Registry of Rare Diseases
title_short National Registry of Rare Diseases
title_sort national registry of rare diseases
topic enfermedades raras
salud pública
diagnóstico
url https://revfinlay.sld.cu/index.php/finlay/article/view/809
work_keys_str_mv AT yadnilelizabethgomezvazquez nationalregistryofrarediseases
AT onelisgongoragomez nationalregistryofrarediseases