A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry
Introduction. The methods and initial results of a web-based platform to collect data from patients receiving maintenance dialysis in Brazil are reported. Methods. Companies providing management software for dialysis centers adapted their system to comply with a formulary of the Brazilian Society of...
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| Format: | Article |
| Language: | English |
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Wiley
2018-01-01
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| Series: | International Journal of Nephrology |
| Online Access: | http://dx.doi.org/10.1155/2018/9894754 |
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| author | Jocemir R. Lugon Pedro A. Gordan Fernando S. Thomé Antonio A. Lopes Yoshimi J. A. Watanabe Carmen Tzanno Ricardo C. Sesso |
| author_facet | Jocemir R. Lugon Pedro A. Gordan Fernando S. Thomé Antonio A. Lopes Yoshimi J. A. Watanabe Carmen Tzanno Ricardo C. Sesso |
| author_sort | Jocemir R. Lugon |
| collection | DOAJ |
| description | Introduction. The methods and initial results of a web-based platform to collect data from patients receiving maintenance dialysis in Brazil are reported. Methods. Companies providing management software for dialysis centers adapted their system to comply with a formulary of the Brazilian Society of Nephrology. Baseline and follow-up individual patients’ data were transmitted via Internet on monthly bases to the coordinating center from 2011 to 2017. Results. 73 dialysis centers provided information of 24,930 patients: 57% were male, 28% were 64 years old or older, and 13% were overweight/obese. Median dialysis vintage was 28 months. Hemodialysis was the most frequent initial therapy (93%) with venous catheters used in 64% of cases. Conventional hemodialysis remained the main current therapy (90%). Seropositivity for hepatitis C, hepatitis B, and HIV was 2.7%, 1.1%, and 0.5%, respectively. Erythropoietin (53.9%), iron (35.1%), and sevelamer (23.4%) were the most used medications. Hemoglobin < 100 g/L and serum P > 1.74 mmol/L were present in 33.1% and 36.6% of the cases, respectively. The 5-year survival of incident cases (n=7,538) was 57%. Conclusion. The initiative represents an innovative strategy to collect clinical and epidemiologic data of dialysis patients which may be applied to other settings and provides information that can contribute to guiding clinical practice and health care policy. |
| format | Article |
| id | doaj-art-6c113bcc3af94159b18f214cd6abf19b |
| institution | Kabale University |
| issn | 2090-214X 2090-2158 |
| language | English |
| publishDate | 2018-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | International Journal of Nephrology |
| spelling | doaj-art-6c113bcc3af94159b18f214cd6abf19b2025-02-03T07:25:02ZengWileyInternational Journal of Nephrology2090-214X2090-21582018-01-01201810.1155/2018/98947549894754A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis RegistryJocemir R. Lugon0Pedro A. Gordan1Fernando S. Thomé2Antonio A. Lopes3Yoshimi J. A. Watanabe4Carmen Tzanno5Ricardo C. Sesso6Universidade Federal Fluminense, Niterói, RJ, BrazilUniversidade Estadual de Londrina, Londrina, PR, BrazilUniversidade Federal do Rio Grande do Sul, Porto Alegre, RS, BrazilUniversidade Federal da Bahia, Salvador, BA, BrazilHospital São João de Deus, Divinópolis, MG, BrazilSociedade Brasileira de Nefrologia, São Paulo, SP, BrazilUniversidade Federal de São Paulo, São Paulo, SP, BrazilIntroduction. The methods and initial results of a web-based platform to collect data from patients receiving maintenance dialysis in Brazil are reported. Methods. Companies providing management software for dialysis centers adapted their system to comply with a formulary of the Brazilian Society of Nephrology. Baseline and follow-up individual patients’ data were transmitted via Internet on monthly bases to the coordinating center from 2011 to 2017. Results. 73 dialysis centers provided information of 24,930 patients: 57% were male, 28% were 64 years old or older, and 13% were overweight/obese. Median dialysis vintage was 28 months. Hemodialysis was the most frequent initial therapy (93%) with venous catheters used in 64% of cases. Conventional hemodialysis remained the main current therapy (90%). Seropositivity for hepatitis C, hepatitis B, and HIV was 2.7%, 1.1%, and 0.5%, respectively. Erythropoietin (53.9%), iron (35.1%), and sevelamer (23.4%) were the most used medications. Hemoglobin < 100 g/L and serum P > 1.74 mmol/L were present in 33.1% and 36.6% of the cases, respectively. The 5-year survival of incident cases (n=7,538) was 57%. Conclusion. The initiative represents an innovative strategy to collect clinical and epidemiologic data of dialysis patients which may be applied to other settings and provides information that can contribute to guiding clinical practice and health care policy.http://dx.doi.org/10.1155/2018/9894754 |
| spellingShingle | Jocemir R. Lugon Pedro A. Gordan Fernando S. Thomé Antonio A. Lopes Yoshimi J. A. Watanabe Carmen Tzanno Ricardo C. Sesso A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry International Journal of Nephrology |
| title | A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry |
| title_full | A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry |
| title_fullStr | A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry |
| title_full_unstemmed | A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry |
| title_short | A Web-Based Platform to Collect Data from ESRD Patients Undergoing Dialysis: Methods and Preliminary Results from the Brazilian Dialysis Registry |
| title_sort | web based platform to collect data from esrd patients undergoing dialysis methods and preliminary results from the brazilian dialysis registry |
| url | http://dx.doi.org/10.1155/2018/9894754 |
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