Extending the concept of total pain to cancer survivorship
More people are surviving cancer than ever before. While there is a growing body of research on quality of life in cancer survivorship, we still do not have a good understanding of the lived complexities that many people experience after successful treatment. Inspired by the literature on existentia...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2025-01-01
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| Series: | Frontiers in Sociology |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fsoc.2024.1387096/full |
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| author | Marian Krawczyk Kari Nyheim Solbrække Lisbeth Thoresen |
| author_facet | Marian Krawczyk Kari Nyheim Solbrække Lisbeth Thoresen |
| author_sort | Marian Krawczyk |
| collection | DOAJ |
| description | More people are surviving cancer than ever before. While there is a growing body of research on quality of life in cancer survivorship, we still do not have a good understanding of the lived complexities that many people experience after successful treatment. Inspired by the literature on existential concerns in cancer survivorship, we consider how the concept of ‘total pain’, which emerged from the contemporary hospice movement, may be useful to think about experiences of suffering in cancer survivorship, using interviews from a Norwegian research project Rethinking Cancer Survivorship. We find that the concept of total pain encapsulates concerns for existential suffering and also has unique features which offer new forms of understanding and action. This includes its origins within cancer care; how it addresses the individual as a whole and re-centres the body; its reliance on and recognition of the limits of narrative; how it attends to relationality; and how the concept may afford unique insights for service development. Dying from cancer and surviving cancer are different processes, but total pain can serve as a useful conceptual compass to orient our understandings of those who experience this illness, regardless of disease outcome. |
| format | Article |
| id | doaj-art-04fe62e3eee741fb87aab21eb1181f2f |
| institution | Kabale University |
| issn | 2297-7775 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Sociology |
| spelling | doaj-art-04fe62e3eee741fb87aab21eb1181f2f2025-01-30T06:22:35ZengFrontiers Media S.A.Frontiers in Sociology2297-77752025-01-01910.3389/fsoc.2024.13870961387096Extending the concept of total pain to cancer survivorshipMarian Krawczyk0Kari Nyheim Solbrække1Lisbeth Thoresen2End of Life Studies, School of Social and Environmental Sustainability, University of Glasgow, Glasgow, United KingdomDepartment of Interdisciplinary Health Sciences, Faculty of Medicine, University of Oslo, Oslo, NorwayDepartment of Interdisciplinary Health Sciences, Faculty of Medicine, University of Oslo, Oslo, NorwayMore people are surviving cancer than ever before. While there is a growing body of research on quality of life in cancer survivorship, we still do not have a good understanding of the lived complexities that many people experience after successful treatment. Inspired by the literature on existential concerns in cancer survivorship, we consider how the concept of ‘total pain’, which emerged from the contemporary hospice movement, may be useful to think about experiences of suffering in cancer survivorship, using interviews from a Norwegian research project Rethinking Cancer Survivorship. We find that the concept of total pain encapsulates concerns for existential suffering and also has unique features which offer new forms of understanding and action. This includes its origins within cancer care; how it addresses the individual as a whole and re-centres the body; its reliance on and recognition of the limits of narrative; how it attends to relationality; and how the concept may afford unique insights for service development. Dying from cancer and surviving cancer are different processes, but total pain can serve as a useful conceptual compass to orient our understandings of those who experience this illness, regardless of disease outcome.https://www.frontiersin.org/articles/10.3389/fsoc.2024.1387096/fulltotal paincancer survivorshipcancerexistential distresssuffering |
| spellingShingle | Marian Krawczyk Kari Nyheim Solbrække Lisbeth Thoresen Extending the concept of total pain to cancer survivorship Frontiers in Sociology total pain cancer survivorship cancer existential distress suffering |
| title | Extending the concept of total pain to cancer survivorship |
| title_full | Extending the concept of total pain to cancer survivorship |
| title_fullStr | Extending the concept of total pain to cancer survivorship |
| title_full_unstemmed | Extending the concept of total pain to cancer survivorship |
| title_short | Extending the concept of total pain to cancer survivorship |
| title_sort | extending the concept of total pain to cancer survivorship |
| topic | total pain cancer survivorship cancer existential distress suffering |
| url | https://www.frontiersin.org/articles/10.3389/fsoc.2024.1387096/full |
| work_keys_str_mv | AT mariankrawczyk extendingtheconceptoftotalpaintocancersurvivorship AT karinyheimsolbrække extendingtheconceptoftotalpaintocancersurvivorship AT lisbeththoresen extendingtheconceptoftotalpaintocancersurvivorship |