Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer
This paper examines the value of facilitated telephone and online support groups for palliative care. Telephone interviews were conducted with twenty people living with advanced cancer who had participated in either a telephone or online support group facilitated by the Cancer Council Victoria, Melb...
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| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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Wiley
2012-01-01
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| Series: | Nursing Research and Practice |
| Online Access: | http://dx.doi.org/10.1155/2012/647836 |
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| _version_ | 1832564806905757696 |
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| author | Annette F. Street Kate Wakelin Amanda Hordern Nicola Bruce Dell Horey |
| author_facet | Annette F. Street Kate Wakelin Amanda Hordern Nicola Bruce Dell Horey |
| author_sort | Annette F. Street |
| collection | DOAJ |
| description | This paper examines the value of facilitated telephone and online support groups for palliative care. Telephone interviews were conducted with twenty people living with advanced cancer who had participated in either a telephone or online support group facilitated by the Cancer Council Victoria, Melbourne, Australia. Two dominant participant narratives emerged: a focus on dying with dignity or an interest in deferring discussion of death and dying to focus on the present. Despite the different approaches, participants found the technology-based support groups to be accessible and safe environments in which to discuss difficult topics in privacy. Technology-based strategies provide opportunities for health professionals to provide social and emotional care to more people by moving beyond individualised care and facilitate peer-to-peer support at the end of life, especially to those with specific needs. Such options are feasible for palliative care services to set up and acceptable to a group of clients, especially for younger clients or those socially or geographically isolated. |
| format | Article |
| id | doaj-art-1b7b03b2e078497cbaa32dba34465dc2 |
| institution | Kabale University |
| issn | 2090-1429 2090-1437 |
| language | English |
| publishDate | 2012-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | Nursing Research and Practice |
| spelling | doaj-art-1b7b03b2e078497cbaa32dba34465dc22025-02-03T01:10:07ZengWileyNursing Research and Practice2090-14292090-14372012-01-01201210.1155/2012/647836647836Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced CancerAnnette F. Street0Kate Wakelin1Amanda Hordern2Nicola Bruce3Dell Horey4Cancer and Palliative Care Studies, La Trobe University, Bundoora, VIC 3086, AustraliaTelephone and Internet Support Groups, Cancer Information and Support Service, Cancer Council Victoria, Carlton, VIC 3053, AustraliaCancer Information and Support Service, Cancer Council Victoria, Carlton, VIC 3053, AustraliaResearch Associate, Health Issues Centre, Bundoora, VIC 3086, AustraliaFaculty of Health Sciences, La Trobe University, Bundoora, VIC 3086, AustraliaThis paper examines the value of facilitated telephone and online support groups for palliative care. Telephone interviews were conducted with twenty people living with advanced cancer who had participated in either a telephone or online support group facilitated by the Cancer Council Victoria, Melbourne, Australia. Two dominant participant narratives emerged: a focus on dying with dignity or an interest in deferring discussion of death and dying to focus on the present. Despite the different approaches, participants found the technology-based support groups to be accessible and safe environments in which to discuss difficult topics in privacy. Technology-based strategies provide opportunities for health professionals to provide social and emotional care to more people by moving beyond individualised care and facilitate peer-to-peer support at the end of life, especially to those with specific needs. Such options are feasible for palliative care services to set up and acceptable to a group of clients, especially for younger clients or those socially or geographically isolated.http://dx.doi.org/10.1155/2012/647836 |
| spellingShingle | Annette F. Street Kate Wakelin Amanda Hordern Nicola Bruce Dell Horey Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer Nursing Research and Practice |
| title | Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer |
| title_full | Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer |
| title_fullStr | Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer |
| title_full_unstemmed | Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer |
| title_short | Dignity and Deferral Narratives as Strategies in Facilitated Technology-Based Support Groups for People with Advanced Cancer |
| title_sort | dignity and deferral narratives as strategies in facilitated technology based support groups for people with advanced cancer |
| url | http://dx.doi.org/10.1155/2012/647836 |
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