Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysis
The burden of severe haemophilia A (HA) has been studied extensively owing to the higher bleeding frequency and associated treatment requirements, leaving a clear unmet need for research focused on the burden of mild and moderate HA.
Saved in:
| Main Authors: | , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Sciendo
2024-04-01
|
| Series: | The Journal of Haemophilia Practice |
| Subjects: | |
| Online Access: | https://doi.org/10.2478/jhp-2024-0008 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1832570295359111168 |
|---|---|
| author | Castaman Giancarlo Mancuso Maria Elisa Di Minno Matteo Nicola Dario Sannino Luigi Tempre Rosaria Bendinelli Sara Blenkiron Tom Burke Tom Grazzi Enrico Ferri |
| author_facet | Castaman Giancarlo Mancuso Maria Elisa Di Minno Matteo Nicola Dario Sannino Luigi Tempre Rosaria Bendinelli Sara Blenkiron Tom Burke Tom Grazzi Enrico Ferri |
| author_sort | Castaman Giancarlo |
| collection | DOAJ |
| description | The burden of severe haemophilia A (HA) has been studied extensively owing to the higher bleeding frequency and associated treatment requirements, leaving a clear unmet need for research focused on the burden of mild and moderate HA. |
| format | Article |
| id | doaj-art-3a61e7847d834753a8ed57fcde0f4f1d |
| institution | Kabale University |
| issn | 2055-3390 |
| language | English |
| publishDate | 2024-04-01 |
| publisher | Sciendo |
| record_format | Article |
| series | The Journal of Haemophilia Practice |
| spelling | doaj-art-3a61e7847d834753a8ed57fcde0f4f1d2025-02-02T15:48:30ZengSciendoThe Journal of Haemophilia Practice2055-33902024-04-01111586810.2478/jhp-2024-0008Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysisCastaman Giancarlo0Mancuso Maria Elisa1Di Minno Matteo Nicola Dario2Sannino Luigi3Tempre Rosaria4Bendinelli Sara5Blenkiron Tom6Burke Tom7Grazzi Enrico Ferri8SODc Malattie Emorragiche e della Coagulazione, Azienda Ospedaliera Universitaria Careggi, Firenze, ItalyCenter for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research Hospital, Rozzano, ItalyDipartimento di Medicina Clinica e Chirurgia, Universita di Napoli Federico II, Napoli, ItalyMedical Affairs, Roche, Monza, ItalyMedical Affairs, Roche, Monza, ItalyMedical Affairs, Roche, Monza, ItalyHCD Economics, Knutsford, UKHCD Economics, Knutsford, UK; Faculty of Health and Social Care, University of Chester, Chester, UKHCD Economics, Knutsford, UKThe burden of severe haemophilia A (HA) has been studied extensively owing to the higher bleeding frequency and associated treatment requirements, leaving a clear unmet need for research focused on the burden of mild and moderate HA.https://doi.org/10.2478/jhp-2024-0008haemophilia aannual bleeding ratejoint arthropathypainpatient-reported outcomeshealth-related quality of lifepsychosocial burden |
| spellingShingle | Castaman Giancarlo Mancuso Maria Elisa Di Minno Matteo Nicola Dario Sannino Luigi Tempre Rosaria Bendinelli Sara Blenkiron Tom Burke Tom Grazzi Enrico Ferri Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysis The Journal of Haemophilia Practice haemophilia a annual bleeding rate joint arthropathy pain patient-reported outcomes health-related quality of life psychosocial burden |
| title | Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysis |
| title_full | Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysis |
| title_fullStr | Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysis |
| title_full_unstemmed | Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysis |
| title_short | Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysis |
| title_sort | real world clinical and psychosocial outcomes among people with mild or moderate haemophilia a treated on demand in the italian chess ii cohort a real world data analysis |
| topic | haemophilia a annual bleeding rate joint arthropathy pain patient-reported outcomes health-related quality of life psychosocial burden |
| url | https://doi.org/10.2478/jhp-2024-0008 |
| work_keys_str_mv | AT castamangiancarlo realworldclinicalandpsychosocialoutcomesamongpeoplewithmildormoderatehaemophiliaatreatedondemandintheitalianchessiicohortarealworlddataanalysis AT mancusomariaelisa realworldclinicalandpsychosocialoutcomesamongpeoplewithmildormoderatehaemophiliaatreatedondemandintheitalianchessiicohortarealworlddataanalysis AT diminnomatteonicoladario realworldclinicalandpsychosocialoutcomesamongpeoplewithmildormoderatehaemophiliaatreatedondemandintheitalianchessiicohortarealworlddataanalysis AT sanninoluigi realworldclinicalandpsychosocialoutcomesamongpeoplewithmildormoderatehaemophiliaatreatedondemandintheitalianchessiicohortarealworlddataanalysis AT temprerosaria realworldclinicalandpsychosocialoutcomesamongpeoplewithmildormoderatehaemophiliaatreatedondemandintheitalianchessiicohortarealworlddataanalysis AT bendinellisara realworldclinicalandpsychosocialoutcomesamongpeoplewithmildormoderatehaemophiliaatreatedondemandintheitalianchessiicohortarealworlddataanalysis AT blenkirontom realworldclinicalandpsychosocialoutcomesamongpeoplewithmildormoderatehaemophiliaatreatedondemandintheitalianchessiicohortarealworlddataanalysis AT burketom realworldclinicalandpsychosocialoutcomesamongpeoplewithmildormoderatehaemophiliaatreatedondemandintheitalianchessiicohortarealworlddataanalysis AT grazzienricoferri realworldclinicalandpsychosocialoutcomesamongpeoplewithmildormoderatehaemophiliaatreatedondemandintheitalianchessiicohortarealworlddataanalysis |