Protocol for the development and multisite validation of the Quality of Dying and Death-Revised Global Version scale
Introduction Evaluating the quality of dying and death is essential to ensure high-quality end-of-life care. The Quality of Dying and Death (QODD) scale is the best-validated measure of the construct, but many items are not relevant to participants, particularly in low-resource settings. The aim of...
Saved in:
| Main Authors: | , , , , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMJ Publishing Group
2022-07-01
|
| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/12/7/e064508.full |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1832577676705005568 |
|---|---|
| author | Camilla Zimmermann Ekaterina An Sarah Hales Gary Rodin Eve Namisango Kenneth Mah Lameck Thambo Christian Ntizimira Alyssa Tilly Warren Lewin Mano Chandrakumar Arnell Baguio Nazira Jaffer Maria Chikasema Kayla Wolofsky Mary Goombs |
| author_facet | Camilla Zimmermann Ekaterina An Sarah Hales Gary Rodin Eve Namisango Kenneth Mah Lameck Thambo Christian Ntizimira Alyssa Tilly Warren Lewin Mano Chandrakumar Arnell Baguio Nazira Jaffer Maria Chikasema Kayla Wolofsky Mary Goombs |
| author_sort | Camilla Zimmermann |
| collection | DOAJ |
| description | Introduction Evaluating the quality of dying and death is essential to ensure high-quality end-of-life care. The Quality of Dying and Death (QODD) scale is the best-validated measure of the construct, but many items are not relevant to participants, particularly in low-resource settings. The aim of this multisite cross-sectional study is to develop and validate the QODD-Revised Global Version (QODD-RGV), to enhance ease of completion and relevance in higher-resource and lower-resource settings.Methods and analysis This study will be a two-arm, multisite evaluation of the cultural relevance, reliability and validity of the QODD-RGV across four participating North American hospices and a palliative care site in Malawi, Africa. Bereaved caregivers and healthcare providers of patients who died at a participating North American hospice and bereaved caregivers of patients who died of cancer at the Malawian palliative care site will complete the QODD-RGV and validation measures. Cognitive interviews with subsets of North American and Malawian caregivers will assess the perceived relevance of the scale items. Psychometric evaluations will include internal consistency and convergent and concurrent validity.Ethics and dissemination The North American arm received approval from the University Health Network Research Ethics Board (21-5143) and the University of North Carolina Institutional Review Board (21-1172). Ethics approval for the Malawi arm is being obtained from the University of North Carolina Institutional Review Board and the Malawian National Health Science Research Committee. Study findings will be disseminated through publication in peer-reviewed journals and conference presentations. |
| format | Article |
| id | doaj-art-75f7f4bca13845f1a1e5b227a843a09c |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2022-07-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-75f7f4bca13845f1a1e5b227a843a09c2025-01-30T18:50:10ZengBMJ Publishing GroupBMJ Open2044-60552022-07-0112710.1136/bmjopen-2022-064508Protocol for the development and multisite validation of the Quality of Dying and Death-Revised Global Version scaleCamilla Zimmermann0Ekaterina An1Sarah Hales2Gary Rodin3Eve Namisango4Kenneth Mah5Lameck Thambo6Christian Ntizimira7Alyssa Tilly8Warren Lewin9Mano Chandrakumar10Arnell Baguio11Nazira Jaffer12Maria Chikasema13Kayla Wolofsky14Mary Goombs15University of Toronto Faculty of Medicine, Toronto, Ontario, CanadaDepartment of Supportive Care, University Health Network, Toronto, Ontario, Canada2 Department of Supportive Care, Princess Margaret Cancer Centre (University Health Network), Toronto, Ontario, CanadaDepartment of Psychiatry, University of Toronto, Toronto, Ontario, CanadaAfrican Palliative Care Association, Kampala, UgandaDepartment of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, CanadaPalliative Care Association, Lilongwe, MalawiAfrican Center for Research on End of Life Care, Kigali, RwandaDivision of General Medicine and Clinical Epidemiology, Department of Medicine, University of North Carolina, Chapel Hill, North Carolina, USAKensington Hospice, Toronto, Ontario, CanadaKensington Hospice, Toronto, Ontario, CanadaPalliative Care Program, Stronach Regional Cancer Centre, Southlake Regional Health Centre, Newmarket, Ontario, CanadaGlobal Institute of Psychosocial, Palliative and End-of-Life Care, University Health Network, Toronto, Ontario, CanadaUNC Project, Lilongwe, Central Region, MalawiDepartment of Supportive Care, UHN, Toronto, Ontario, CanadaDepartment of Supportive Care, University Health Network, Toronto, Ontario, CanadaIntroduction Evaluating the quality of dying and death is essential to ensure high-quality end-of-life care. The Quality of Dying and Death (QODD) scale is the best-validated measure of the construct, but many items are not relevant to participants, particularly in low-resource settings. The aim of this multisite cross-sectional study is to develop and validate the QODD-Revised Global Version (QODD-RGV), to enhance ease of completion and relevance in higher-resource and lower-resource settings.Methods and analysis This study will be a two-arm, multisite evaluation of the cultural relevance, reliability and validity of the QODD-RGV across four participating North American hospices and a palliative care site in Malawi, Africa. Bereaved caregivers and healthcare providers of patients who died at a participating North American hospice and bereaved caregivers of patients who died of cancer at the Malawian palliative care site will complete the QODD-RGV and validation measures. Cognitive interviews with subsets of North American and Malawian caregivers will assess the perceived relevance of the scale items. Psychometric evaluations will include internal consistency and convergent and concurrent validity.Ethics and dissemination The North American arm received approval from the University Health Network Research Ethics Board (21-5143) and the University of North Carolina Institutional Review Board (21-1172). Ethics approval for the Malawi arm is being obtained from the University of North Carolina Institutional Review Board and the Malawian National Health Science Research Committee. Study findings will be disseminated through publication in peer-reviewed journals and conference presentations.https://bmjopen.bmj.com/content/12/7/e064508.full |
| spellingShingle | Camilla Zimmermann Ekaterina An Sarah Hales Gary Rodin Eve Namisango Kenneth Mah Lameck Thambo Christian Ntizimira Alyssa Tilly Warren Lewin Mano Chandrakumar Arnell Baguio Nazira Jaffer Maria Chikasema Kayla Wolofsky Mary Goombs Protocol for the development and multisite validation of the Quality of Dying and Death-Revised Global Version scale BMJ Open |
| title | Protocol for the development and multisite validation of the Quality of Dying and Death-Revised Global Version scale |
| title_full | Protocol for the development and multisite validation of the Quality of Dying and Death-Revised Global Version scale |
| title_fullStr | Protocol for the development and multisite validation of the Quality of Dying and Death-Revised Global Version scale |
| title_full_unstemmed | Protocol for the development and multisite validation of the Quality of Dying and Death-Revised Global Version scale |
| title_short | Protocol for the development and multisite validation of the Quality of Dying and Death-Revised Global Version scale |
| title_sort | protocol for the development and multisite validation of the quality of dying and death revised global version scale |
| url | https://bmjopen.bmj.com/content/12/7/e064508.full |
| work_keys_str_mv | AT camillazimmermann protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT ekaterinaan protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT sarahhales protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT garyrodin protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT evenamisango protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT kennethmah protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT lameckthambo protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT christianntizimira protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT alyssatilly protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT warrenlewin protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT manochandrakumar protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT arnellbaguio protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT nazirajaffer protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT mariachikasema protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT kaylawolofsky protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale AT marygoombs protocolforthedevelopmentandmultisitevalidationofthequalityofdyinganddeathrevisedglobalversionscale |