The Association Between the Quality of Care Provided by Family Members and the Quality of Their Relationship With the Care Receiver in Dementia: A Mixed-methods Observational Study
Research suggests that the quality of care provided by family members may be influenced by the quality of relationship they have with the person living with dementia. The study investigated this in the context of assisting with daily activities. The quality of the relationship was assessed using the...
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2025-01-01
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| Series: | Inquiry: The Journal of Health Care Organization, Provision, and Financing |
| Online Access: | https://doi.org/10.1177/00469580241307798 |
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| author | Chiara Carparelli PhD Jan R. Oyebode PhD Gerard A. Riley PhD |
| author_facet | Chiara Carparelli PhD Jan R. Oyebode PhD Gerard A. Riley PhD |
| author_sort | Chiara Carparelli PhD |
| collection | DOAJ |
| description | Research suggests that the quality of care provided by family members may be influenced by the quality of relationship they have with the person living with dementia. The study investigated this in the context of assisting with daily activities. The quality of the relationship was assessed using the conceptual framework of relationship continuity/discontinuity which focuses on whether the carer experiences their relationship as continuous or discontinuous with the pre-dementia relationship. Thirty spousal carers completed the Birmingham Relationship Continuity Measure . Participants were also interviewed about how they provide care for their partner’s daily activities. Passages consistent with a more person-centered approach were identified, and the total number of these in each transcript was used as the measure of care quality. There was a significant correlation between questionnaire scores and the number of person-centered passages: Those reporting greater continuity more frequently described using a person-centered approach. Findings were consistent with earlier research suggesting associations between the quality of the relationship and the quality of care. The concept of relationship continuity suggests ways in which relationship and care quality are connected, and these suggestions could be used to develop interventions to help family carers provide better care. |
| format | Article |
| id | doaj-art-088531d1dc314bd7a8a17fea8634a8f5 |
| institution | Kabale University |
| issn | 0046-9580 1945-7243 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Inquiry: The Journal of Health Care Organization, Provision, and Financing |
| spelling | doaj-art-088531d1dc314bd7a8a17fea8634a8f52025-01-28T14:03:27ZengSAGE PublishingInquiry: The Journal of Health Care Organization, Provision, and Financing0046-95801945-72432025-01-016210.1177/00469580241307798The Association Between the Quality of Care Provided by Family Members and the Quality of Their Relationship With the Care Receiver in Dementia: A Mixed-methods Observational StudyChiara Carparelli PhD0Jan R. Oyebode PhD1Gerard A. Riley PhD2University of Birmingham, Birmingham, UKUniversity of Bradford, Bradford, UKUniversity of Birmingham, Birmingham, UKResearch suggests that the quality of care provided by family members may be influenced by the quality of relationship they have with the person living with dementia. The study investigated this in the context of assisting with daily activities. The quality of the relationship was assessed using the conceptual framework of relationship continuity/discontinuity which focuses on whether the carer experiences their relationship as continuous or discontinuous with the pre-dementia relationship. Thirty spousal carers completed the Birmingham Relationship Continuity Measure . Participants were also interviewed about how they provide care for their partner’s daily activities. Passages consistent with a more person-centered approach were identified, and the total number of these in each transcript was used as the measure of care quality. There was a significant correlation between questionnaire scores and the number of person-centered passages: Those reporting greater continuity more frequently described using a person-centered approach. Findings were consistent with earlier research suggesting associations between the quality of the relationship and the quality of care. The concept of relationship continuity suggests ways in which relationship and care quality are connected, and these suggestions could be used to develop interventions to help family carers provide better care.https://doi.org/10.1177/00469580241307798 |
| spellingShingle | Chiara Carparelli PhD Jan R. Oyebode PhD Gerard A. Riley PhD The Association Between the Quality of Care Provided by Family Members and the Quality of Their Relationship With the Care Receiver in Dementia: A Mixed-methods Observational Study Inquiry: The Journal of Health Care Organization, Provision, and Financing |
| title | The Association Between the Quality of Care Provided by Family Members and the Quality of Their Relationship With the Care Receiver in Dementia: A Mixed-methods Observational Study |
| title_full | The Association Between the Quality of Care Provided by Family Members and the Quality of Their Relationship With the Care Receiver in Dementia: A Mixed-methods Observational Study |
| title_fullStr | The Association Between the Quality of Care Provided by Family Members and the Quality of Their Relationship With the Care Receiver in Dementia: A Mixed-methods Observational Study |
| title_full_unstemmed | The Association Between the Quality of Care Provided by Family Members and the Quality of Their Relationship With the Care Receiver in Dementia: A Mixed-methods Observational Study |
| title_short | The Association Between the Quality of Care Provided by Family Members and the Quality of Their Relationship With the Care Receiver in Dementia: A Mixed-methods Observational Study |
| title_sort | association between the quality of care provided by family members and the quality of their relationship with the care receiver in dementia a mixed methods observational study |
| url | https://doi.org/10.1177/00469580241307798 |
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