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  1. 1
    Rare disease care in Europe – Gaping unmet needs

    Rare disease care in Europe – Gaping unmet needs by Philippe Pakter

    Published 2024-01-01
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  2. 2
    Moving beyond surgical excellence: a qualitative systematic review into the perspectives and experiences of children, adolescents, and adults living with a rare congenital craniofacial condition and their parents

    Moving beyond surgical excellence: a qualitative systematic review into the perspectives and experiences of children, adolescents, and adults living with a rare congenital craniofa... by Mariët Faasse, Hester M. van de Bovenkamp, Karolijn Dulfer, Virginie Kauffman, Ivana Marinac, Veronica Leonardi, Gareth Davies, Philippe Pakter, Jana Angelova, Karen Wilkinson-Bell, Lars Kölby, Marizela Kljajić

    Published 2025-02-01
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