The Unsteady Mainstay of the Family: Now Adult Children’s Retrospective View on Social Support in Relation to Their Parent’s Heart Transplantation

The needs for support among children with a seriously ill parent, who is waiting for heart transplantation, are unknown today. The aim was to describe now adult children’s experiences of social support in relation to a parent’s heart transplant during childhood. Nine females and four males were inte...

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Main Authors: Susanna Ågren, Bodil Ivarsson, Helén Rönning
Format: Article
Language:English
Published: Wiley 2014-01-01
Series:Nursing Research and Practice
Online Access:http://dx.doi.org/10.1155/2014/541241
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author Susanna Ågren
Bodil Ivarsson
Helén Rönning
author_facet Susanna Ågren
Bodil Ivarsson
Helén Rönning
author_sort Susanna Ågren
collection DOAJ
description The needs for support among children with a seriously ill parent, who is waiting for heart transplantation, are unknown today. The aim was to describe now adult children’s experiences of social support in relation to a parent’s heart transplant during childhood. Nine females and four males were interviewed. The median age for the children was 18 at the transplantation and their parents had been ill before for 18 months (median) and on waiting list for 161 days (mean). Three categories emerged: health care professionals’ approaches, family and friends’ approaches, and society approaches. Our results show that there was lack of support for children of heart transplantation patients. Support in the shape of information was in most cases provided by the sick or healthy parent. It is of great clinical importance to develop psychosocial support programs for children with a seriously ill parent waiting for heart transplantation (before, during, and after surgery).
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language English
publishDate 2014-01-01
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series Nursing Research and Practice
spelling doaj-art-01f6d9591d8c4f1b8e145fa1a88024722025-02-03T05:54:22ZengWileyNursing Research and Practice2090-14292090-14372014-01-01201410.1155/2014/541241541241The Unsteady Mainstay of the Family: Now Adult Children’s Retrospective View on Social Support in Relation to Their Parent’s Heart TransplantationSusanna Ågren0Bodil Ivarsson1Helén Rönning2Department of Medical and Health Sciences, Linköping University, 581 83 Linköping, SwedenDepartment of Cardiothoracic Surgery, Clinical Sciences, Lund University, 221 85 Lund, SwedenSchool of Health Sciences, Jönköping University, 551 11 Jönköping, SwedenThe needs for support among children with a seriously ill parent, who is waiting for heart transplantation, are unknown today. The aim was to describe now adult children’s experiences of social support in relation to a parent’s heart transplant during childhood. Nine females and four males were interviewed. The median age for the children was 18 at the transplantation and their parents had been ill before for 18 months (median) and on waiting list for 161 days (mean). Three categories emerged: health care professionals’ approaches, family and friends’ approaches, and society approaches. Our results show that there was lack of support for children of heart transplantation patients. Support in the shape of information was in most cases provided by the sick or healthy parent. It is of great clinical importance to develop psychosocial support programs for children with a seriously ill parent waiting for heart transplantation (before, during, and after surgery).http://dx.doi.org/10.1155/2014/541241
spellingShingle Susanna Ågren
Bodil Ivarsson
Helén Rönning
The Unsteady Mainstay of the Family: Now Adult Children’s Retrospective View on Social Support in Relation to Their Parent’s Heart Transplantation
Nursing Research and Practice
title The Unsteady Mainstay of the Family: Now Adult Children’s Retrospective View on Social Support in Relation to Their Parent’s Heart Transplantation
title_full The Unsteady Mainstay of the Family: Now Adult Children’s Retrospective View on Social Support in Relation to Their Parent’s Heart Transplantation
title_fullStr The Unsteady Mainstay of the Family: Now Adult Children’s Retrospective View on Social Support in Relation to Their Parent’s Heart Transplantation
title_full_unstemmed The Unsteady Mainstay of the Family: Now Adult Children’s Retrospective View on Social Support in Relation to Their Parent’s Heart Transplantation
title_short The Unsteady Mainstay of the Family: Now Adult Children’s Retrospective View on Social Support in Relation to Their Parent’s Heart Transplantation
title_sort unsteady mainstay of the family now adult children s retrospective view on social support in relation to their parent s heart transplantation
url http://dx.doi.org/10.1155/2014/541241
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