Outcome measures in muscular dystrophy rehabilitation: an ICF content comparison approach to the most commonly used MD scales
Introduction: Functioning is the reason to be of rehabilitation as it is essential to the lives of people who suffer from a disease. The International Classification of Functioning, Disability and Health (ICF) can help in designing a functioning profile of a patient, identifying needs for rehabilita...
Saved in:
| Main Authors: | , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Medical Journals Sweden
2025-01-01
|
| Series: | Journal of Rehabilitation Medicine |
| Subjects: | |
| Online Access: | https://medicaljournalssweden.se/jrm/article/view/40327 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1832576184197578752 |
|---|---|
| author | Mihaela Taranu Raquel Sebio-García José C. Milisenda Aida Alejaldre Xavier Pastor Sarah Laxe |
| author_facet | Mihaela Taranu Raquel Sebio-García José C. Milisenda Aida Alejaldre Xavier Pastor Sarah Laxe |
| author_sort | Mihaela Taranu |
| collection | DOAJ |
| description | Introduction: Functioning is the reason to be of rehabilitation as it is essential to the lives of people who suffer from a disease. The International Classification of Functioning, Disability and Health (ICF) can help in designing a functioning profile of a patient, identifying needs for rehabilitation plans and measuring the results of an intervention.
Objective: To identify the outcome measurement instruments reported in clinical studies in muscular dystrophies (MDs) and provide an ICF content analysis.
Method: A systematic literature review was conducted until October 2022, using Medline, PubMed, and Scopus databases. Papers assessing outcomes related to functioning in patients with MDs were included.
Results: A total of 116 papers were included and all identified outcome measures were linked to the ICF. Inter-researcher agreement for the linking process was 0.82. The analysed instruments focused mainly on aspects of body functions, followed by activities and participation. General scales were more comprehensive than specific.
Conclusions: The application of ICF in this research enhances the understanding of functioning of patients with MDs and the need to develop more specific but comprehensive scales tailored to the needs of MD patients, and can guide clinicians in a assessing patients through a biopsychosocial perspective.
|
| format | Article |
| id | doaj-art-22d5a3e8271e4496af7d8cb9aaf7d0b6 |
| institution | Kabale University |
| issn | 1651-2081 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Medical Journals Sweden |
| record_format | Article |
| series | Journal of Rehabilitation Medicine |
| spelling | doaj-art-22d5a3e8271e4496af7d8cb9aaf7d0b62025-01-31T10:18:36ZengMedical Journals SwedenJournal of Rehabilitation Medicine1651-20812025-01-015710.2340/jrm.v57.40327Outcome measures in muscular dystrophy rehabilitation: an ICF content comparison approach to the most commonly used MD scalesMihaela Taranu0Raquel Sebio-García1José C. Milisenda2Aida Alejaldre3Xavier Pastor4Sarah Laxe5Physical Medicine and Rehabilitation Department, Hospital Germans Trias I Pujol, Badalona, Barcelona, Spain; WHOFIC Academic Collaborating Center- Univesitat de Barcelona, Barcelona, SpainPhysical Medicine and Rehabilitation Department, Hospital Germans Trias I Pujol, Badalona, Barcelona, Spain; August Pi i Sunyer Biomedical Research Institute (IDIBAPS) University of Barcelona, Barcelona, Spainscle Research Unit, Internal Medicine Service, Hospital Clínic de Barcelona (HCB), Universidad de Barcelona and Center for Biomedical Research on Rare Diseases (CIBERER), Barcelona, SpainNeurology Service, Hospital Clinic, Barcelona, SpainWHOFIC Academic Collaborating Center-Universitat de Barcelona, Barcelona; Clinical Informatics, Hospital Clínic – Universitat de Barcelona, Barcelona, SpainWHOFIC Academic Collaborating Center- Univesitat de Barcelona, Barcelona, Spain; August Pi i Sunyer Biomedical Research Institute (IDIBAPS) University of Barcelona, Barcelona, Spain; Physical and Rehabilitation Department, Hospital Clinic, ICEMEQ, Barcelona, Spain; Clinical and Experimental Respiratory Immunoallergy (IRCE), Clinic Foundation for Biomedical Research, Barcelona, SpainIntroduction: Functioning is the reason to be of rehabilitation as it is essential to the lives of people who suffer from a disease. The International Classification of Functioning, Disability and Health (ICF) can help in designing a functioning profile of a patient, identifying needs for rehabilitation plans and measuring the results of an intervention. Objective: To identify the outcome measurement instruments reported in clinical studies in muscular dystrophies (MDs) and provide an ICF content analysis. Method: A systematic literature review was conducted until October 2022, using Medline, PubMed, and Scopus databases. Papers assessing outcomes related to functioning in patients with MDs were included. Results: A total of 116 papers were included and all identified outcome measures were linked to the ICF. Inter-researcher agreement for the linking process was 0.82. The analysed instruments focused mainly on aspects of body functions, followed by activities and participation. General scales were more comprehensive than specific. Conclusions: The application of ICF in this research enhances the understanding of functioning of patients with MDs and the need to develop more specific but comprehensive scales tailored to the needs of MD patients, and can guide clinicians in a assessing patients through a biopsychosocial perspective. https://medicaljournalssweden.se/jrm/article/view/40327muscular dystrophyoutcome measuresinternational classification of functioningfunctional status |
| spellingShingle | Mihaela Taranu Raquel Sebio-García José C. Milisenda Aida Alejaldre Xavier Pastor Sarah Laxe Outcome measures in muscular dystrophy rehabilitation: an ICF content comparison approach to the most commonly used MD scales Journal of Rehabilitation Medicine muscular dystrophy outcome measures international classification of functioning functional status |
| title | Outcome measures in muscular dystrophy rehabilitation: an ICF content comparison approach to the most commonly used MD scales |
| title_full | Outcome measures in muscular dystrophy rehabilitation: an ICF content comparison approach to the most commonly used MD scales |
| title_fullStr | Outcome measures in muscular dystrophy rehabilitation: an ICF content comparison approach to the most commonly used MD scales |
| title_full_unstemmed | Outcome measures in muscular dystrophy rehabilitation: an ICF content comparison approach to the most commonly used MD scales |
| title_short | Outcome measures in muscular dystrophy rehabilitation: an ICF content comparison approach to the most commonly used MD scales |
| title_sort | outcome measures in muscular dystrophy rehabilitation an icf content comparison approach to the most commonly used md scales |
| topic | muscular dystrophy outcome measures international classification of functioning functional status |
| url | https://medicaljournalssweden.se/jrm/article/view/40327 |
| work_keys_str_mv | AT mihaelataranu outcomemeasuresinmusculardystrophyrehabilitationanicfcontentcomparisonapproachtothemostcommonlyusedmdscales AT raquelsebiogarcia outcomemeasuresinmusculardystrophyrehabilitationanicfcontentcomparisonapproachtothemostcommonlyusedmdscales AT josecmilisenda outcomemeasuresinmusculardystrophyrehabilitationanicfcontentcomparisonapproachtothemostcommonlyusedmdscales AT aidaalejaldre outcomemeasuresinmusculardystrophyrehabilitationanicfcontentcomparisonapproachtothemostcommonlyusedmdscales AT xavierpastor outcomemeasuresinmusculardystrophyrehabilitationanicfcontentcomparisonapproachtothemostcommonlyusedmdscales AT sarahlaxe outcomemeasuresinmusculardystrophyrehabilitationanicfcontentcomparisonapproachtothemostcommonlyusedmdscales |