A Cross-Sectional Study on the Affordable Care Act from the Perspective of People Living with HIV: The Interplay between Knowledge, Stigma, Trust, and Attitudes
Background. Many AIDS Drug Assistance Programs (ADAPs) purchased Affordable Care Act (ACA) Qualified Health Plans (QHPs) for low-income people living with HIV (PLWH). To date, little has been published about PLWH’s perspective on the ACA. We explored ACA knowledge, HIV stigma, trust in the healthcar...
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| Format: | Article |
| Language: | English |
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Wiley
2020-01-01
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| Series: | AIDS Research and Treatment |
| Online Access: | http://dx.doi.org/10.1155/2020/6081721 |
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| author | Christopher Kaperak Sarah Elwood Tamara Saint-Surin Christopher Winstead-Derlega Robert O. Brennan Rebecca Dillingham Kathleen A. McManus |
| author_facet | Christopher Kaperak Sarah Elwood Tamara Saint-Surin Christopher Winstead-Derlega Robert O. Brennan Rebecca Dillingham Kathleen A. McManus |
| author_sort | Christopher Kaperak |
| collection | DOAJ |
| description | Background. Many AIDS Drug Assistance Programs (ADAPs) purchased Affordable Care Act (ACA) Qualified Health Plans (QHPs) for low-income people living with HIV (PLWH). To date, little has been published about PLWH’s perspective on the ACA. We explored ACA knowledge, HIV stigma, trust in the healthcare system, and ACA attitudes among PLWH with ADAP-funded QHPs in Virginia. Methods. Participants were surveyed about demographic characteristics, ACA knowledge, HIV stigma, trust in various healthcare and government entities, and attitudes toward the ACA. Descriptive statistics were used. We assessed for associations (1) between baseline characteristics and correct ACA knowledge, HIV-related stigma, trust, and ACA attitudes and (2) between correct ACA knowledge and the following data: sources of ACA knowledge, HIV stigma, and trust. Results. Participants (n = 53) were a vulnerable population based on the assessment of social determinants of health, and 30% had correct ACA knowledge. Almost three-fourths of participants used HIV clinic case managers for ACA information. Participants who used websites for ACA information had correct ACA knowledge more often compared to those that did not (71% vs. 15%; p = 0.001). Those with correct ACA knowledge had lower stigma scores compared to those without correct ACA knowledge (93.8; SD: 15.4 vs. 108; SD: 20.3; p = 0.01). Participants trusted HIV clinicians more than general clinicians and insurance companies. No association was found between having correct ACA knowledge and endorsing having enough information about the ACA to understand how it will impact their HIV care. Conclusions. Websites imparted accurate ACA information. HIV clinic case managers were the most used source, and HIV clinicians were a trusted source of information. HIV clinicians and case managers should consider disseminating information about the ACA and its impact on HIV care delivery via internet videos. Lack of internet and stigma are a threat to PLWH gaining actionable healthcare information. |
| format | Article |
| id | doaj-art-1b7dba0790674074a7cdd1e09aa7ae8d |
| institution | Kabale University |
| issn | 2090-1240 2090-1259 |
| language | English |
| publishDate | 2020-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | AIDS Research and Treatment |
| spelling | doaj-art-1b7dba0790674074a7cdd1e09aa7ae8d2025-02-03T06:43:30ZengWileyAIDS Research and Treatment2090-12402090-12592020-01-01202010.1155/2020/60817216081721A Cross-Sectional Study on the Affordable Care Act from the Perspective of People Living with HIV: The Interplay between Knowledge, Stigma, Trust, and AttitudesChristopher Kaperak0Sarah Elwood1Tamara Saint-Surin2Christopher Winstead-Derlega3Robert O. Brennan4Rebecca Dillingham5Kathleen A. McManus6School of Medicine, University of Virginia, Charlottesville 22908, VA, USADivision of Infectious Diseases and International Health, University of Virginia, Charlottesville 22908, VA, USASchool of Medicine, University of Virginia, Charlottesville 22908, VA, USASchool of Medicine, University of Virginia, Charlottesville 22908, VA, USAInfectious Diseases Associates of Central Virginia, Lynchburg 24501, VA, USADivision of Infectious Diseases and International Health, University of Virginia, Charlottesville 22908, VA, USADivision of Infectious Diseases and International Health, University of Virginia, Charlottesville 22908, VA, USABackground. Many AIDS Drug Assistance Programs (ADAPs) purchased Affordable Care Act (ACA) Qualified Health Plans (QHPs) for low-income people living with HIV (PLWH). To date, little has been published about PLWH’s perspective on the ACA. We explored ACA knowledge, HIV stigma, trust in the healthcare system, and ACA attitudes among PLWH with ADAP-funded QHPs in Virginia. Methods. Participants were surveyed about demographic characteristics, ACA knowledge, HIV stigma, trust in various healthcare and government entities, and attitudes toward the ACA. Descriptive statistics were used. We assessed for associations (1) between baseline characteristics and correct ACA knowledge, HIV-related stigma, trust, and ACA attitudes and (2) between correct ACA knowledge and the following data: sources of ACA knowledge, HIV stigma, and trust. Results. Participants (n = 53) were a vulnerable population based on the assessment of social determinants of health, and 30% had correct ACA knowledge. Almost three-fourths of participants used HIV clinic case managers for ACA information. Participants who used websites for ACA information had correct ACA knowledge more often compared to those that did not (71% vs. 15%; p = 0.001). Those with correct ACA knowledge had lower stigma scores compared to those without correct ACA knowledge (93.8; SD: 15.4 vs. 108; SD: 20.3; p = 0.01). Participants trusted HIV clinicians more than general clinicians and insurance companies. No association was found between having correct ACA knowledge and endorsing having enough information about the ACA to understand how it will impact their HIV care. Conclusions. Websites imparted accurate ACA information. HIV clinic case managers were the most used source, and HIV clinicians were a trusted source of information. HIV clinicians and case managers should consider disseminating information about the ACA and its impact on HIV care delivery via internet videos. Lack of internet and stigma are a threat to PLWH gaining actionable healthcare information.http://dx.doi.org/10.1155/2020/6081721 |
| spellingShingle | Christopher Kaperak Sarah Elwood Tamara Saint-Surin Christopher Winstead-Derlega Robert O. Brennan Rebecca Dillingham Kathleen A. McManus A Cross-Sectional Study on the Affordable Care Act from the Perspective of People Living with HIV: The Interplay between Knowledge, Stigma, Trust, and Attitudes AIDS Research and Treatment |
| title | A Cross-Sectional Study on the Affordable Care Act from the Perspective of People Living with HIV: The Interplay between Knowledge, Stigma, Trust, and Attitudes |
| title_full | A Cross-Sectional Study on the Affordable Care Act from the Perspective of People Living with HIV: The Interplay between Knowledge, Stigma, Trust, and Attitudes |
| title_fullStr | A Cross-Sectional Study on the Affordable Care Act from the Perspective of People Living with HIV: The Interplay between Knowledge, Stigma, Trust, and Attitudes |
| title_full_unstemmed | A Cross-Sectional Study on the Affordable Care Act from the Perspective of People Living with HIV: The Interplay between Knowledge, Stigma, Trust, and Attitudes |
| title_short | A Cross-Sectional Study on the Affordable Care Act from the Perspective of People Living with HIV: The Interplay between Knowledge, Stigma, Trust, and Attitudes |
| title_sort | cross sectional study on the affordable care act from the perspective of people living with hiv the interplay between knowledge stigma trust and attitudes |
| url | http://dx.doi.org/10.1155/2020/6081721 |
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