Quality of integrated female oncofertility care is suboptimal: A patient‐reported measurement

Abstract Background Clinical practice guidelines recommend to inform female cancer patients about their infertility risks due to cancer treatment. Unfortunately, it seems that guideline adherence is suboptimal. In order to improve quality of integrated female oncofertility care, a systematic assessm...

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Main Authors: Michelle van denBerg, Suzanne E. J. Kaal, Teska N. Schuurman, Didi D. M. Braat, Caroline M. P. W. Mandigers, Jolien Tol, Jacqueline M. Tromp, Maurice J. D. L. van derVorst, Catharina C. M. Beerendonk, Rosella P. M. G. Hermens
Format: Article
Language:English
Published: Wiley 2023-02-01
Series:Cancer Medicine
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Online Access:https://doi.org/10.1002/cam4.5149
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author Michelle van denBerg
Suzanne E. J. Kaal
Teska N. Schuurman
Didi D. M. Braat
Caroline M. P. W. Mandigers
Jolien Tol
Jacqueline M. Tromp
Maurice J. D. L. van derVorst
Catharina C. M. Beerendonk
Rosella P. M. G. Hermens
author_facet Michelle van denBerg
Suzanne E. J. Kaal
Teska N. Schuurman
Didi D. M. Braat
Caroline M. P. W. Mandigers
Jolien Tol
Jacqueline M. Tromp
Maurice J. D. L. van derVorst
Catharina C. M. Beerendonk
Rosella P. M. G. Hermens
author_sort Michelle van denBerg
collection DOAJ
description Abstract Background Clinical practice guidelines recommend to inform female cancer patients about their infertility risks due to cancer treatment. Unfortunately, it seems that guideline adherence is suboptimal. In order to improve quality of integrated female oncofertility care, a systematic assessment of current practice is necessary. Methods A multicenter cross‐sectional survey study in which a set of systematically developed quality indicators was processed, was conducted among female cancer patients (diagnosed in 2016/2017). These indicators represented all domains in oncofertility care; risk communication, referral, counseling, and decision‐making. Indicator scores were calculated, and determinants were assessed by multilevel multivariate analyses. Results One hundred twenty‐one out of 344 female cancer patients participated. Eight out of 11 indicators scored below 90% adherence. Of all patients, 72.7% was informed about their infertility, 51.2% was offered a referral, with 18.8% all aspects were discussed in counseling, and 35.5% received written and/or digital information. Patient's age, strength of wish to conceive, time before cancer treatment, and type of healthcare provider significantly influenced the scores of three indicators. Conclusions Current quality of female oncofertility care is far from optimal. Therefore, improvement is needed. To achieve this, improvement strategies that are tailored to the identified determinants and to guideline‐specific barriers should be developed.
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spelling doaj-art-3fcdea6bf9d24971a34945c8dd68a4302025-08-20T02:33:05ZengWileyCancer Medicine2045-76342023-02-011232691270110.1002/cam4.5149Quality of integrated female oncofertility care is suboptimal: A patient‐reported measurementMichelle van denBerg0Suzanne E. J. Kaal1Teska N. Schuurman2Didi D. M. Braat3Caroline M. P. W. Mandigers4Jolien Tol5Jacqueline M. Tromp6Maurice J. D. L. van derVorst7Catharina C. M. Beerendonk8Rosella P. M. G. Hermens9Department of Obstetrics and Gynecology Radboud University Medical Center Nijmegen the NetherlandsDepartment of Medical Oncology Radboud University Medical Center Nijmegen the NetherlandsCenter for Gynecologic Oncology Amsterdam The Netherlands Cancer Institute‐Antoni van Leeuwenhoek Hospital Amsterdam The NetherlandsDepartment of Obstetrics and Gynecology Radboud University Medical Center Nijmegen the NetherlandsDepartment of Medical Oncology, Canisius‐Wilhelmina Hospital Nijmegen The NetherlandsDepartment of Medical Oncology, Jeroen Bosch Hospital Den Bosch The NetherlandsDutch AYA ‘Young and Cancer’ Care Network IKNL Utrecht the NetherlandsDepartment of Medical Oncology, Rijnstate Hospital Arnhem The NetherlandsDepartment of Obstetrics and Gynecology Radboud University Medical Center Nijmegen the NetherlandsDepartment of IQ Healthcare Radboud University Medical Center Nijmegen the NetherlandsAbstract Background Clinical practice guidelines recommend to inform female cancer patients about their infertility risks due to cancer treatment. Unfortunately, it seems that guideline adherence is suboptimal. In order to improve quality of integrated female oncofertility care, a systematic assessment of current practice is necessary. Methods A multicenter cross‐sectional survey study in which a set of systematically developed quality indicators was processed, was conducted among female cancer patients (diagnosed in 2016/2017). These indicators represented all domains in oncofertility care; risk communication, referral, counseling, and decision‐making. Indicator scores were calculated, and determinants were assessed by multilevel multivariate analyses. Results One hundred twenty‐one out of 344 female cancer patients participated. Eight out of 11 indicators scored below 90% adherence. Of all patients, 72.7% was informed about their infertility, 51.2% was offered a referral, with 18.8% all aspects were discussed in counseling, and 35.5% received written and/or digital information. Patient's age, strength of wish to conceive, time before cancer treatment, and type of healthcare provider significantly influenced the scores of three indicators. Conclusions Current quality of female oncofertility care is far from optimal. Therefore, improvement is needed. To achieve this, improvement strategies that are tailored to the identified determinants and to guideline‐specific barriers should be developed.https://doi.org/10.1002/cam4.5149cancerfemale cancer patientsoncofertility carequality indicatorsquality of care
spellingShingle Michelle van denBerg
Suzanne E. J. Kaal
Teska N. Schuurman
Didi D. M. Braat
Caroline M. P. W. Mandigers
Jolien Tol
Jacqueline M. Tromp
Maurice J. D. L. van derVorst
Catharina C. M. Beerendonk
Rosella P. M. G. Hermens
Quality of integrated female oncofertility care is suboptimal: A patient‐reported measurement
Cancer Medicine
cancer
female cancer patients
oncofertility care
quality indicators
quality of care
title Quality of integrated female oncofertility care is suboptimal: A patient‐reported measurement
title_full Quality of integrated female oncofertility care is suboptimal: A patient‐reported measurement
title_fullStr Quality of integrated female oncofertility care is suboptimal: A patient‐reported measurement
title_full_unstemmed Quality of integrated female oncofertility care is suboptimal: A patient‐reported measurement
title_short Quality of integrated female oncofertility care is suboptimal: A patient‐reported measurement
title_sort quality of integrated female oncofertility care is suboptimal a patient reported measurement
topic cancer
female cancer patients
oncofertility care
quality indicators
quality of care
url https://doi.org/10.1002/cam4.5149
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