Practices for supporting relatives of patients in the agonal phase by an interdisciplinary team in palliative care units. consensus research (PROPAGE 2)
Summary Context In the absence of existing recommendations, the objective of this study was to establish a consensus of the support practices used in an interdisciplinary team in a palliative care unit (PCU) for the relatives of patients in the agonal phase. Method This is a consensus study using th...
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| Language: | English |
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BMC
2025-05-01
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| Series: | BMC Palliative Care |
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| Online Access: | https://doi.org/10.1186/s12904-025-01740-3 |
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| author | M. Mélin C. Roumiguière M. Frasca V. Berger H. Hoarau B. Paternostre N. Stadelmaier O. Pic V. Bergua PROPAGE 2 Group H. Amieva B. Burucoa |
| author_facet | M. Mélin C. Roumiguière M. Frasca V. Berger H. Hoarau B. Paternostre N. Stadelmaier O. Pic V. Bergua PROPAGE 2 Group H. Amieva B. Burucoa |
| author_sort | M. Mélin |
| collection | DOAJ |
| description | Summary Context In the absence of existing recommendations, the objective of this study was to establish a consensus of the support practices used in an interdisciplinary team in a palliative care unit (PCU) for the relatives of patients in the agonal phase. Method This is a consensus study using the Delphi technique. 40 French PCUs participated in this study, including 204 professionals (nurses, nursing assistants, doctors, psychologists, social workers), 42 support volunteers and 32 relatives. These experts responded to a questionnaire comprised of a list drawn up from the results of a preliminary study conducted at Bordeaux University Hospital of 55 practices organised around four topics: providing care and ensuring comfort; communicating, informing and explaining; interacting; and mobilising interdisciplinarity skills. Results Thirty-five practices were approved by the agreement of professionals, volunteers and relatives. 11 were approved only by professionals/volunteers and 6 only by relatives. Three practices were deemed inappropriate by participants. Conclusions These results highlight consensual practices of care during agonal phase in specialized palliative care services and the importance of the quality of care given to patients, of counselling, and the attention paid to the relatives themselves. They will guide and enrich training modules for teams working with relatives. |
| format | Article |
| id | doaj-art-146c30b51e374927bc04a7c78e52b1ed |
| institution | Kabale University |
| issn | 1472-684X |
| language | English |
| publishDate | 2025-05-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Palliative Care |
| spelling | doaj-art-146c30b51e374927bc04a7c78e52b1ed2025-08-20T03:53:16ZengBMCBMC Palliative Care1472-684X2025-05-0124111210.1186/s12904-025-01740-3Practices for supporting relatives of patients in the agonal phase by an interdisciplinary team in palliative care units. consensus research (PROPAGE 2)M. Mélin0C. Roumiguière1M. Frasca2V. Berger3H. Hoarau4B. Paternostre5N. Stadelmaier6O. Pic7V. Bergua8PROPAGE 2 GroupH. Amieva9B. Burucoa10Palliative Medicine and Support Department, Bordeaux University HospitalPalliative Medicine and Support Department, Bordeaux University HospitalPalliative Medicine and Support Department, Bordeaux University HospitalURISH (Unité de Recherche en Soins Et en Sciences Humaines [Care and Human Sciences Research Unit]), Bordeaux University HospitalURISH (Unité de Recherche en Soins Et en Sciences Humaines [Care and Human Sciences Research Unit]), Bordeaux University HospitalPalliative Medicine and Support Department, Bordeaux University HospitalBergonié Regional Cancer CentreUMR (Unité Mixte de Recherche [Mixed Research Unit]) U1219 Bordeaux Population Health Research Centre, INSERM (Institut National de la Santé Et de La Recherche Médicale [National Institute of Health and Medical Research, University of BordeauxUMR (Unité Mixte de Recherche [Mixed Research Unit]) U1219 Bordeaux Population Health Research Centre, INSERM (Institut National de la Santé Et de La Recherche Médicale [National Institute of Health and Medical Research, University of BordeauxUMR (Unité Mixte de Recherche [Mixed Research Unit]) U1219 Bordeaux Population Health Research Centre, INSERM (Institut National de la Santé Et de La Recherche Médicale [National Institute of Health and Medical Research, University of BordeauxPalliative Medicine and Support Department, Bordeaux University HospitalSummary Context In the absence of existing recommendations, the objective of this study was to establish a consensus of the support practices used in an interdisciplinary team in a palliative care unit (PCU) for the relatives of patients in the agonal phase. Method This is a consensus study using the Delphi technique. 40 French PCUs participated in this study, including 204 professionals (nurses, nursing assistants, doctors, psychologists, social workers), 42 support volunteers and 32 relatives. These experts responded to a questionnaire comprised of a list drawn up from the results of a preliminary study conducted at Bordeaux University Hospital of 55 practices organised around four topics: providing care and ensuring comfort; communicating, informing and explaining; interacting; and mobilising interdisciplinarity skills. Results Thirty-five practices were approved by the agreement of professionals, volunteers and relatives. 11 were approved only by professionals/volunteers and 6 only by relatives. Three practices were deemed inappropriate by participants. Conclusions These results highlight consensual practices of care during agonal phase in specialized palliative care services and the importance of the quality of care given to patients, of counselling, and the attention paid to the relatives themselves. They will guide and enrich training modules for teams working with relatives.https://doi.org/10.1186/s12904-025-01740-3Agonal phaseCare practicesRelativesInterdisciplinarityPalliative care |
| spellingShingle | M. Mélin C. Roumiguière M. Frasca V. Berger H. Hoarau B. Paternostre N. Stadelmaier O. Pic V. Bergua PROPAGE 2 Group H. Amieva B. Burucoa Practices for supporting relatives of patients in the agonal phase by an interdisciplinary team in palliative care units. consensus research (PROPAGE 2) BMC Palliative Care Agonal phase Care practices Relatives Interdisciplinarity Palliative care |
| title | Practices for supporting relatives of patients in the agonal phase by an interdisciplinary team in palliative care units. consensus research (PROPAGE 2) |
| title_full | Practices for supporting relatives of patients in the agonal phase by an interdisciplinary team in palliative care units. consensus research (PROPAGE 2) |
| title_fullStr | Practices for supporting relatives of patients in the agonal phase by an interdisciplinary team in palliative care units. consensus research (PROPAGE 2) |
| title_full_unstemmed | Practices for supporting relatives of patients in the agonal phase by an interdisciplinary team in palliative care units. consensus research (PROPAGE 2) |
| title_short | Practices for supporting relatives of patients in the agonal phase by an interdisciplinary team in palliative care units. consensus research (PROPAGE 2) |
| title_sort | practices for supporting relatives of patients in the agonal phase by an interdisciplinary team in palliative care units consensus research propage 2 |
| topic | Agonal phase Care practices Relatives Interdisciplinarity Palliative care |
| url | https://doi.org/10.1186/s12904-025-01740-3 |
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