Health and Experiences During the COVID-19 Pandemic Among Children and Young People: Analysis of Free-Text Responses From the Children and Young People With Long COVID Study

BackgroundThe literature is equivocal as to whether the predicted negative mental health impact of the COVID-19 pandemic came to fruition. Some quantitative studies report increased emotional problems and depression; others report improved mental health and well-being. Qualit...

Full description

Saved in:
Bibliographic Details
Main Authors: Natalia K Rojas, Sam Martin, Mario Cortina-Borja, Roz Shafran, Lana Fox-Smith, Terence Stephenson, Brian C F Ching, Anaïs d'Oelsnitz, Tom Norris, Yue Xu, Kelsey McOwat, Emma Dalrymple, Isobel Heyman, Tamsin Ford, Trudie Chalder, Ruth Simmons, Snehal M Pinto Pereira
Format: Article
Language:English
Published: JMIR Publications 2025-01-01
Series:Journal of Medical Internet Research
Online Access:https://www.jmir.org/2025/1/e63634
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1832583291679539200
author Natalia K Rojas
Sam Martin
Mario Cortina-Borja
Roz Shafran
Lana Fox-Smith
Terence Stephenson
Brian C F Ching
Anaïs d'Oelsnitz
Tom Norris
Yue Xu
Kelsey McOwat
Emma Dalrymple
Isobel Heyman
Tamsin Ford
Trudie Chalder
Ruth Simmons
Snehal M Pinto Pereira
author_facet Natalia K Rojas
Sam Martin
Mario Cortina-Borja
Roz Shafran
Lana Fox-Smith
Terence Stephenson
Brian C F Ching
Anaïs d'Oelsnitz
Tom Norris
Yue Xu
Kelsey McOwat
Emma Dalrymple
Isobel Heyman
Tamsin Ford
Trudie Chalder
Ruth Simmons
Snehal M Pinto Pereira
author_sort Natalia K Rojas
collection DOAJ
description BackgroundThe literature is equivocal as to whether the predicted negative mental health impact of the COVID-19 pandemic came to fruition. Some quantitative studies report increased emotional problems and depression; others report improved mental health and well-being. Qualitative explorations reveal heterogeneity, with themes ranging from feelings of loss to growth and development. ObjectiveThis study aims to analyze free-text responses from children and young people participating in the Children and Young People With Long COVID study to get a clearer understanding of how young people were feeling during the pandemic. MethodsA total of 8224 free-text responses from children and young people were analyzed using InfraNodus, an artificial intelligence–powered text network analysis tool, to determine the most prevalent topics. A random subsample of 411 (5%) of the 8224 responses underwent a manual sentiment analysis; this was reweighted to represent the general population of children and young people in England. ResultsExperiences fell into 6 main overlapping topical clusters: school, examination stress, mental health, emotional impact of the pandemic, social and family support, and physical health (including COVID-19 symptoms). Sentiment analysis showed that statements were largely negative (314/411, 76.4%), with a small proportion being positive (57/411, 13.9%). Those reporting negative sentiment were mostly female (227/314, 72.3%), while those reporting positive sentiment were mostly older (170/314, 54.1%). There were significant observed associations between sentiment and COVID-19 status as well as sex (P=.001 and P<.001, respectively) such that the majority of the responses, regardless of COVID-19 status or sex, were negative; for example, 84.1% (227/270) of the responses from female individuals and 61.7% (87/141) of those from male individuals were negative. There were no observed associations between sentiment and all other examined demographics. The results were broadly similar when reweighted to the general population of children and young people in England: 78.52% (negative), 13.23% (positive), and 8.24% (neutral). ConclusionsWe used InfraNodus to analyze free-text responses from a large sample of children and young people. The majority of responses (314/411, 76.4%) were negative, and many of the children and young people reported experiencing distress across a range of domains related to school, social situations, and mental health. Our findings add to the literature, highlighting the importance of specific considerations for children and young people when responding to national emergencies.
format Article
id doaj-art-3b8eed6515454ddba3350ecda18e549c
institution Kabale University
issn 1438-8871
language English
publishDate 2025-01-01
publisher JMIR Publications
record_format Article
series Journal of Medical Internet Research
spelling doaj-art-3b8eed6515454ddba3350ecda18e549c2025-01-28T18:15:36ZengJMIR PublicationsJournal of Medical Internet Research1438-88712025-01-0127e6363410.2196/63634Health and Experiences During the COVID-19 Pandemic Among Children and Young People: Analysis of Free-Text Responses From the Children and Young People With Long COVID StudyNatalia K Rojashttps://orcid.org/0000-0002-6615-9618Sam Martinhttps://orcid.org/0000-0002-4466-8374Mario Cortina-Borjahttps://orcid.org/0000-0003-0627-2624Roz Shafranhttps://orcid.org/0000-0003-2729-4961Lana Fox-Smithhttps://orcid.org/0000-0002-7434-2762Terence Stephensonhttps://orcid.org/0000-0001-8871-7847Brian C F Chinghttps://orcid.org/0000-0002-2179-9793Anaïs d'Oelsnitzhttps://orcid.org/0009-0000-0770-3049Tom Norrishttps://orcid.org/0000-0002-9140-0776Yue Xuhttps://orcid.org/0000-0001-5239-7378Kelsey McOwathttps://orcid.org/0000-0003-4170-1498Emma Dalrymplehttps://orcid.org/0000-0002-6645-932XIsobel Heymanhttps://orcid.org/0000-0001-7358-9766Tamsin Fordhttps://orcid.org/0000-0001-5295-4904Trudie Chalderhttps://orcid.org/0000-0003-0775-1045Ruth Simmonshttps://orcid.org/0000-0001-8156-0146Snehal M Pinto Pereirahttps://orcid.org/0000-0002-0876-8757 BackgroundThe literature is equivocal as to whether the predicted negative mental health impact of the COVID-19 pandemic came to fruition. Some quantitative studies report increased emotional problems and depression; others report improved mental health and well-being. Qualitative explorations reveal heterogeneity, with themes ranging from feelings of loss to growth and development. ObjectiveThis study aims to analyze free-text responses from children and young people participating in the Children and Young People With Long COVID study to get a clearer understanding of how young people were feeling during the pandemic. MethodsA total of 8224 free-text responses from children and young people were analyzed using InfraNodus, an artificial intelligence–powered text network analysis tool, to determine the most prevalent topics. A random subsample of 411 (5%) of the 8224 responses underwent a manual sentiment analysis; this was reweighted to represent the general population of children and young people in England. ResultsExperiences fell into 6 main overlapping topical clusters: school, examination stress, mental health, emotional impact of the pandemic, social and family support, and physical health (including COVID-19 symptoms). Sentiment analysis showed that statements were largely negative (314/411, 76.4%), with a small proportion being positive (57/411, 13.9%). Those reporting negative sentiment were mostly female (227/314, 72.3%), while those reporting positive sentiment were mostly older (170/314, 54.1%). There were significant observed associations between sentiment and COVID-19 status as well as sex (P=.001 and P<.001, respectively) such that the majority of the responses, regardless of COVID-19 status or sex, were negative; for example, 84.1% (227/270) of the responses from female individuals and 61.7% (87/141) of those from male individuals were negative. There were no observed associations between sentiment and all other examined demographics. The results were broadly similar when reweighted to the general population of children and young people in England: 78.52% (negative), 13.23% (positive), and 8.24% (neutral). ConclusionsWe used InfraNodus to analyze free-text responses from a large sample of children and young people. The majority of responses (314/411, 76.4%) were negative, and many of the children and young people reported experiencing distress across a range of domains related to school, social situations, and mental health. Our findings add to the literature, highlighting the importance of specific considerations for children and young people when responding to national emergencies.https://www.jmir.org/2025/1/e63634
spellingShingle Natalia K Rojas
Sam Martin
Mario Cortina-Borja
Roz Shafran
Lana Fox-Smith
Terence Stephenson
Brian C F Ching
Anaïs d'Oelsnitz
Tom Norris
Yue Xu
Kelsey McOwat
Emma Dalrymple
Isobel Heyman
Tamsin Ford
Trudie Chalder
Ruth Simmons
Snehal M Pinto Pereira
Health and Experiences During the COVID-19 Pandemic Among Children and Young People: Analysis of Free-Text Responses From the Children and Young People With Long COVID Study
Journal of Medical Internet Research
title Health and Experiences During the COVID-19 Pandemic Among Children and Young People: Analysis of Free-Text Responses From the Children and Young People With Long COVID Study
title_full Health and Experiences During the COVID-19 Pandemic Among Children and Young People: Analysis of Free-Text Responses From the Children and Young People With Long COVID Study
title_fullStr Health and Experiences During the COVID-19 Pandemic Among Children and Young People: Analysis of Free-Text Responses From the Children and Young People With Long COVID Study
title_full_unstemmed Health and Experiences During the COVID-19 Pandemic Among Children and Young People: Analysis of Free-Text Responses From the Children and Young People With Long COVID Study
title_short Health and Experiences During the COVID-19 Pandemic Among Children and Young People: Analysis of Free-Text Responses From the Children and Young People With Long COVID Study
title_sort health and experiences during the covid 19 pandemic among children and young people analysis of free text responses from the children and young people with long covid study
url https://www.jmir.org/2025/1/e63634
work_keys_str_mv AT nataliakrojas healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT sammartin healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT mariocortinaborja healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT rozshafran healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT lanafoxsmith healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT terencestephenson healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT briancfching healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT anaisdoelsnitz healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT tomnorris healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT yuexu healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT kelseymcowat healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT emmadalrymple healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT isobelheyman healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT tamsinford healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT trudiechalder healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT ruthsimmons healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy
AT snehalmpintopereira healthandexperiencesduringthecovid19pandemicamongchildrenandyoungpeopleanalysisoffreetextresponsesfromthechildrenandyoungpeoplewithlongcovidstudy