Enhancing patients’ role in scientific writing: insights from a global participatory approach with people with multiple sclerosis

Enhancing patients’ role in scientific writing: insights from a global participatory approach with people with multiple sclerosis

Abstract Introduction This study aims to describe a participatory process by investigating the perceptions and expectations of people with multiple sclerosis (pwMS) toward the scientific writing (SW) process and the role of patient engagement and quality of life in influencing them. Methods A two-ph...

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Bibliographic Details
Main Authors: Mariarosaria Savarese, Dilara Usta, Federico Bozzoli, Vanessa Fanning, Federica Molinari, Guendalina Graffigna, Paola Zaratin
Format: Article
Language:English
Published: BMC 2025-02-01
Series:Research Involvement and Engagement
Subjects:
Authorship
Multiple sclerosis
Participatory governance
Patient author
Patient engagement
Responsible research innovation
Online Access:https://doi.org/10.1186/s40900-025-00687-2
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