System change in practice: A report from the EHC Think Tank workstreams on Registries and Patient Agency
System change addresses the fundamental causes of persistent, complex problems to achieve large-scale, sustainable solutions at multiple levels. Recognising the need for system change to ensure equitable access to healthcare for people with bleeding disorders and other rare diseases, the European Ha...
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Main Authors: | Gacser Zita, Skouw-Rasmussen Naja |
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Format: | Article |
Language: | English |
Published: |
Sciendo
2024-02-01
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Series: | The Journal of Haemophilia Practice |
Subjects: | |
Online Access: | https://doi.org/10.2478/jhp-2024-0005 |
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