Development and Validation of an Egocentric Social Network Questionnaire for Parents of Children with Autism Spectrum Disorder

ObjectiveAn egocentric social network questionnaire for parents of children with autism spectrum disorder(ASD) in China was preliminarily developed and tested for its reliability and validity, so as to facilitate the evaluation of parents' social networks and follow-up research.MethodsA conveni...

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Main Authors: PAN Yuanyuan, LIU Qianqi, LIANG Minlu, WU Dandan, LIN Feng
Format: Article
Language:English
Published: Editorial Office of Rehabilitation Medicine 2025-02-01
Series:康复学报
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Online Access:http://kfxb.publish.founderss.cn/thesisDetails#10.3724/SP.J.1329.2025.01004
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author PAN Yuanyuan
LIU Qianqi
LIANG Minlu
WU Dandan
LIN Feng
author_facet PAN Yuanyuan
LIU Qianqi
LIANG Minlu
WU Dandan
LIN Feng
author_sort PAN Yuanyuan
collection DOAJ
description ObjectiveAn egocentric social network questionnaire for parents of children with autism spectrum disorder(ASD) in China was preliminarily developed and tested for its reliability and validity, so as to facilitate the evaluation of parents' social networks and follow-up research.MethodsA convenience sample of 123 parents of children with ASD who visited the Department of Child Health at Children's Hospital of Nanjing Medical University, from August 2022 to March 2024 were selected as the study subjects. The general data questionnaire, egocentric social network questionnaire and perceived social support scale were used to conduct the survey. Trained rehabilitation therapists and psychotherapists guided parents filled out the questionnaires. The egocentric social network questionnaire was designed using nomination generation and nomination interpretation methods. The questionnaire first required parents to nominate people who supported them in raising their children, and then answer other questions related to the nominated persons, such as network size, interaction frequency, geographic distance, satisfaction level, and type of support. The questionnaire assigned weight values based on the social relationship distance between parents and the nominated persons and scored the answers. Cronbach's α coefficient and McDonald's ω coefficient were used to verify the reliability of the egocentric social network questionnaire. With perceived social support scale as the criterion, Pearson correlation analysis was used to evaluate the validity of the egocentric social network questionnaire.ResultsThe egocentric social network questionnaire for parents of children with ASD showed good reliability and validity. The Cronbach's α coefficient was 0.914 for the total score of the questionnaire, 0.937 for the network size, 0.861 for the interaction frequency, 0.886 for the geographic distance, 0.874 for the satisfaction level, and 0.895 for the type of support. The McDonald's ω coefficient for the total score of the questionnaire was 0.964. The Pearson correlation coefficients <italic>r</italic> values between the network size, interaction frequency, geographic distance, type of support, satisfaction level and total score of the questionnaire and the total score of the perceived social support scale were 0.51, 0.52, 0.49, 0.58, 0.49 and 0.56, all with <italic>P</italic>&lt;0.001,indicating strong correlations.ConclusionThe egocentric social network questionnaire for parents of children with ASD has good reliability and validity. The questionnaire evaluation method is simple and time-saving, with good practicality and practicality, and can be used as an evaluation tool for the social network of parents of children with ASD in China. However, it is still necessary to expand the sample size and further improve the questionnaire for future research and application.
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spelling doaj-art-512e50cfa29e4faaa0c6d9d99fc4e1c82025-08-20T03:30:09ZengEditorial Office of Rehabilitation Medicine康复学报2096-03282025-02-0135303587759249Development and Validation of an Egocentric Social Network Questionnaire for Parents of Children with Autism Spectrum DisorderPAN YuanyuanLIU QianqiLIANG MinluWU DandanLIN FengObjectiveAn egocentric social network questionnaire for parents of children with autism spectrum disorder(ASD) in China was preliminarily developed and tested for its reliability and validity, so as to facilitate the evaluation of parents' social networks and follow-up research.MethodsA convenience sample of 123 parents of children with ASD who visited the Department of Child Health at Children's Hospital of Nanjing Medical University, from August 2022 to March 2024 were selected as the study subjects. The general data questionnaire, egocentric social network questionnaire and perceived social support scale were used to conduct the survey. Trained rehabilitation therapists and psychotherapists guided parents filled out the questionnaires. The egocentric social network questionnaire was designed using nomination generation and nomination interpretation methods. The questionnaire first required parents to nominate people who supported them in raising their children, and then answer other questions related to the nominated persons, such as network size, interaction frequency, geographic distance, satisfaction level, and type of support. The questionnaire assigned weight values based on the social relationship distance between parents and the nominated persons and scored the answers. Cronbach's α coefficient and McDonald's ω coefficient were used to verify the reliability of the egocentric social network questionnaire. With perceived social support scale as the criterion, Pearson correlation analysis was used to evaluate the validity of the egocentric social network questionnaire.ResultsThe egocentric social network questionnaire for parents of children with ASD showed good reliability and validity. The Cronbach's α coefficient was 0.914 for the total score of the questionnaire, 0.937 for the network size, 0.861 for the interaction frequency, 0.886 for the geographic distance, 0.874 for the satisfaction level, and 0.895 for the type of support. The McDonald's ω coefficient for the total score of the questionnaire was 0.964. The Pearson correlation coefficients <italic>r</italic> values between the network size, interaction frequency, geographic distance, type of support, satisfaction level and total score of the questionnaire and the total score of the perceived social support scale were 0.51, 0.52, 0.49, 0.58, 0.49 and 0.56, all with <italic>P</italic>&lt;0.001,indicating strong correlations.ConclusionThe egocentric social network questionnaire for parents of children with ASD has good reliability and validity. The questionnaire evaluation method is simple and time-saving, with good practicality and practicality, and can be used as an evaluation tool for the social network of parents of children with ASD in China. However, it is still necessary to expand the sample size and further improve the questionnaire for future research and application.http://kfxb.publish.founderss.cn/thesisDetails#10.3724/SP.J.1329.2025.01004autism spectrum disorderparents of childrensocial network questionnairesocial supportquestionnaire developmentreliability and validity
spellingShingle PAN Yuanyuan
LIU Qianqi
LIANG Minlu
WU Dandan
LIN Feng
Development and Validation of an Egocentric Social Network Questionnaire for Parents of Children with Autism Spectrum Disorder
康复学报
autism spectrum disorder
parents of children
social network questionnaire
social support
questionnaire development
reliability and validity
title Development and Validation of an Egocentric Social Network Questionnaire for Parents of Children with Autism Spectrum Disorder
title_full Development and Validation of an Egocentric Social Network Questionnaire for Parents of Children with Autism Spectrum Disorder
title_fullStr Development and Validation of an Egocentric Social Network Questionnaire for Parents of Children with Autism Spectrum Disorder
title_full_unstemmed Development and Validation of an Egocentric Social Network Questionnaire for Parents of Children with Autism Spectrum Disorder
title_short Development and Validation of an Egocentric Social Network Questionnaire for Parents of Children with Autism Spectrum Disorder
title_sort development and validation of an egocentric social network questionnaire for parents of children with autism spectrum disorder
topic autism spectrum disorder
parents of children
social network questionnaire
social support
questionnaire development
reliability and validity
url http://kfxb.publish.founderss.cn/thesisDetails#10.3724/SP.J.1329.2025.01004
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AT wudandan developmentandvalidationofanegocentricsocialnetworkquestionnaireforparentsofchildrenwithautismspectrumdisorder
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