Establishing core data elements for colorectal cancer and mapping to FHIR resources: Towards interoperable Iranian health information systems
Background: Colorectal cancer (CRC) has a high prevalence, threatening public health. Despite the high prevalence, there has not been a proper solution to standardize the data in this domain in Iran. Therefore, this study aims to provide a new approach to standardizing CRC data using Fast Healthcare...
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| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Wolters Kluwer Medknow Publications
2025-01-01
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| Series: | Journal of Education and Health Promotion |
| Subjects: | |
| Online Access: | https://journals.lww.com/10.4103/jehp.jehp_1834_23 |
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| _version_ | 1832086830178107392 |
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| author | Raoof Nopour Somayeh Nasiri Maryam Ahmadi Mohammad Shirkhoda |
| author_facet | Raoof Nopour Somayeh Nasiri Maryam Ahmadi Mohammad Shirkhoda |
| author_sort | Raoof Nopour |
| collection | DOAJ |
| description | Background:
Colorectal cancer (CRC) has a high prevalence, threatening public health. Despite the high prevalence, there has not been a proper solution to standardize the data in this domain in Iran. Therefore, this study aims to provide a new approach to standardizing CRC data using Fast Healthcare Interoperability Resources (FHIR).
Material and Methods:
This study was conducted in five phases. First, a literature review was performed to gain the CRC core data elements based on the scientific databases and thematic websites. Second, we developed a researcher-made questionnaire with a five-choice Likert scale to gain the most important core data elements based on the opinions of specialists. Third, we leveraged the Delphi method to score these elements and develop the minimum data set (MDS) for CRC. Fourth, we used the terminologies to better perceive the concepts and thematic classification of core data elements. Fifth, we leveraged the FHIR to map the CRC core data elements to resources and standardize them.
Results:
Ten CRC data categories of classes were obtained from the literature review and Delphi, including administrative, diagnosis, therapeutic procedure, follow-up, patient referral, vital status, drug, clinical assessment, signs and symptoms, and history of conditions. The obtained resources were patient, care team, condition, family member history, medication request, adverse event, schedule, procedure, location, observation, diagnostic report, specimen, molecular sequence, genomic study, and service request.
Conclusion:
This study showed the FHIR-based standardization of the CRC data as an approach for integrating health institutions to facilitate clinical decision-making and secondary use of healthcare data. |
| format | Article |
| id | doaj-art-2c46a9fe0dad4c59b3d3533da15230e9 |
| institution | Kabale University |
| issn | 2277-9531 2319-6440 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Wolters Kluwer Medknow Publications |
| record_format | Article |
| series | Journal of Education and Health Promotion |
| spelling | doaj-art-2c46a9fe0dad4c59b3d3533da15230e92025-02-06T09:49:49ZengWolters Kluwer Medknow PublicationsJournal of Education and Health Promotion2277-95312319-64402025-01-01141131310.4103/jehp.jehp_1834_23Establishing core data elements for colorectal cancer and mapping to FHIR resources: Towards interoperable Iranian health information systemsRaoof NopourSomayeh NasiriMaryam AhmadiMohammad ShirkhodaBackground: Colorectal cancer (CRC) has a high prevalence, threatening public health. Despite the high prevalence, there has not been a proper solution to standardize the data in this domain in Iran. Therefore, this study aims to provide a new approach to standardizing CRC data using Fast Healthcare Interoperability Resources (FHIR). Material and Methods: This study was conducted in five phases. First, a literature review was performed to gain the CRC core data elements based on the scientific databases and thematic websites. Second, we developed a researcher-made questionnaire with a five-choice Likert scale to gain the most important core data elements based on the opinions of specialists. Third, we leveraged the Delphi method to score these elements and develop the minimum data set (MDS) for CRC. Fourth, we used the terminologies to better perceive the concepts and thematic classification of core data elements. Fifth, we leveraged the FHIR to map the CRC core data elements to resources and standardize them. Results: Ten CRC data categories of classes were obtained from the literature review and Delphi, including administrative, diagnosis, therapeutic procedure, follow-up, patient referral, vital status, drug, clinical assessment, signs and symptoms, and history of conditions. The obtained resources were patient, care team, condition, family member history, medication request, adverse event, schedule, procedure, location, observation, diagnostic report, specimen, molecular sequence, genomic study, and service request. Conclusion: This study showed the FHIR-based standardization of the CRC data as an approach for integrating health institutions to facilitate clinical decision-making and secondary use of healthcare data.https://journals.lww.com/10.4103/jehp.jehp_1834_23colorectal neoplasmscommon data elementshealth information interoperabilityreference standardssystems integration |
| spellingShingle | Raoof Nopour Somayeh Nasiri Maryam Ahmadi Mohammad Shirkhoda Establishing core data elements for colorectal cancer and mapping to FHIR resources: Towards interoperable Iranian health information systems Journal of Education and Health Promotion colorectal neoplasms common data elements health information interoperability reference standards systems integration |
| title | Establishing core data elements for colorectal cancer and mapping to FHIR resources: Towards interoperable Iranian health information systems |
| title_full | Establishing core data elements for colorectal cancer and mapping to FHIR resources: Towards interoperable Iranian health information systems |
| title_fullStr | Establishing core data elements for colorectal cancer and mapping to FHIR resources: Towards interoperable Iranian health information systems |
| title_full_unstemmed | Establishing core data elements for colorectal cancer and mapping to FHIR resources: Towards interoperable Iranian health information systems |
| title_short | Establishing core data elements for colorectal cancer and mapping to FHIR resources: Towards interoperable Iranian health information systems |
| title_sort | establishing core data elements for colorectal cancer and mapping to fhir resources towards interoperable iranian health information systems |
| topic | colorectal neoplasms common data elements health information interoperability reference standards systems integration |
| url | https://journals.lww.com/10.4103/jehp.jehp_1834_23 |
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