Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophilia
In a nursing career spanning almost five decades, Anne Louise has spent over 30 years caring for people with haemophilia in South Africa. She reflects on the importance of prophylaxis and how tailoring treatment to meet individual needs not only helps to prevent bleeds but can make goals and aspirat...
Saved in:
| Main Author: | |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Sciendo
2024-02-01
|
| Series: | The Journal of Haemophilia Practice |
| Subjects: | |
| Online Access: | https://doi.org/10.2478/jhp-2024-0004 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1832570306893447168 |
|---|---|
| author | Cruickshank Anne-Louise |
| author_facet | Cruickshank Anne-Louise |
| author_sort | Cruickshank Anne-Louise |
| collection | DOAJ |
| description | In a nursing career spanning almost five decades, Anne Louise has spent over 30 years caring for people with haemophilia in South Africa. She reflects on the importance of prophylaxis and how tailoring treatment to meet individual needs not only helps to prevent bleeds but can make goals and aspirations attainable. Describing her experience of how she supported a young man with severe haemophilia in achieving his ambition to become a paramedic, Anne-Louise demonstrates the importance of the nurse-patient relationship and the role of the nurse in providing individualised care. She discusses advocating for prophylaxis and the need to change mindsets, and highlights the need for further change in access to treatments for haemophilia in South Africa. The patient also describes his journey to achieving the level of fitness he needed to undertake the entrance exam to train as paramedic. |
| format | Article |
| id | doaj-art-7624b899d50647a98bc05790c454eb8f |
| institution | Kabale University |
| issn | 2055-3390 |
| language | English |
| publishDate | 2024-02-01 |
| publisher | Sciendo |
| record_format | Article |
| series | The Journal of Haemophilia Practice |
| spelling | doaj-art-7624b899d50647a98bc05790c454eb8f2025-02-02T15:48:30ZengSciendoThe Journal of Haemophilia Practice2055-33902024-02-01111172010.2478/jhp-2024-0004Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophiliaCruickshank Anne-Louise0Haemophilia Nurse Co-ordinator at the South African Haemophilia Foundation (SAHF), Groote Schuur Hospital, Cape Town, South Africa, a Member of the SAHF Haemophilia Nurses Committee, and Secretary of SAHF Medical and Scientific Advisory Council, Cape Town, South AfricaIn a nursing career spanning almost five decades, Anne Louise has spent over 30 years caring for people with haemophilia in South Africa. She reflects on the importance of prophylaxis and how tailoring treatment to meet individual needs not only helps to prevent bleeds but can make goals and aspirations attainable. Describing her experience of how she supported a young man with severe haemophilia in achieving his ambition to become a paramedic, Anne-Louise demonstrates the importance of the nurse-patient relationship and the role of the nurse in providing individualised care. She discusses advocating for prophylaxis and the need to change mindsets, and highlights the need for further change in access to treatments for haemophilia in South Africa. The patient also describes his journey to achieving the level of fitness he needed to undertake the entrance exam to train as paramedic.https://doi.org/10.2478/jhp-2024-0004haemophiliaprophylaxisindividualised treatmentnursesprofessional practice |
| spellingShingle | Cruickshank Anne-Louise Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophilia The Journal of Haemophilia Practice haemophilia prophylaxis individualised treatment nurses professional practice |
| title | Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophilia |
| title_full | Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophilia |
| title_fullStr | Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophilia |
| title_full_unstemmed | Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophilia |
| title_short | Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophilia |
| title_sort | living caring learning changing mindsets and enabling goals for people with haemophilia |
| topic | haemophilia prophylaxis individualised treatment nurses professional practice |
| url | https://doi.org/10.2478/jhp-2024-0004 |
| work_keys_str_mv | AT cruickshankannelouise livingcaringlearningchangingmindsetsandenablinggoalsforpeoplewithhaemophilia |