Developing a standard dataset in the European registries for rare endocrine and bone conditions—a Melorheostosis dataset by Natasha M. Appelman-Dijkstra, Mariya Cherenko, Gavin P. R. Clunie, Thomas Funck-Brentano, Corinna Grasemann, Adalbert Raimann, Willem F. Lems, Martine Cohen-Solal

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