Service access experiences of immigrant and refugee caregivers of autistic children in Canada: A scoping review.

Primary caregivers are the main mediators of care for children with an autism diagnosis in Canada, and the navigation process to gain access to autism-related services is known to be a major burden. These challenges to service access are compounded for newcomers to Canada, which include immigrants a...

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Main Authors: Lina Marie Casale, Stephen J Gentles, Janet McLaughlin, Margaret Schneider
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2023-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0293656
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author Lina Marie Casale
Stephen J Gentles
Janet McLaughlin
Margaret Schneider
author_facet Lina Marie Casale
Stephen J Gentles
Janet McLaughlin
Margaret Schneider
author_sort Lina Marie Casale
collection DOAJ
description Primary caregivers are the main mediators of care for children with an autism diagnosis in Canada, and the navigation process to gain access to autism-related services is known to be a major burden. These challenges to service access are compounded for newcomers to Canada, which include immigrants and refugees. The purpose of this scoping review is to describe the available research on Canadian newcomer caregiver experiences navigating and accessing autism-related services. After a systematic search and screening process, 28 studies were included. Data were extracted regarding the populations, study aims, and themes reported. Included studies characterized barriers and facilitators to service access and navigation specific to immigrants, while limited information was available for refugees. Based on the existing literature, the authors provide recommendations for possible research approaches, populations to include, and themes to examine in future research to promote health equity in Canadian autism service access.
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spelling doaj-art-18223812ade34c7d9ac5716cde9d53b02025-02-05T05:32:35ZengPublic Library of Science (PLoS)PLoS ONE1932-62032023-01-011811e029365610.1371/journal.pone.0293656Service access experiences of immigrant and refugee caregivers of autistic children in Canada: A scoping review.Lina Marie CasaleStephen J GentlesJanet McLaughlinMargaret SchneiderPrimary caregivers are the main mediators of care for children with an autism diagnosis in Canada, and the navigation process to gain access to autism-related services is known to be a major burden. These challenges to service access are compounded for newcomers to Canada, which include immigrants and refugees. The purpose of this scoping review is to describe the available research on Canadian newcomer caregiver experiences navigating and accessing autism-related services. After a systematic search and screening process, 28 studies were included. Data were extracted regarding the populations, study aims, and themes reported. Included studies characterized barriers and facilitators to service access and navigation specific to immigrants, while limited information was available for refugees. Based on the existing literature, the authors provide recommendations for possible research approaches, populations to include, and themes to examine in future research to promote health equity in Canadian autism service access.https://doi.org/10.1371/journal.pone.0293656
spellingShingle Lina Marie Casale
Stephen J Gentles
Janet McLaughlin
Margaret Schneider
Service access experiences of immigrant and refugee caregivers of autistic children in Canada: A scoping review.
PLoS ONE
title Service access experiences of immigrant and refugee caregivers of autistic children in Canada: A scoping review.
title_full Service access experiences of immigrant and refugee caregivers of autistic children in Canada: A scoping review.
title_fullStr Service access experiences of immigrant and refugee caregivers of autistic children in Canada: A scoping review.
title_full_unstemmed Service access experiences of immigrant and refugee caregivers of autistic children in Canada: A scoping review.
title_short Service access experiences of immigrant and refugee caregivers of autistic children in Canada: A scoping review.
title_sort service access experiences of immigrant and refugee caregivers of autistic children in canada a scoping review
url https://doi.org/10.1371/journal.pone.0293656
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