Experience of parents of children with congenital heart disease: feelings and obstacles
Objective: understand the meaning of the experiences of parents of children with congenital heart disease regarding feelings, obstacles and expectations. Methods: exploratory qualitative study conducted at a pediatric intensive care unit of a reference hospital. Participants corresponded to seven mo...
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| Format: | Article |
| Language: | English |
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Universidade Federal do Ceará
2016-02-01
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| Series: | Rev Rene |
| Subjects: | |
| Online Access: | https://periodicos.ufc.br/rene/article/view/2614 |
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| author | Thaís Sena Mombach Barreto Victória Tiyoko Moraes Sakamoto Jardel Scremin Magagnin Débora Fernandes Coelho Roberta Waterkemper Simone Travi Canabarro |
| author_facet | Thaís Sena Mombach Barreto Victória Tiyoko Moraes Sakamoto Jardel Scremin Magagnin Débora Fernandes Coelho Roberta Waterkemper Simone Travi Canabarro |
| author_sort | Thaís Sena Mombach Barreto |
| collection | DOAJ |
| description | Objective: understand the meaning of the experiences of parents of children with congenital heart disease regarding feelings, obstacles and expectations. Methods: exploratory qualitative study conducted at a pediatric intensive care unit of a reference hospital. Participants corresponded to seven mothers and four fathers of children with congenital heart defect, surgically corrected and with more than 8 hours of admission, totalling 11 participants. Data collection was performed through semi-structured individual recorded interviews. Data were described according to thematic content analysis. Results: five thematic categories emerged: (1) unpreparedness to face the problem; (2) feelings involved (3) factors that make difficult to face the problem; (4) factors that facilitate facing the problem; (5) spirituality. Conclusion: each family is unique and needs support to better face the disease and its process. It is essential to develop interdisciplinary network support, providing comprehensive care. |
| format | Article |
| id | doaj-art-60d223e43e1b4e3f92d4c8a1e4a9dca7 |
| institution | Kabale University |
| issn | 1517-3852 2175-6783 |
| language | English |
| publishDate | 2016-02-01 |
| publisher | Universidade Federal do Ceará |
| record_format | Article |
| series | Rev Rene |
| spelling | doaj-art-60d223e43e1b4e3f92d4c8a1e4a9dca72025-08-20T12:55:56ZengUniversidade Federal do CearáRev Rene1517-38522175-67832016-02-01171Experience of parents of children with congenital heart disease: feelings and obstaclesThaís Sena Mombach BarretoVictória Tiyoko Moraes SakamotoJardel Scremin MagagninDébora Fernandes CoelhoRoberta WaterkemperSimone Travi CanabarroObjective: understand the meaning of the experiences of parents of children with congenital heart disease regarding feelings, obstacles and expectations. Methods: exploratory qualitative study conducted at a pediatric intensive care unit of a reference hospital. Participants corresponded to seven mothers and four fathers of children with congenital heart defect, surgically corrected and with more than 8 hours of admission, totalling 11 participants. Data collection was performed through semi-structured individual recorded interviews. Data were described according to thematic content analysis. Results: five thematic categories emerged: (1) unpreparedness to face the problem; (2) feelings involved (3) factors that make difficult to face the problem; (4) factors that facilitate facing the problem; (5) spirituality. Conclusion: each family is unique and needs support to better face the disease and its process. It is essential to develop interdisciplinary network support, providing comprehensive care.https://periodicos.ufc.br/rene/article/view/2614Heart DefectsCongenitalChildHospitalizedCongenital AbnormalitiesParents. |
| spellingShingle | Thaís Sena Mombach Barreto Victória Tiyoko Moraes Sakamoto Jardel Scremin Magagnin Débora Fernandes Coelho Roberta Waterkemper Simone Travi Canabarro Experience of parents of children with congenital heart disease: feelings and obstacles Rev Rene Heart Defects Congenital Child Hospitalized Congenital Abnormalities Parents. |
| title | Experience of parents of children with congenital heart disease: feelings and obstacles |
| title_full | Experience of parents of children with congenital heart disease: feelings and obstacles |
| title_fullStr | Experience of parents of children with congenital heart disease: feelings and obstacles |
| title_full_unstemmed | Experience of parents of children with congenital heart disease: feelings and obstacles |
| title_short | Experience of parents of children with congenital heart disease: feelings and obstacles |
| title_sort | experience of parents of children with congenital heart disease feelings and obstacles |
| topic | Heart Defects Congenital Child Hospitalized Congenital Abnormalities Parents. |
| url | https://periodicos.ufc.br/rene/article/view/2614 |
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