Development of the PRECIOUS Short-Form (PRECIOUS-SF) quality of care measure for children with serious illnesses
Abstract Background Rising number of children with complex medical conditions necessitate regular healthcare quality evaluation to achieve optimal outcomes. To address the need for a periodic and quick assessment of quality of care in serious childhood illnesses, we developed a short version of prev...
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| Format: | Article |
| Language: | English |
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SpringerOpen
2025-01-01
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| Series: | Journal of Patient-Reported Outcomes |
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| Online Access: | https://doi.org/10.1186/s41687-025-00844-x |
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| author | Felicia Jia Ler Ang Yin Bun Cheung Mihir Gandhi Rahul Malhotra Truls Ostbye Chetna Malhotra Cristelle Chu-Tian Chow Poh Heng Chong Zubair Amin Teresa Shu Zhen Tan Eric Finkelstein |
| author_facet | Felicia Jia Ler Ang Yin Bun Cheung Mihir Gandhi Rahul Malhotra Truls Ostbye Chetna Malhotra Cristelle Chu-Tian Chow Poh Heng Chong Zubair Amin Teresa Shu Zhen Tan Eric Finkelstein |
| author_sort | Felicia Jia Ler Ang |
| collection | DOAJ |
| description | Abstract Background Rising number of children with complex medical conditions necessitate regular healthcare quality evaluation to achieve optimal outcomes. To address the need for a periodic and quick assessment of quality of care in serious childhood illnesses, we developed a short version of previously validated 45-item PaRental Experience with care for Children with serIOUS illnesses (PRECIOUS) measure. Methodology PRECIOUS was administered by parents of children living with serious illnesses at two time-points (baseline and two weeks) in an online survey. PRECIOUS Short-Form (PRECIOUS-SF) items were derived from the full PRECIOUS measure, which comprises five scales, using an exploratory factor analysis and best subset regression. The measurement properties of PRECIOUS-SF scales were assessed using the concurrent validity using Pearson correlation (r) with the PRECIOUS scales, internal consistency (Cronbach’s α) within each scale, convergent validity with overall QoC rating, and test-retest reliability (intraclass correlation coefficient, ICC) between baseline and two-week responses. Results PRECIOUS-SF included 10 items across four scales – (1) access to financial and medical resources (2), collaborative and goal-concordant care (3), caregiver support and respectful care and (4) reduction of caregiving stressors. A fifth and optional scale was suggested for hospitalization-specific processes. PRECIOUS-SF scales correlated strongly with corresponding PRECIOUS scales (r = 0.91 to 0.98) and demonstrated satisfactory internal consistency (α = 0.77 to 0.91) and test-retest reliability (ICCs > 0.70). Conclusions PRECIOUS-SF demonstrated internal consistency, convergent validity, test-retest reliability, and concurrent validity with PRECIOUS. PRECIOUS-SF offers a practical tool for routine quality of care assessment in pediatric serious illnesses for promoting timely service evaluation and quality improvement. |
| format | Article |
| id | doaj-art-1339b8a0daaf40e9a1388db302381578 |
| institution | Kabale University |
| issn | 2509-8020 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | SpringerOpen |
| record_format | Article |
| series | Journal of Patient-Reported Outcomes |
| spelling | doaj-art-1339b8a0daaf40e9a1388db3023815782025-01-26T12:36:10ZengSpringerOpenJournal of Patient-Reported Outcomes2509-80202025-01-01911810.1186/s41687-025-00844-xDevelopment of the PRECIOUS Short-Form (PRECIOUS-SF) quality of care measure for children with serious illnessesFelicia Jia Ler Ang0Yin Bun Cheung1Mihir Gandhi2Rahul Malhotra3Truls Ostbye4Chetna Malhotra5Cristelle Chu-Tian Chow6Poh Heng Chong7Zubair Amin8Teresa Shu Zhen Tan9Eric Finkelstein10Lien Centre for Palliative Care, Duke-NUS Medical SchoolProgramme in Health Services & Systems Research, Duke-NUS Medical SchoolLien Centre for Palliative Care, Duke-NUS Medical SchoolProgramme in Health Services & Systems Research, Duke-NUS Medical SchoolProgramme in Health Services & Systems Research, Duke-NUS Medical SchoolLien Centre for Palliative Care, Duke-NUS Medical SchoolChildren’s Complex and Home Care Services, KK Women’s & Children’s HospitalHCA Hospice LimitedPaediatrics, National University of SingaporeKhoo Teck Puat–National University Children’s Medical Institute, National University HospitalLien Centre for Palliative Care, Duke-NUS Medical SchoolAbstract Background Rising number of children with complex medical conditions necessitate regular healthcare quality evaluation to achieve optimal outcomes. To address the need for a periodic and quick assessment of quality of care in serious childhood illnesses, we developed a short version of previously validated 45-item PaRental Experience with care for Children with serIOUS illnesses (PRECIOUS) measure. Methodology PRECIOUS was administered by parents of children living with serious illnesses at two time-points (baseline and two weeks) in an online survey. PRECIOUS Short-Form (PRECIOUS-SF) items were derived from the full PRECIOUS measure, which comprises five scales, using an exploratory factor analysis and best subset regression. The measurement properties of PRECIOUS-SF scales were assessed using the concurrent validity using Pearson correlation (r) with the PRECIOUS scales, internal consistency (Cronbach’s α) within each scale, convergent validity with overall QoC rating, and test-retest reliability (intraclass correlation coefficient, ICC) between baseline and two-week responses. Results PRECIOUS-SF included 10 items across four scales – (1) access to financial and medical resources (2), collaborative and goal-concordant care (3), caregiver support and respectful care and (4) reduction of caregiving stressors. A fifth and optional scale was suggested for hospitalization-specific processes. PRECIOUS-SF scales correlated strongly with corresponding PRECIOUS scales (r = 0.91 to 0.98) and demonstrated satisfactory internal consistency (α = 0.77 to 0.91) and test-retest reliability (ICCs > 0.70). Conclusions PRECIOUS-SF demonstrated internal consistency, convergent validity, test-retest reliability, and concurrent validity with PRECIOUS. PRECIOUS-SF offers a practical tool for routine quality of care assessment in pediatric serious illnesses for promoting timely service evaluation and quality improvement.https://doi.org/10.1186/s41687-025-00844-xProcess assessmentQuality of carePatient-reported measureProcess measurePerson-centered carePsychometrics |
| spellingShingle | Felicia Jia Ler Ang Yin Bun Cheung Mihir Gandhi Rahul Malhotra Truls Ostbye Chetna Malhotra Cristelle Chu-Tian Chow Poh Heng Chong Zubair Amin Teresa Shu Zhen Tan Eric Finkelstein Development of the PRECIOUS Short-Form (PRECIOUS-SF) quality of care measure for children with serious illnesses Journal of Patient-Reported Outcomes Process assessment Quality of care Patient-reported measure Process measure Person-centered care Psychometrics |
| title | Development of the PRECIOUS Short-Form (PRECIOUS-SF) quality of care measure for children with serious illnesses |
| title_full | Development of the PRECIOUS Short-Form (PRECIOUS-SF) quality of care measure for children with serious illnesses |
| title_fullStr | Development of the PRECIOUS Short-Form (PRECIOUS-SF) quality of care measure for children with serious illnesses |
| title_full_unstemmed | Development of the PRECIOUS Short-Form (PRECIOUS-SF) quality of care measure for children with serious illnesses |
| title_short | Development of the PRECIOUS Short-Form (PRECIOUS-SF) quality of care measure for children with serious illnesses |
| title_sort | development of the precious short form precious sf quality of care measure for children with serious illnesses |
| topic | Process assessment Quality of care Patient-reported measure Process measure Person-centered care Psychometrics |
| url | https://doi.org/10.1186/s41687-025-00844-x |
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