Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next steps
The transition of health care from adolescence to adulthood is a challenging time, especially for persons with intellectual and developmental disability (IDD), where navigating health care transitions can be particularly difficult. Persons with IDD are an especially vulnerable population and they an...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2025-08-01
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| Series: | Frontiers in Pediatrics |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fped.2025.1486325/full |
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| author | Shwetha Ramachandran Solveig Stensland Julie H. Corder Carrie Cuomo Thao-Vi Dao Thao-Vi Dao Thao-Vi Dao Marvin R. Natowicz Marvin R. Natowicz Marvin R. Natowicz |
| author_facet | Shwetha Ramachandran Solveig Stensland Julie H. Corder Carrie Cuomo Thao-Vi Dao Thao-Vi Dao Thao-Vi Dao Marvin R. Natowicz Marvin R. Natowicz Marvin R. Natowicz |
| author_sort | Shwetha Ramachandran |
| collection | DOAJ |
| description | The transition of health care from adolescence to adulthood is a challenging time, especially for persons with intellectual and developmental disability (IDD), where navigating health care transitions can be particularly difficult. Persons with IDD are an especially vulnerable population and they and their caregivers encounter barriers in obtaining high quality health care transition. These barriers result in the suboptimal utilization of health care transition services and consequent poorer health outcomes. Herein, we discuss barriers to obtaining high quality pediatric to adult transitional health care for persons with IDD. We then discuss next steps, some of them well recognized and others underappreciated, for addressing these barriers and thereby achieving an important public health need: the attainment of high quality pediatric to adult health care transition for persons with IDD. |
| format | Article |
| id | doaj-art-7319e843719646c3b1349f6b5b51fd27 |
| institution | DOAJ |
| issn | 2296-2360 |
| language | English |
| publishDate | 2025-08-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Pediatrics |
| spelling | doaj-art-7319e843719646c3b1349f6b5b51fd272025-08-20T03:05:44ZengFrontiers Media S.A.Frontiers in Pediatrics2296-23602025-08-011310.3389/fped.2025.14863251486325Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next stepsShwetha Ramachandran0Solveig Stensland1Julie H. Corder2Carrie Cuomo3Thao-Vi Dao4Thao-Vi Dao5Thao-Vi Dao6Marvin R. Natowicz7Marvin R. Natowicz8Marvin R. Natowicz9Cleveland Clinic Lerner College of Medicine, Case Western Reserve University, Cleveland, OH, United StatesCleveland Clinic Lerner College of Medicine, Case Western Reserve University, Cleveland, OH, United StatesChildren’s Institute, Cleveland Clinic, Cleveland, OH, United StatesChildren’s Institute, Cleveland Clinic, Cleveland, OH, United StatesCleveland Clinic Lerner College of Medicine, Case Western Reserve University, Cleveland, OH, United StatesChildren’s Institute, Cleveland Clinic, Cleveland, OH, United StatesDepartment of Internal Medicine and Geriatrics, Cleveland Clinic, Cleveland, OH, United StatesCleveland Clinic Lerner College of Medicine, Case Western Reserve University, Cleveland, OH, United StatesChildren’s Institute, Cleveland Clinic, Cleveland, OH, United StatesPathology & Laboratory Medicine, Genomic Medicine, and Neurological Institutes, Cleveland Clinic, Cleveland, OH, United StatesThe transition of health care from adolescence to adulthood is a challenging time, especially for persons with intellectual and developmental disability (IDD), where navigating health care transitions can be particularly difficult. Persons with IDD are an especially vulnerable population and they and their caregivers encounter barriers in obtaining high quality health care transition. These barriers result in the suboptimal utilization of health care transition services and consequent poorer health outcomes. Herein, we discuss barriers to obtaining high quality pediatric to adult transitional health care for persons with IDD. We then discuss next steps, some of them well recognized and others underappreciated, for addressing these barriers and thereby achieving an important public health need: the attainment of high quality pediatric to adult health care transition for persons with IDD.https://www.frontiersin.org/articles/10.3389/fped.2025.1486325/fullintellectual disabilitydevelopmental disabilityintellectual and developmental disabilitieshealth care transitionadolescent to adultpediatric to adult |
| spellingShingle | Shwetha Ramachandran Solveig Stensland Julie H. Corder Carrie Cuomo Thao-Vi Dao Thao-Vi Dao Thao-Vi Dao Marvin R. Natowicz Marvin R. Natowicz Marvin R. Natowicz Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next steps Frontiers in Pediatrics intellectual disability developmental disability intellectual and developmental disabilities health care transition adolescent to adult pediatric to adult |
| title | Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next steps |
| title_full | Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next steps |
| title_fullStr | Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next steps |
| title_full_unstemmed | Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next steps |
| title_short | Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next steps |
| title_sort | adolescent to adult health care transition for persons with intellectual and developmental disability current barriers next steps |
| topic | intellectual disability developmental disability intellectual and developmental disabilities health care transition adolescent to adult pediatric to adult |
| url | https://www.frontiersin.org/articles/10.3389/fped.2025.1486325/full |
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