Relatively high interest but limited active engagement in HIV cure research: Awareness, interest, and information-seeking among affected communities in the Netherlands
Background: Community engagement is important for inclusive HIV cure development. This study evaluates current engagement in HIV cure research among affected communities in the Netherlands by analyzing awareness, interest, and information-seeking behavior. It also identifies participant characterist...
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| Format: | Article |
| Language: | English |
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Elsevier
2024-12-01
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| Series: | Journal of Virus Eradication |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2055664024000323 |
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| author | Maaike A.J. Noorman John B.F. de Wit Tamika A. Marcos Sarah E. Stutterheim Thijs Albers Kai J. Jonas Chantal den Daas |
| author_facet | Maaike A.J. Noorman John B.F. de Wit Tamika A. Marcos Sarah E. Stutterheim Thijs Albers Kai J. Jonas Chantal den Daas |
| author_sort | Maaike A.J. Noorman |
| collection | DOAJ |
| description | Background: Community engagement is important for inclusive HIV cure development. This study evaluates current engagement in HIV cure research among affected communities in the Netherlands by analyzing awareness, interest, and information-seeking behavior. It also identifies participant characteristics and HIV-related illness perceptions linked to each engagement stage. Methods: A cross-sectional survey was conducted from July 2023 to March 2024, involving 499 people with HIV and 578 individuals without HIV, including partners and gay, bisexual, and other men who have sex with men. Multivariate regression analyses examined the relationships between participant characteristics, HIV-related illness perceptions, and three outcomes: awareness, interest, and information-seeking. Results: The mean awareness was 3.08 (SD = 0.99) interest was higher at 3.67 (SD = 0.85), while the information-seeking frequency was lower at 2.33 (SD = 0.97). Higher awareness was seen in older participants, non-cisgender men, and those with increased perceived control and comprehensibility of HIV. Interest in cure research was higher among people with HIV, those with a migration background, individuals with steady partner(s), and those experiencing greater HIV-related concerns, negative HIV-related emotions, and better HIV comprehension. Information-seeking frequency was greater among people with HIV, those with a bachelor's degree, individuals from a migration background, those with steady partner(s), and those perceiving more severe HIV-related symptoms, and heightened concerns and negative emotions about HIV. Conclusion: While moderate awareness exists, engagement remains passive with limited information-seeking; however, significant interest in a cure underscores the need for enhanced communication efforts to foster inclusive HIV cure development. |
| format | Article |
| id | doaj-art-05feee29351447cc91fbbaa0ad161cbe |
| institution | Kabale University |
| issn | 2055-6640 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Journal of Virus Eradication |
| spelling | doaj-art-05feee29351447cc91fbbaa0ad161cbe2025-01-27T04:21:49ZengElsevierJournal of Virus Eradication2055-66402024-12-01104100570Relatively high interest but limited active engagement in HIV cure research: Awareness, interest, and information-seeking among affected communities in the NetherlandsMaaike A.J. Noorman0John B.F. de Wit1Tamika A. Marcos2Sarah E. Stutterheim3Thijs Albers4Kai J. Jonas5Chantal den Daas6Department of Interdisciplinary Social Science, Utrecht University, Utrecht, the Netherlands; Corresponding author. PO Box 80140, 3508 TC Utrecht, the Netherlands.Department of Interdisciplinary Social Science, Utrecht University, Utrecht, the NetherlandsDepartment of Work and Social Psychology, Maastricht University, Maastricht, the NetherlandsDepartment of Health Promotion and Care and Public Health Research Institute, Maastricht University, Maastricht, the NetherlandsHiv Vereniging, Amsterdam, the NetherlandsDepartment of Work and Social Psychology, Maastricht University, Maastricht, the NetherlandsHealth Psychology Group Institute of Applied Health Sciences, University of Aberdeen, Aberdeen, United KingdomBackground: Community engagement is important for inclusive HIV cure development. This study evaluates current engagement in HIV cure research among affected communities in the Netherlands by analyzing awareness, interest, and information-seeking behavior. It also identifies participant characteristics and HIV-related illness perceptions linked to each engagement stage. Methods: A cross-sectional survey was conducted from July 2023 to March 2024, involving 499 people with HIV and 578 individuals without HIV, including partners and gay, bisexual, and other men who have sex with men. Multivariate regression analyses examined the relationships between participant characteristics, HIV-related illness perceptions, and three outcomes: awareness, interest, and information-seeking. Results: The mean awareness was 3.08 (SD = 0.99) interest was higher at 3.67 (SD = 0.85), while the information-seeking frequency was lower at 2.33 (SD = 0.97). Higher awareness was seen in older participants, non-cisgender men, and those with increased perceived control and comprehensibility of HIV. Interest in cure research was higher among people with HIV, those with a migration background, individuals with steady partner(s), and those experiencing greater HIV-related concerns, negative HIV-related emotions, and better HIV comprehension. Information-seeking frequency was greater among people with HIV, those with a bachelor's degree, individuals from a migration background, those with steady partner(s), and those perceiving more severe HIV-related symptoms, and heightened concerns and negative emotions about HIV. Conclusion: While moderate awareness exists, engagement remains passive with limited information-seeking; however, significant interest in a cure underscores the need for enhanced communication efforts to foster inclusive HIV cure development.http://www.sciencedirect.com/science/article/pii/S2055664024000323HIVHIV cureCommunity engagementPeople with HIVGBMSMPartners |
| spellingShingle | Maaike A.J. Noorman John B.F. de Wit Tamika A. Marcos Sarah E. Stutterheim Thijs Albers Kai J. Jonas Chantal den Daas Relatively high interest but limited active engagement in HIV cure research: Awareness, interest, and information-seeking among affected communities in the Netherlands Journal of Virus Eradication HIV HIV cure Community engagement People with HIV GBMSM Partners |
| title | Relatively high interest but limited active engagement in HIV cure research: Awareness, interest, and information-seeking among affected communities in the Netherlands |
| title_full | Relatively high interest but limited active engagement in HIV cure research: Awareness, interest, and information-seeking among affected communities in the Netherlands |
| title_fullStr | Relatively high interest but limited active engagement in HIV cure research: Awareness, interest, and information-seeking among affected communities in the Netherlands |
| title_full_unstemmed | Relatively high interest but limited active engagement in HIV cure research: Awareness, interest, and information-seeking among affected communities in the Netherlands |
| title_short | Relatively high interest but limited active engagement in HIV cure research: Awareness, interest, and information-seeking among affected communities in the Netherlands |
| title_sort | relatively high interest but limited active engagement in hiv cure research awareness interest and information seeking among affected communities in the netherlands |
| topic | HIV HIV cure Community engagement People with HIV GBMSM Partners |
| url | http://www.sciencedirect.com/science/article/pii/S2055664024000323 |
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