The Complexities of Navigating the Healthcare System as an Autistic Individual with Ehlers-Danlos Syndrome: A Patient Perspective

Autistic individuals with hypermobile Ehlers-Danlos syndrome (hEDS) often face unique challenges navigating healthcare systems due to lack of clinician awareness, diagnostic delays, misdiagnoses, and systemic barriers. Drawing on my own lived experience within the UK's National Health Service (...

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Bibliographic Details
Main Author: Sarah Clark
Format: Article
Language:English
Published: SAGE Publishing 2025-04-01
Series:Journal of Patient Experience
Online Access:https://doi.org/10.1177/23743735251333601
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