Empowerment in Adolescent Patients with a Disability/Chronic Condition: A Scoping Review

Background/Objectives: Empowerment has been associated with several positive outcomes in healthcare; however, there is limited insight on empowerment levels within the adolescent population of those with a chronic condition/disability. The aim of this scoping review was to identify gaps in the exist...

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Main Authors: Kennedy Austin, Carly Pistawka, Colin J. D. Ross, Kathryn A. Selby, Alice Virani, Vanessa Kitchin, Alison M. Elliott
Format: Article
Language:English
Published: MDPI AG 2024-12-01
Series:Children
Subjects:
Online Access:https://www.mdpi.com/2227-9067/12/1/49
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author Kennedy Austin
Carly Pistawka
Colin J. D. Ross
Kathryn A. Selby
Alice Virani
Vanessa Kitchin
Alison M. Elliott
author_facet Kennedy Austin
Carly Pistawka
Colin J. D. Ross
Kathryn A. Selby
Alice Virani
Vanessa Kitchin
Alison M. Elliott
author_sort Kennedy Austin
collection DOAJ
description Background/Objectives: Empowerment has been associated with several positive outcomes in healthcare; however, there is limited insight on empowerment levels within the adolescent population of those with a chronic condition/disability. The aim of this scoping review was to identify gaps in the existing literature on empowerment levels within this population. Methods: Five databases (MEDLINE [Ovid], EMBASE [Ovid], PsycINFO [Ebsco], CINHAL [Ebsco] and Web of Science [UBC]) and grey literature were searched. Results: A total of 67 studies were included and used for data extraction including descriptive numerical analysis followed by a narrative review. Extracted data were divided into demographic characteristics (e.g., ethnicity/ancestry), type of disability/condition (e.g., type 1 diabetes), interventions used to increase empowerment or empowerment-adjacent elements, quantitative and qualitative tools used to measure empowerment (e.g., questionnaires and/or interviews), domains/outcomes associated with empowerment (e.g., self-control), and review articles. Several interventions were shown to have positive effects on empowerment levels in adolescents with a chronic condition/disability. Conclusions: Gaps were identified in the consideration of ethnicity/ancestry and socioeconomic status, demonstrating a need for future research in this space to focus on the intersection of disability, ethnicity/ancestry, and socio-economic status and the implementation of interventions promoting empowerment.
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spelling doaj-art-2208c6503a0d4782a63964d165f821ef2025-01-24T13:27:07ZengMDPI AGChildren2227-90672024-12-011214910.3390/children12010049Empowerment in Adolescent Patients with a Disability/Chronic Condition: A Scoping ReviewKennedy Austin0Carly Pistawka1Colin J. D. Ross2Kathryn A. Selby3Alice Virani4Vanessa Kitchin5Alison M. Elliott6Department of Medical Genetics, University of British Columbia, Vancouver, BC V6T 1Z3, CanadaBC Children’s Hospital Research Institute, Vancouver, BC V5Z 4H4, CanadaDepartment of Medical Genetics, University of British Columbia, Vancouver, BC V6T 1Z3, CanadaBC Children’s Hospital Research Institute, Vancouver, BC V5Z 4H4, CanadaDepartment of Medical Genetics, University of British Columbia, Vancouver, BC V6T 1Z3, CanadaWoodward Library, University of British Columbia, Vancouver, BC V6T 1Z3, CanadaDepartment of Medical Genetics, University of British Columbia, Vancouver, BC V6T 1Z3, CanadaBackground/Objectives: Empowerment has been associated with several positive outcomes in healthcare; however, there is limited insight on empowerment levels within the adolescent population of those with a chronic condition/disability. The aim of this scoping review was to identify gaps in the existing literature on empowerment levels within this population. Methods: Five databases (MEDLINE [Ovid], EMBASE [Ovid], PsycINFO [Ebsco], CINHAL [Ebsco] and Web of Science [UBC]) and grey literature were searched. Results: A total of 67 studies were included and used for data extraction including descriptive numerical analysis followed by a narrative review. Extracted data were divided into demographic characteristics (e.g., ethnicity/ancestry), type of disability/condition (e.g., type 1 diabetes), interventions used to increase empowerment or empowerment-adjacent elements, quantitative and qualitative tools used to measure empowerment (e.g., questionnaires and/or interviews), domains/outcomes associated with empowerment (e.g., self-control), and review articles. Several interventions were shown to have positive effects on empowerment levels in adolescents with a chronic condition/disability. Conclusions: Gaps were identified in the consideration of ethnicity/ancestry and socioeconomic status, demonstrating a need for future research in this space to focus on the intersection of disability, ethnicity/ancestry, and socio-economic status and the implementation of interventions promoting empowerment.https://www.mdpi.com/2227-9067/12/1/49empowermentadolescentsdisabilitychronic condition
spellingShingle Kennedy Austin
Carly Pistawka
Colin J. D. Ross
Kathryn A. Selby
Alice Virani
Vanessa Kitchin
Alison M. Elliott
Empowerment in Adolescent Patients with a Disability/Chronic Condition: A Scoping Review
Children
empowerment
adolescents
disability
chronic condition
title Empowerment in Adolescent Patients with a Disability/Chronic Condition: A Scoping Review
title_full Empowerment in Adolescent Patients with a Disability/Chronic Condition: A Scoping Review
title_fullStr Empowerment in Adolescent Patients with a Disability/Chronic Condition: A Scoping Review
title_full_unstemmed Empowerment in Adolescent Patients with a Disability/Chronic Condition: A Scoping Review
title_short Empowerment in Adolescent Patients with a Disability/Chronic Condition: A Scoping Review
title_sort empowerment in adolescent patients with a disability chronic condition a scoping review
topic empowerment
adolescents
disability
chronic condition
url https://www.mdpi.com/2227-9067/12/1/49
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