The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis (ALS) presents significant challenges for affected families. The aim for this study was to assess the feasibility of using the Strengths and Difficulties Questionnaire (SDQ) with adolescents and parents with and without ALS. The method involved repeatedly distributing t...
Saved in:
| Main Authors: | , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Taylor & Francis Group
2025-12-01
|
| Series: | International Journal of Adolescence and Youth |
| Subjects: | |
| Online Access: | https://www.tandfonline.com/doi/10.1080/02673843.2025.2454991 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1832594129551360000 |
|---|---|
| author | Stefan Nilsson Nina Malmström Ingela Nygren Joakim Öhlén Birgitta Jakobsson Larsson Anneli Ozanne |
| author_facet | Stefan Nilsson Nina Malmström Ingela Nygren Joakim Öhlén Birgitta Jakobsson Larsson Anneli Ozanne |
| author_sort | Stefan Nilsson |
| collection | DOAJ |
| description | Amyotrophic Lateral Sclerosis (ALS) presents significant challenges for affected families. The aim for this study was to assess the feasibility of using the Strengths and Difficulties Questionnaire (SDQ) with adolescents and parents with and without ALS. The method involved repeatedly distributing the questionnaire to evaluate its content and structure within this group. The SDQ Prosocial Behaviour subscale and total difficulties score was calculated, along with median values and standard deviations. Parent-adolescent agreement was assessed using intraclass correlations. Data were collected from 11 Swedish families, including 14 adolescents (aged 8–25), 9 parents with ALS, and 8 co-parents. The findings revealed differences between parent and adolescent SDQ scores, emphasizing the need for adolescents’ self-assessments. Their SDQ scores did not indicate significant difficulties, suggesting that most were coping well with everyday life. However, there is significant heterogeneity in the experiences and needs of adolescents. A larger study is needed to confirm its usability. |
| format | Article |
| id | doaj-art-344dcd9012fa4f25aaaf0cd576b07f66 |
| institution | Kabale University |
| issn | 0267-3843 2164-4527 |
| language | English |
| publishDate | 2025-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | International Journal of Adolescence and Youth |
| spelling | doaj-art-344dcd9012fa4f25aaaf0cd576b07f662025-01-20T04:33:45ZengTaylor & Francis GroupInternational Journal of Adolescence and Youth0267-38432164-45272025-12-0130110.1080/02673843.2025.2454991The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral SclerosisStefan Nilsson0Nina Malmström1Ingela Nygren2Joakim Öhlén3Birgitta Jakobsson Larsson4Anneli Ozanne5Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, SwedenInstitute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, SwedenDepartment of Neurology, Uppsala University Hospital, Uppsala, SwedenInstitute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, SwedenDepartment of Neurology, Uppsala University Hospital, Uppsala, SwedenInstitute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, SwedenAmyotrophic Lateral Sclerosis (ALS) presents significant challenges for affected families. The aim for this study was to assess the feasibility of using the Strengths and Difficulties Questionnaire (SDQ) with adolescents and parents with and without ALS. The method involved repeatedly distributing the questionnaire to evaluate its content and structure within this group. The SDQ Prosocial Behaviour subscale and total difficulties score was calculated, along with median values and standard deviations. Parent-adolescent agreement was assessed using intraclass correlations. Data were collected from 11 Swedish families, including 14 adolescents (aged 8–25), 9 parents with ALS, and 8 co-parents. The findings revealed differences between parent and adolescent SDQ scores, emphasizing the need for adolescents’ self-assessments. Their SDQ scores did not indicate significant difficulties, suggesting that most were coping well with everyday life. However, there is significant heterogeneity in the experiences and needs of adolescents. A larger study is needed to confirm its usability.https://www.tandfonline.com/doi/10.1080/02673843.2025.2454991AdolescentsAmyotrophic Lateral Sclerosismental healthStrengths and Difficulties Questionnaire |
| spellingShingle | Stefan Nilsson Nina Malmström Ingela Nygren Joakim Öhlén Birgitta Jakobsson Larsson Anneli Ozanne The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral Sclerosis International Journal of Adolescence and Youth Adolescents Amyotrophic Lateral Sclerosis mental health Strengths and Difficulties Questionnaire |
| title | The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral Sclerosis |
| title_full | The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral Sclerosis |
| title_fullStr | The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral Sclerosis |
| title_full_unstemmed | The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral Sclerosis |
| title_short | The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral Sclerosis |
| title_sort | use of the strengths and difficulties questionnaire to assess mental health in adolescents with parents diagnosed with amyotrophic lateral sclerosis |
| topic | Adolescents Amyotrophic Lateral Sclerosis mental health Strengths and Difficulties Questionnaire |
| url | https://www.tandfonline.com/doi/10.1080/02673843.2025.2454991 |
| work_keys_str_mv | AT stefannilsson theuseofthestrengthsanddifficultiesquestionnairetoassessmentalhealthinadolescentswithparentsdiagnosedwithamyotrophiclateralsclerosis AT ninamalmstrom theuseofthestrengthsanddifficultiesquestionnairetoassessmentalhealthinadolescentswithparentsdiagnosedwithamyotrophiclateralsclerosis AT ingelanygren theuseofthestrengthsanddifficultiesquestionnairetoassessmentalhealthinadolescentswithparentsdiagnosedwithamyotrophiclateralsclerosis AT joakimohlen theuseofthestrengthsanddifficultiesquestionnairetoassessmentalhealthinadolescentswithparentsdiagnosedwithamyotrophiclateralsclerosis AT birgittajakobssonlarsson theuseofthestrengthsanddifficultiesquestionnairetoassessmentalhealthinadolescentswithparentsdiagnosedwithamyotrophiclateralsclerosis AT anneliozanne theuseofthestrengthsanddifficultiesquestionnairetoassessmentalhealthinadolescentswithparentsdiagnosedwithamyotrophiclateralsclerosis AT stefannilsson useofthestrengthsanddifficultiesquestionnairetoassessmentalhealthinadolescentswithparentsdiagnosedwithamyotrophiclateralsclerosis AT ninamalmstrom useofthestrengthsanddifficultiesquestionnairetoassessmentalhealthinadolescentswithparentsdiagnosedwithamyotrophiclateralsclerosis AT ingelanygren useofthestrengthsanddifficultiesquestionnairetoassessmentalhealthinadolescentswithparentsdiagnosedwithamyotrophiclateralsclerosis AT joakimohlen useofthestrengthsanddifficultiesquestionnairetoassessmentalhealthinadolescentswithparentsdiagnosedwithamyotrophiclateralsclerosis AT birgittajakobssonlarsson useofthestrengthsanddifficultiesquestionnairetoassessmentalhealthinadolescentswithparentsdiagnosedwithamyotrophiclateralsclerosis AT anneliozanne useofthestrengthsanddifficultiesquestionnairetoassessmentalhealthinadolescentswithparentsdiagnosedwithamyotrophiclateralsclerosis |