The Significance of a Cerebrovascular Accident Outcome Prediction Model for Patients, Family Members, and Health Care Professionals: Qualitative Evaluation Study
BackgroundPatients with cerebrovascular accident (CVA) should be involved in setting their rehabilitation goals. A personalized prediction of CVA outcomes would allow care professionals to better inform patients and informal caregivers. Several accurate prediction models have...
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| Format: | Article |
| Language: | English |
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JMIR Publications
2025-01-01
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| Series: | JMIR Human Factors |
| Online Access: | https://humanfactors.jmir.org/2025/1/e56521 |
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| author | Corinne G Allaart Sanne van Houwelingen Pieter HE Hilkens Aart van Halteren Douwe H Biesma Lea Dijksman Paul B van der Nat |
| author_facet | Corinne G Allaart Sanne van Houwelingen Pieter HE Hilkens Aart van Halteren Douwe H Biesma Lea Dijksman Paul B van der Nat |
| author_sort | Corinne G Allaart |
| collection | DOAJ |
| description |
BackgroundPatients with cerebrovascular accident (CVA) should be involved in setting their rehabilitation goals. A personalized prediction of CVA outcomes would allow care professionals to better inform patients and informal caregivers. Several accurate prediction models have been created, but acceptance and proper implementation of the models are prerequisites for model adoption.
ObjectiveThis study aimed to assess the added value of a prediction model for long-term outcomes of rehabilitation after CVA and evaluate how it can best be displayed, implemented, and integrated into the care process.
MethodsWe designed a mock-up version, including visualizations, based on our recently developed prediction model. We conducted focus groups with CVA patients and informal caregivers, and separate focus groups with health care professionals (HCPs). Their opinions on the current information management and the model were analyzed using a thematic analysis approach. Lastly, a Measurement Instrument for Determinants of Innovations (MIDI) questionnaire was used to collect insights into the prediction model and visualizations with HCPs.
ResultsThe analysis of 6 focus groups, with 9 patients, 4 informal caregivers, and 8 HCPs, resulted in 10 themes in 3 categories: evaluation of the current care process (information absorption, expectations of rehabilitation, prediction of outcomes, and decision aid), content of the prediction model (reliability, relevance, and influence on the care process), and accessibility of the model (ease of understanding, model type preference, and moment of use). We extracted recommendations for the prediction model and visualizations. The results of the questionnaire survey (9 responses, 56% response rate) underscored the themes of the focus groups.
ConclusionsThere is a need for the use of a prediction model to assess CVA outcomes, as indicated by the general approval of participants in both the focus groups and the questionnaire survey. We recommend that the prediction model be geared toward HCPs, as they can provide the context necessary for patients and informal caregivers. Good reliability and relevance of the prediction model will be essential for its wide adoption. |
| format | Article |
| id | doaj-art-468b411066ca42feaad210b36fd65127 |
| institution | Kabale University |
| issn | 2292-9495 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | JMIR Human Factors |
| spelling | doaj-art-468b411066ca42feaad210b36fd651272025-01-22T21:31:00ZengJMIR PublicationsJMIR Human Factors2292-94952025-01-0112e5652110.2196/56521The Significance of a Cerebrovascular Accident Outcome Prediction Model for Patients, Family Members, and Health Care Professionals: Qualitative Evaluation StudyCorinne G Allaarthttps://orcid.org/0000-0002-5262-3723Sanne van Houwelingenhttps://orcid.org/0009-0004-4786-5498Pieter HE Hilkenshttps://orcid.org/0009-0002-2344-9348Aart van Halterenhttps://orcid.org/0000-0002-9631-0657Douwe H Biesmahttps://orcid.org/0000-0001-8334-3057Lea Dijksmanhttps://orcid.org/0000-0001-9227-1390Paul B van der Nathttps://orcid.org/0000-0002-0990-073X BackgroundPatients with cerebrovascular accident (CVA) should be involved in setting their rehabilitation goals. A personalized prediction of CVA outcomes would allow care professionals to better inform patients and informal caregivers. Several accurate prediction models have been created, but acceptance and proper implementation of the models are prerequisites for model adoption. ObjectiveThis study aimed to assess the added value of a prediction model for long-term outcomes of rehabilitation after CVA and evaluate how it can best be displayed, implemented, and integrated into the care process. MethodsWe designed a mock-up version, including visualizations, based on our recently developed prediction model. We conducted focus groups with CVA patients and informal caregivers, and separate focus groups with health care professionals (HCPs). Their opinions on the current information management and the model were analyzed using a thematic analysis approach. Lastly, a Measurement Instrument for Determinants of Innovations (MIDI) questionnaire was used to collect insights into the prediction model and visualizations with HCPs. ResultsThe analysis of 6 focus groups, with 9 patients, 4 informal caregivers, and 8 HCPs, resulted in 10 themes in 3 categories: evaluation of the current care process (information absorption, expectations of rehabilitation, prediction of outcomes, and decision aid), content of the prediction model (reliability, relevance, and influence on the care process), and accessibility of the model (ease of understanding, model type preference, and moment of use). We extracted recommendations for the prediction model and visualizations. The results of the questionnaire survey (9 responses, 56% response rate) underscored the themes of the focus groups. ConclusionsThere is a need for the use of a prediction model to assess CVA outcomes, as indicated by the general approval of participants in both the focus groups and the questionnaire survey. We recommend that the prediction model be geared toward HCPs, as they can provide the context necessary for patients and informal caregivers. Good reliability and relevance of the prediction model will be essential for its wide adoption.https://humanfactors.jmir.org/2025/1/e56521 |
| spellingShingle | Corinne G Allaart Sanne van Houwelingen Pieter HE Hilkens Aart van Halteren Douwe H Biesma Lea Dijksman Paul B van der Nat The Significance of a Cerebrovascular Accident Outcome Prediction Model for Patients, Family Members, and Health Care Professionals: Qualitative Evaluation Study JMIR Human Factors |
| title | The Significance of a Cerebrovascular Accident Outcome Prediction Model for Patients, Family Members, and Health Care Professionals: Qualitative Evaluation Study |
| title_full | The Significance of a Cerebrovascular Accident Outcome Prediction Model for Patients, Family Members, and Health Care Professionals: Qualitative Evaluation Study |
| title_fullStr | The Significance of a Cerebrovascular Accident Outcome Prediction Model for Patients, Family Members, and Health Care Professionals: Qualitative Evaluation Study |
| title_full_unstemmed | The Significance of a Cerebrovascular Accident Outcome Prediction Model for Patients, Family Members, and Health Care Professionals: Qualitative Evaluation Study |
| title_short | The Significance of a Cerebrovascular Accident Outcome Prediction Model for Patients, Family Members, and Health Care Professionals: Qualitative Evaluation Study |
| title_sort | significance of a cerebrovascular accident outcome prediction model for patients family members and health care professionals qualitative evaluation study |
| url | https://humanfactors.jmir.org/2025/1/e56521 |
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