Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study
Background. Family caregivers provide the bulk of care to children living with HIV. This places an enormous demand and care burden on the caregivers who often struggle to cope in various ways, some of which may be maladaptive. This may adversely affect their quality of care. Very little literature e...
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| Format: | Article |
| Language: | English |
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Wiley
2021-01-01
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| Series: | AIDS Research and Treatment |
| Online Access: | http://dx.doi.org/10.1155/2021/6660337 |
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| author | Ibrahim Mujjuzi Paul Mutegeki Sarah Nabuwufu Ashim Wosukira Fazirah Namata Patience Alayo Sharon Bright Amanya Richard Nyeko |
| author_facet | Ibrahim Mujjuzi Paul Mutegeki Sarah Nabuwufu Ashim Wosukira Fazirah Namata Patience Alayo Sharon Bright Amanya Richard Nyeko |
| author_sort | Ibrahim Mujjuzi |
| collection | DOAJ |
| description | Background. Family caregivers provide the bulk of care to children living with HIV. This places an enormous demand and care burden on the caregivers who often struggle to cope in various ways, some of which may be maladaptive. This may adversely affect their quality of care. Very little literature exists in resource-limited contexts on the burden of care experienced by caregivers on whom children living with HIV/AIDS depend for their long-term care. We assessed care burden and coping strategies among the caregivers of paediatric HIV/AIDS patients in Lira district, northern Uganda. Methods. A mixed-method cross-sectional study was conducted among 113 caregivers of paediatric HIV patients attending the ART clinic at a tertiary healthcare facility in Lira district, northern Uganda. A consecutive sampling method was used to select participants for the quantitative study, while 15 respondents were purposively sampled for the qualitative data. Quantitative data were collected using standard interviewer-administered questionnaires, while in-depth interview guides were used to collect qualitative data. Data were entered, cleaned, and analysed using SPSS version 23. Qualitative data were analysed thematically. Results. The majority of the caregivers, 65.5% (74), experienced mild-to-moderate burden. The mean burden scores significantly differed by caregivers’ age (P=0.017), marital status (P=0.017), average monthly income (P=0.035), and child’s school attendance (P=0.039). Accepting social support, seeking spiritual support, and reframing were the three most commonly used strategies for coping. Marital status and occupation were, respectively, positively and negatively correlated with information-seeking as a coping strategy, while monthly income was positively correlated with psychosocial support as a strategy. Seeking community support was negatively correlated with the duration of the child’s care. Conclusions. Our findings show that care burden is a common problem among the caregivers of children living with HIV in the study context. |
| format | Article |
| id | doaj-art-20f0d317350242ec8d29cff81c417c32 |
| institution | Kabale University |
| issn | 2090-1240 2090-1259 |
| language | English |
| publishDate | 2021-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | AIDS Research and Treatment |
| spelling | doaj-art-20f0d317350242ec8d29cff81c417c322025-02-03T01:27:24ZengWileyAIDS Research and Treatment2090-12402090-12592021-01-01202110.1155/2021/66603376660337Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method StudyIbrahim Mujjuzi0Paul Mutegeki1Sarah Nabuwufu2Ashim Wosukira3Fazirah Namata4Patience Alayo5Sharon Bright Amanya6Richard Nyeko7Lira University, P.O. Box 1035, Lira, UgandaLira University, P.O. Box 1035, Lira, UgandaLira University, P.O. Box 1035, Lira, UgandaLira University, P.O. Box 1035, Lira, UgandaLira University, P.O. Box 1035, Lira, UgandaLira University, P.O. Box 1035, Lira, UgandaDepartment of Microbiology and Immunology, Lira University, P.O. Box 1035, Lira, UgandaDepartment of Paediatrics and Child Health, Lira University, P.O. Box 1035, Lira, UgandaBackground. Family caregivers provide the bulk of care to children living with HIV. This places an enormous demand and care burden on the caregivers who often struggle to cope in various ways, some of which may be maladaptive. This may adversely affect their quality of care. Very little literature exists in resource-limited contexts on the burden of care experienced by caregivers on whom children living with HIV/AIDS depend for their long-term care. We assessed care burden and coping strategies among the caregivers of paediatric HIV/AIDS patients in Lira district, northern Uganda. Methods. A mixed-method cross-sectional study was conducted among 113 caregivers of paediatric HIV patients attending the ART clinic at a tertiary healthcare facility in Lira district, northern Uganda. A consecutive sampling method was used to select participants for the quantitative study, while 15 respondents were purposively sampled for the qualitative data. Quantitative data were collected using standard interviewer-administered questionnaires, while in-depth interview guides were used to collect qualitative data. Data were entered, cleaned, and analysed using SPSS version 23. Qualitative data were analysed thematically. Results. The majority of the caregivers, 65.5% (74), experienced mild-to-moderate burden. The mean burden scores significantly differed by caregivers’ age (P=0.017), marital status (P=0.017), average monthly income (P=0.035), and child’s school attendance (P=0.039). Accepting social support, seeking spiritual support, and reframing were the three most commonly used strategies for coping. Marital status and occupation were, respectively, positively and negatively correlated with information-seeking as a coping strategy, while monthly income was positively correlated with psychosocial support as a strategy. Seeking community support was negatively correlated with the duration of the child’s care. Conclusions. Our findings show that care burden is a common problem among the caregivers of children living with HIV in the study context.http://dx.doi.org/10.1155/2021/6660337 |
| spellingShingle | Ibrahim Mujjuzi Paul Mutegeki Sarah Nabuwufu Ashim Wosukira Fazirah Namata Patience Alayo Sharon Bright Amanya Richard Nyeko Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study AIDS Research and Treatment |
| title | Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study |
| title_full | Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study |
| title_fullStr | Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study |
| title_full_unstemmed | Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study |
| title_short | Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study |
| title_sort | care burden and coping strategies among caregivers of paediatric hiv aids in northern uganda a cross sectional mixed method study |
| url | http://dx.doi.org/10.1155/2021/6660337 |
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