Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature

Background and Aims. The lived experience of HCV has not been well documented in the literature. The aim of this systematic review was to understand the experiences of living with Hepatitis C Virus (HCV). Methods. Five databases were searched from inception until January 19, 2015. Studies were inclu...

Full description

Saved in:
Bibliographic Details
Main Authors: Laura E. Dowsett, Stephanie Coward, Diane L. Lorenzetti, Gail MacKean, Fiona Clement
Format: Article
Language:English
Published: Wiley 2017-01-01
Series:Canadian Journal of Gastroenterology and Hepatology
Online Access:http://dx.doi.org/10.1155/2017/3268650
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1832550278651445248
author Laura E. Dowsett
Stephanie Coward
Diane L. Lorenzetti
Gail MacKean
Fiona Clement
author_facet Laura E. Dowsett
Stephanie Coward
Diane L. Lorenzetti
Gail MacKean
Fiona Clement
author_sort Laura E. Dowsett
collection DOAJ
description Background and Aims. The lived experience of HCV has not been well documented in the literature. The aim of this systematic review was to understand the experiences of living with Hepatitis C Virus (HCV). Methods. Five databases were searched from inception until January 19, 2015. Studies were included if they focused on adults diagnosed with HCV; reported experience living with HCV; and described original research. Results. 46 studies were included. Studies found that participants had reduced quality of life due to physical symptoms. Due to physical symptoms and discrimination, many participants switched to part-time work or quit their jobs. Many individuals reported negative experiences with the healthcare system; themes of feeling unsupported, not having adequate information, and not feeling involved in decisions were reported. Stigma significantly impacted those living with HCV. Conclusions. Published literature indicates that those with HCV often feel stigmatized and unsupported in their care, relationships, and work environments, while simultaneously coping with physical and psychological symptoms. This synthesis points to areas where greater education, compassion, and patient-centered healthcare could improve the experience of people living with HCV.
format Article
id doaj-art-67d6d77958de496988d1c694a35869fb
institution Kabale University
issn 2291-2789
2291-2797
language English
publishDate 2017-01-01
publisher Wiley
record_format Article
series Canadian Journal of Gastroenterology and Hepatology
spelling doaj-art-67d6d77958de496988d1c694a35869fb2025-02-03T06:07:12ZengWileyCanadian Journal of Gastroenterology and Hepatology2291-27892291-27972017-01-01201710.1155/2017/32686503268650Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative LiteratureLaura E. Dowsett0Stephanie Coward1Diane L. Lorenzetti2Gail MacKean3Fiona Clement4The Department Community Health Sciences, Teaching, Research and Wellness Building, 3280 Hospital Drive NW, Calgary, AB, T2N 4N1, CanadaThe Department Community Health Sciences, Teaching, Research and Wellness Building, 3280 Hospital Drive NW, Calgary, AB, T2N 4N1, CanadaThe Department Community Health Sciences, Teaching, Research and Wellness Building, 3280 Hospital Drive NW, Calgary, AB, T2N 4N1, CanadaThe Department Community Health Sciences, Teaching, Research and Wellness Building, 3280 Hospital Drive NW, Calgary, AB, T2N 4N1, CanadaThe Department Community Health Sciences, Teaching, Research and Wellness Building, 3280 Hospital Drive NW, Calgary, AB, T2N 4N1, CanadaBackground and Aims. The lived experience of HCV has not been well documented in the literature. The aim of this systematic review was to understand the experiences of living with Hepatitis C Virus (HCV). Methods. Five databases were searched from inception until January 19, 2015. Studies were included if they focused on adults diagnosed with HCV; reported experience living with HCV; and described original research. Results. 46 studies were included. Studies found that participants had reduced quality of life due to physical symptoms. Due to physical symptoms and discrimination, many participants switched to part-time work or quit their jobs. Many individuals reported negative experiences with the healthcare system; themes of feeling unsupported, not having adequate information, and not feeling involved in decisions were reported. Stigma significantly impacted those living with HCV. Conclusions. Published literature indicates that those with HCV often feel stigmatized and unsupported in their care, relationships, and work environments, while simultaneously coping with physical and psychological symptoms. This synthesis points to areas where greater education, compassion, and patient-centered healthcare could improve the experience of people living with HCV.http://dx.doi.org/10.1155/2017/3268650
spellingShingle Laura E. Dowsett
Stephanie Coward
Diane L. Lorenzetti
Gail MacKean
Fiona Clement
Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature
Canadian Journal of Gastroenterology and Hepatology
title Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature
title_full Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature
title_fullStr Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature
title_full_unstemmed Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature
title_short Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature
title_sort living with hepatitis c virus a systematic review and narrative synthesis of qualitative literature
url http://dx.doi.org/10.1155/2017/3268650
work_keys_str_mv AT lauraedowsett livingwithhepatitiscvirusasystematicreviewandnarrativesynthesisofqualitativeliterature
AT stephaniecoward livingwithhepatitiscvirusasystematicreviewandnarrativesynthesisofqualitativeliterature
AT dianellorenzetti livingwithhepatitiscvirusasystematicreviewandnarrativesynthesisofqualitativeliterature
AT gailmackean livingwithhepatitiscvirusasystematicreviewandnarrativesynthesisofqualitativeliterature
AT fionaclement livingwithhepatitiscvirusasystematicreviewandnarrativesynthesisofqualitativeliterature