Living, Caring, Learning - Building family relationships in haemophilia care
With over 35 years’ experience of paediatric nursing, almost half of which she has spent in haemophilia care, Robyn reflects on the importance of taking a family-focused approach and engaging with parents and caregivers. She describes her experience of providing care for a family with two boys with...
Saved in:
| Main Author: | |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Sciendo
2024-02-01
|
| Series: | The Journal of Haemophilia Practice |
| Subjects: | |
| Online Access: | https://doi.org/10.2478/jhp-2024-0002 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1832570296747425792 |
|---|---|
| author | Shoemark Robyn |
| author_facet | Shoemark Robyn |
| author_sort | Shoemark Robyn |
| collection | DOAJ |
| description | With over 35 years’ experience of paediatric nursing, almost half of which she has spent in haemophilia care, Robyn reflects on the importance of taking a family-focused approach and engaging with parents and caregivers. She describes her experience of providing care for a family with two boys with severe haemophilia A and inhibitors, and how listening to and working closely with the parents enabled good outcomes. Robyn points to the central role of nursepatient relationship in haemophilia care but highlights the importance of ensuring that this close therapeutic relationship remains professional. |
| format | Article |
| id | doaj-art-3ffc35100b7e425398c976b985e226b5 |
| institution | Kabale University |
| issn | 2055-3390 |
| language | English |
| publishDate | 2024-02-01 |
| publisher | Sciendo |
| record_format | Article |
| series | The Journal of Haemophilia Practice |
| spelling | doaj-art-3ffc35100b7e425398c976b985e226b52025-02-02T15:48:30ZengSciendoThe Journal of Haemophilia Practice2055-33902024-02-01111141610.2478/jhp-2024-0002Living, Caring, Learning - Building family relationships in haemophilia careShoemark Robyn0Children’s Hospital at Westmead, Sydney, AustraliaWith over 35 years’ experience of paediatric nursing, almost half of which she has spent in haemophilia care, Robyn reflects on the importance of taking a family-focused approach and engaging with parents and caregivers. She describes her experience of providing care for a family with two boys with severe haemophilia A and inhibitors, and how listening to and working closely with the parents enabled good outcomes. Robyn points to the central role of nursepatient relationship in haemophilia care but highlights the importance of ensuring that this close therapeutic relationship remains professional.https://doi.org/10.2478/jhp-2024-0002haemophiliainhibitorsnursestherapeutic relationshipprofessional practice |
| spellingShingle | Shoemark Robyn Living, Caring, Learning - Building family relationships in haemophilia care The Journal of Haemophilia Practice haemophilia inhibitors nurses therapeutic relationship professional practice |
| title | Living, Caring, Learning - Building family relationships in haemophilia care |
| title_full | Living, Caring, Learning - Building family relationships in haemophilia care |
| title_fullStr | Living, Caring, Learning - Building family relationships in haemophilia care |
| title_full_unstemmed | Living, Caring, Learning - Building family relationships in haemophilia care |
| title_short | Living, Caring, Learning - Building family relationships in haemophilia care |
| title_sort | living caring learning building family relationships in haemophilia care |
| topic | haemophilia inhibitors nurses therapeutic relationship professional practice |
| url | https://doi.org/10.2478/jhp-2024-0002 |
| work_keys_str_mv | AT shoemarkrobyn livingcaringlearningbuildingfamilyrelationshipsinhaemophiliacare |