Understanding Daily, Emotional, and Physical Burdens and Needs of Parents Caring for Children with Type 1 Diabetes
Aims. To investigate (1) daily, emotional, and physical caregiving burdens in parents of children with type 1 diabetes, (2) the sociodemographic and clinical predictors of three burdens, and (3) support measures that parents wish to receive. Methods. The study was a multicenter cross-sectional surve...
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| Format: | Article |
| Language: | English |
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Wiley
2022-01-01
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| Series: | Journal of Diabetes Research |
| Online Access: | http://dx.doi.org/10.1155/2022/9604115 |
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| author | Heike Saßmann Su-Jong Kim-Dorner Verena Berndt Torben Biester Andrea Dehn-Hindenberg Bettina Heidtmann Norbert Jorch Eggert Lilienthal Nicole Nellen-Hellmuth Andreas Neu Katja Schaaf Ralph Ziegler Karin Lange |
| author_facet | Heike Saßmann Su-Jong Kim-Dorner Verena Berndt Torben Biester Andrea Dehn-Hindenberg Bettina Heidtmann Norbert Jorch Eggert Lilienthal Nicole Nellen-Hellmuth Andreas Neu Katja Schaaf Ralph Ziegler Karin Lange |
| author_sort | Heike Saßmann |
| collection | DOAJ |
| description | Aims. To investigate (1) daily, emotional, and physical caregiving burdens in parents of children with type 1 diabetes, (2) the sociodemographic and clinical predictors of three burdens, and (3) support measures that parents wish to receive. Methods. The study was a multicenter cross-sectional survey conducted in nine German pediatric diabetes centers. A questionnaire assessing three types of burdens and wishes for support was distributed to parents with a child with type 1 diabetes visiting one of the pediatric centers for a routine check-up. Results. Data from 1,107 parents (83% mothers) were analyzed. Parents reported significantly higher emotional burdens compared to daily and physical burdens (p<0.0001). Mothers felt more burdened than fathers did. Parents of younger children reported higher daily and physical burdens compared to the parents of older children, and similarly, parents of technology users reported higher daily and physical burdens compared to the parents of nontechnology users. However, emotional burdens did not differ in both comparisons. Other demographic factors (i.e., parent’s age, migration status, and single-parent family status) predicted high levels of daily or physical burdens, but only HbA1c level and the parent’s gender (mother) predicted a high emotional burden. Independent of the level of burden, 78% of parents wanted additional diabetes training. Conclusion. Despite parents reporting high emotional burdens in connection with diabetes care, HbA1c and the gender of the reporting parent were the only risk factors. As the child gets older, parents’ daily and physical distress decrease but not the emotional burden. Diabetes training including regularly offered booster sessions as well as low-threshold interventions for mental health issues and practical self-care skills is recommended to provide continuous support for parents. |
| format | Article |
| id | doaj-art-67381b1841ae469ebdc8f326b954566f |
| institution | Kabale University |
| issn | 2314-6753 |
| language | English |
| publishDate | 2022-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | Journal of Diabetes Research |
| spelling | doaj-art-67381b1841ae469ebdc8f326b954566f2025-02-03T01:02:22ZengWileyJournal of Diabetes Research2314-67532022-01-01202210.1155/2022/9604115Understanding Daily, Emotional, and Physical Burdens and Needs of Parents Caring for Children with Type 1 DiabetesHeike Saßmann0Su-Jong Kim-Dorner1Verena Berndt2Torben Biester3Andrea Dehn-Hindenberg4Bettina Heidtmann5Norbert Jorch6Eggert Lilienthal7Nicole Nellen-Hellmuth8Andreas Neu9Katja Schaaf10Ralph Ziegler11Karin Lange12Hannover Medical SchoolHannover Medical SchoolSana Hospital Group Berlin-BrandenburgChildren’s Hospital AUF DER BULTHannover Medical SchoolCatholic Children’s Hospital WilhelmstiftBielefeld UniversityUniversity Clinic Ruhr-University BochumLeopoldina-Hospital SchweinfurtEberhard Karls University TübingenElisabeth-Hospital-EssenDiabetes Clinic for Children and Adolescents MünsterHannover Medical SchoolAims. To investigate (1) daily, emotional, and physical caregiving burdens in parents of children with type 1 diabetes, (2) the sociodemographic and clinical predictors of three burdens, and (3) support measures that parents wish to receive. Methods. The study was a multicenter cross-sectional survey conducted in nine German pediatric diabetes centers. A questionnaire assessing three types of burdens and wishes for support was distributed to parents with a child with type 1 diabetes visiting one of the pediatric centers for a routine check-up. Results. Data from 1,107 parents (83% mothers) were analyzed. Parents reported significantly higher emotional burdens compared to daily and physical burdens (p<0.0001). Mothers felt more burdened than fathers did. Parents of younger children reported higher daily and physical burdens compared to the parents of older children, and similarly, parents of technology users reported higher daily and physical burdens compared to the parents of nontechnology users. However, emotional burdens did not differ in both comparisons. Other demographic factors (i.e., parent’s age, migration status, and single-parent family status) predicted high levels of daily or physical burdens, but only HbA1c level and the parent’s gender (mother) predicted a high emotional burden. Independent of the level of burden, 78% of parents wanted additional diabetes training. Conclusion. Despite parents reporting high emotional burdens in connection with diabetes care, HbA1c and the gender of the reporting parent were the only risk factors. As the child gets older, parents’ daily and physical distress decrease but not the emotional burden. Diabetes training including regularly offered booster sessions as well as low-threshold interventions for mental health issues and practical self-care skills is recommended to provide continuous support for parents.http://dx.doi.org/10.1155/2022/9604115 |
| spellingShingle | Heike Saßmann Su-Jong Kim-Dorner Verena Berndt Torben Biester Andrea Dehn-Hindenberg Bettina Heidtmann Norbert Jorch Eggert Lilienthal Nicole Nellen-Hellmuth Andreas Neu Katja Schaaf Ralph Ziegler Karin Lange Understanding Daily, Emotional, and Physical Burdens and Needs of Parents Caring for Children with Type 1 Diabetes Journal of Diabetes Research |
| title | Understanding Daily, Emotional, and Physical Burdens and Needs of Parents Caring for Children with Type 1 Diabetes |
| title_full | Understanding Daily, Emotional, and Physical Burdens and Needs of Parents Caring for Children with Type 1 Diabetes |
| title_fullStr | Understanding Daily, Emotional, and Physical Burdens and Needs of Parents Caring for Children with Type 1 Diabetes |
| title_full_unstemmed | Understanding Daily, Emotional, and Physical Burdens and Needs of Parents Caring for Children with Type 1 Diabetes |
| title_short | Understanding Daily, Emotional, and Physical Burdens and Needs of Parents Caring for Children with Type 1 Diabetes |
| title_sort | understanding daily emotional and physical burdens and needs of parents caring for children with type 1 diabetes |
| url | http://dx.doi.org/10.1155/2022/9604115 |
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