The impact of 22q11.2 deletion syndrome on caregivers: assessing quality of life and burden by Dariusz Walkowiak, Jan Domaradzki

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Perception of psychosocial burden in mothers of children with rare pediatric neurological diseases by Dariusz Walkowiak, Jan Domaradzki

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“I thought I was an open-minded person”: Experiences of secular therapists working with Ultra- Orthodox clients in Israel – a qualitative study by Einat Doron, Sławomir Tobis, Jan Domaradzki

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Rare disease, common struggles: quality of life, caregiver burden and financial wellbeing of family caregivers in Poland by Jan Domaradzki, Piotr Jabkowski, Dariusz Walkowiak

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Quality of Life Among Family Caregivers of Individuals With Rare Diseases: Web-Based Population Study on the Validity and Reliability of the Polish World Health Organization Qualit... by Piotr Jabkowski, Jan Domaradzki, Dariusz Walkowiak

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Assessing the impact of Dravet syndrome on caregivers’ quality of life and perceived burden in Poland by Jan Domaradzki, Dariusz Walkowiak, Association for People with Severe Refractory Epilepsy DRAVET.PL

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Caregivers’ experiences and challenges of the diagnostic odyssey in Dravet syndrome by Jan Domaradzki, Dariusz Walkowiak, the Association for People with Severe Refractory Epilepsy Dravet.pl

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